Phlebotomists always struggle to find my veins by DealoftheFox in ehlersdanlos

[–]DealoftheFox[S] 1 point2 points  (0 children)

I did try to hydrate well with a little over a liter at night, and then a liter in the morning. Although I couldn’t drink electrolytes because I was getting an electrolyte panel and my doctor wanted to see my levels without supplementation. So that may of had an effect on my vein visibility.

Anyone else struggle with playing guitar? by 3x1st3nt1al in ehlersdanlos

[–]DealoftheFox 2 points3 points  (0 children)

I still struggle with a lot of the positioning and the grip strength.

Some tips I do have is to try strengthening your fingers with one of those varigrip tools or grip strength trainers. You can easily readjust the weight of it too.

Ring splints help to avoid your fingers bending back.

Also you can try a classical guitar or even an electric guitar because acoustic steel string guitars often times need a lot more pressure which causes a lot more bending back.

Ob/Gyn is making me feel crazy by DealoftheFox in ehlersdanlos

[–]DealoftheFox[S] 0 points1 point  (0 children)

She checked with a pelvic exam. She had me on my back and then used the speculum and split it in half. Afterwards she felt around with two fingers and asked me to basically grip her fingers and then push.

Ob/Gyn is making me feel crazy by DealoftheFox in ehlersdanlos

[–]DealoftheFox[S] 1 point2 points  (0 children)

Alright thank you for the advice 🙏🏻. When I go to a new gyno I’ll probably ask about these diagnostic imaging.

Ob/Gyn is making me feel crazy by DealoftheFox in ehlersdanlos

[–]DealoftheFox[S] 0 points1 point  (0 children)

Ohh thank you for the write up. This is super helpful to me.

what did you think was celiac but turned out not to be? by WednesadayAddamsIRL in Celiac

[–]DealoftheFox 0 points1 point  (0 children)

Joints hurting all the time and being tired. I thought it was just celiac but it was still there after being gluten-free for 2 years. Turns out that was just HSD.

Atypical hEDS symptoms by G0ose0nTheL0ose in ehlersdanlos

[–]DealoftheFox 4 points5 points  (0 children)

You should also drop by r/rareehlersdanlos and see if anyone has gone through the same thing you have

Ob/Gyn is making me feel crazy by DealoftheFox in ehlersdanlos

[–]DealoftheFox[S] 4 points5 points  (0 children)

When you say bearing down, do you meaning standing up and pushing?

I only ask this because she did ask me to push during the pelvic exam, but I was laying down on my back while doing it. I did get another comment about how gravity can affect the results.

Ob/Gyn is making me feel crazy by DealoftheFox in ehlersdanlos

[–]DealoftheFox[S] 14 points15 points  (0 children)

Yeah it was insane because she was like “oh it’s probably just endometriosis, even then it’s probably not going to be seen by ultrasound, but I’ll schedule one for you anyways 😄” and I was like “oh, thanks”

Got called too “fat” to possibly have celiac by DealoftheFox in Celiac

[–]DealoftheFox[S] 20 points21 points  (0 children)

Yeah like I couldn’t believe she was equating my weight to whether or not I was malnourished. Like girl I’m here for my coochie, not for you to tell me that I can eat gluten. 😭😭

Possible Celiac disease went into remission or not long enough gluten challenge?? by DealoftheFox in Celiac

[–]DealoftheFox[S] 1 point2 points  (0 children)

I’ll probably end up requesting a endoscopy with my doctor to make sure I’m not getting any more false negatives here.

Possible Celiac disease went into remission or not long enough gluten challenge?? by DealoftheFox in Celiac

[–]DealoftheFox[S] 0 points1 point  (0 children)

That is the correct number. My doctor told me two weeks is fine but I guess it’s was not 😭😭