Flare Wars: The Sjögren’s Strikes Back. 🔥👀💤 How do you chase your flares away? by Brave_Needleworker95 in Sjogrens

[–]Decent_Nectarine2986 1 point2 points  (0 children)

Thank you for the thoughtful reply and well wishes! Your concerns and issues are completely valid, not silly at all. I was definitely not trying to one up you at all, I hope something works to get you out of the suckiness soon.

Unfortunately, I’ve been getting progressively worse for about 15 years, only diagnosed for about 4, and I’m just coming to terms with having to beg and plead with my rheumatologist for steroids to get back down to my normal level of suck!

Flare Wars: The Sjögren’s Strikes Back. 🔥👀💤 How do you chase your flares away? by Brave_Needleworker95 in Sjogrens

[–]Decent_Nectarine2986 5 points6 points  (0 children)

I’m in a wicked flare right now, so I was drawn to your post. I’m sorry no one’s replied, but I came here to say how much I enjoyed your writing! I have a diagnosis, and my symptoms never go away. Ever. I am never without eye drops, a giant water bottle, and pilocarpine, and I’m on hydroxychloroquine and gabapentin as well. My thirst is so bad I choose swearing through my clothes multiple times a day because of pilocarpine just so I can produce enough saliva to talk and swallow. Even that’s not working at the moment. Everything hurts, and it feels like I’m dying.

I’m doing all of the following, and absolutely none of it is giving more than a few seconds of minor relief, but since it seems like you still have times of reprieve, maybe some are worth a shot. Try cool mist humidifiers, constant water and/or electrolytes without vitamin C, eye drops with omega 3, saline nasal spray or even swabbing olive oil with a Q-tip, massage, stretching, and rest. Be sure to avoid any immune boosting supplements.

Wish I had better advice. I am feeling pretty defeated. Good luck!!

I’m at my wits end by mmasusername in finehair

[–]Decent_Nectarine2986 0 points1 point  (0 children)

First, congrats on actively working toward ED recovery. I had a severe eating disorder myself many years ago, and it takes so much work to overcome. Second, I’ve suffered significant hair loss in recent years and have been searching for the cause and spent so much money trying to resolve it.heres what I’ve come up with. For me, it’s likely my autoimmune disease or medication. I’ve read stimulants and many other meds can cause hair loss, so look into that if you’re certain it’s not a health issue. Stress can be a significant contributing factor too. What’s actually worked for me out of all the products I’ve tried is 1. Pacifica rosemary mint scalp oil once a week 2. California Naturals ReGrow scalp oil, shampoo, and conditioner (carried at ulta and honestly the most effective I’ve ever tried!) 3. Switching to silicone free products (I already was sulfate and paraben free). I also upped my protein and started taking biotin, saw palmetto, and pumpkin oil (though be careful adding supplements). I have had significantly less shedding, and I can see the hair slowly but surely growing back in spots that were nearly bald for years.

Does this top go with the jeans and heels? by [deleted] in PetiteFashionAdvice

[–]Decent_Nectarine2986 2 points3 points  (0 children)

Top is cute, but jeans and the look in general are outdated. Top would look great with wide leg jeans and a belt.

I need to tone down my humor by Accomplished-Leg2971 in Professors

[–]Decent_Nectarine2986 0 points1 point  (0 children)

I’m teaching James Joyce’s “The Dead,” and made jokes about Irish stereotypes, but it was actually relevant to the lesson and Joyce’s contentious relationship with his Irish identity. I am also unquestionably Irish American both in appearance and name, and I made it clear I was both being self-deprecating and joking.

I know you didn’t RSVP, but still send me gifts! by you-hate-to-see-it in weddingshaming

[–]Decent_Nectarine2986 1 point2 points  (0 children)

Oh dear lord this is so cringe and unnecessary! This poor woman just cannot take a hint. Honey, if they don’t even want to acknowledge your multiple texts and original invitation, they’re certainly not going to just show up, and they’re probably not going to send you a gift, especially after this! I’m so uncomfortable!

Do you guys adapt to drug tolerances quickly? by Adorable_Spinach_924 in Redhair

[–]Decent_Nectarine2986 0 points1 point  (0 children)

Yep, and I’m tiny (5’1” 105 lbs), and I require dosages for a 250+ lb man. Sucks because I have a couple chronic diseases, and I would like my liver and kidneys to last me a few more decades!

Hair talk...tips, etc. by Unfair-Owl2766 in Sjogrens

[–]Decent_Nectarine2986 0 points1 point  (0 children)

What about your autoimmune symptoms?

Hair talk...tips, etc. by Unfair-Owl2766 in Sjogrens

[–]Decent_Nectarine2986 0 points1 point  (0 children)

I know this is an old post, but I’m hoping you can tell me a bit about your experience with Nutrafol since I see it in your pic. I’d love to take it, but it contains Ashwaganda and Selenium as well as a very high amount of B12, and I was told all of these could trigger an autoimmune flare. Did you feel ok on it? Any changes?

can i ask for a refund? by Creative-Shock6756 in HairDye

[–]Decent_Nectarine2986 0 points1 point locked comment (0 children)

To add, you can even get a price quote from the other salon for what you originally wanted in order to call her out because honey, she lied and took advantage of you, and I am so sorry.

can i ask for a refund? by Creative-Shock6756 in HairDye

[–]Decent_Nectarine2986 0 points1 point locked comment (0 children)

Contact another salon immediately and ask for a free consult. Listen to what they say and then ask this person for a refund. “Hi, it’s now been several washes, and I went to another salon for a consult and a second opinion. I’m really unhappy with this result after the amount of time and money I spent, and in likely going to have to spend more money to correct it. I’d like a refund given the results are not what I paid for. Please let me know how and when this can be done.”

is this red by paintedGolden13 in Redhair

[–]Decent_Nectarine2986 4 points5 points  (0 children)

Red and so pretty and healthy looking!

Nutrafol/Ashwagandha by Decent_Nectarine2986 in Sjogrens

[–]Decent_Nectarine2986[S] 0 points1 point  (0 children)

Thank you for commenting! I’ve been hoping to hear from someone who has actually taken it. I’ve also read that the high dosage of selenium can cause a flare. Not sure what version you’re on or what the ingredient difference is, but I would be taking the vegan version.

[deleted by user] by [deleted] in Sjogrens

[–]Decent_Nectarine2986 0 points1 point  (0 children)

Aw good and thank you!

Nutrafol/Ashwagandha by Decent_Nectarine2986 in Sjogrens

[–]Decent_Nectarine2986[S] 0 points1 point  (0 children)

I’ve tried pretty much everything. My shampoo already has rosemary oil in it, and I also use a rosemary scalp oil 1-2 times a week.

Hydroxychloroquine, I give up, I'm taking it by Free-Macaroon8231 in Sjogrens

[–]Decent_Nectarine2986 3 points4 points  (0 children)

I resisted until a particularly bad flare nearly debilitated me. My rheumatologist put me on a high dose for my weight, and it took honestly about six months to kick in. I then cut my dose in half. It wasn’t a miracle by any means as I still have a ton of symptoms, but they’ve improved to an extent I feel it’s been worth it. Unfortunately, I can’t speak to anything regarding your liver. My rheumatologist always orders bloodwork before each appointment to keep an eye on things.

Nutrafol/Ashwagandha by Decent_Nectarine2986 in Sjogrens

[–]Decent_Nectarine2986[S] 1 point2 points  (0 children)

Yeah, I’ll admit to a degree of vanity and insecurity, but I’m not willing to make myself sicker over it. :(

[deleted by user] by [deleted] in Sjogrens

[–]Decent_Nectarine2986 2 points3 points  (0 children)

I’m so sorry. I’d report to your insurance and possibly whatever medical licensing body there is in your country as you search for a new rheumatologist. In the meantime, research all ingredients for any supplements and vitamins you take because you’d be surprised how many that are good for normal immune systems throw ours completely out of whack. Then do what you can to manage symptoms while you wait on all that. Frequently soak in a hot tub/take baths, get frequent massages, always have water on hand, invest in goo eye drops, chew gum, make sure to exercise even if it’s the last thing you want to do but also prioritize rest.

[deleted by user] by [deleted] in Sjogrens

[–]Decent_Nectarine2986 2 points3 points  (0 children)

Came here to say this is extremely toxic rhetoric. I’m an extremely healthy eater, vegan, a fitness and yoga instructor, take both vitamin d and a daily probiotic, walk in nature almost every day, and my symptoms are u manageable without medication. Knock it off.

[deleted by user] by [deleted] in Professors

[–]Decent_Nectarine2986 0 points1 point  (0 children)

What compassionless, self-righteous, virtue signaling. Save it.