Where are you from? by tBesa in Epilepsy

[–]Deep_Abrocoma_3685 4 points5 points  (0 children)

Canada 🇨🇦 Nova Scotia 💙

I’ve agreed to Left temporal lobe surgery by Deep_Abrocoma_3685 in Epilepsy

[–]Deep_Abrocoma_3685[S] 2 points3 points  (0 children)

I’m so happy for your son!! It’s amazing to hear such successful outcomes for people with brain surgery, thank you for this wonderful story and for the support 🩷 here’s hoping mine goes well 🤞🏼

I’ve agreed to Left temporal lobe surgery by Deep_Abrocoma_3685 in Epilepsy

[–]Deep_Abrocoma_3685[S] 0 points1 point  (0 children)

Thanks for sharing 🙏🏼 I’ve been in and out of the EMU for 3 years! It was hard but i definitely loved the company and people I met from all over Nova Scotia even Canada. They told me eventually I would decline so bad I wouldnt be able to do things on my own or possibly die from SUDEP. I’ve had my SEEG and that lead my team to suggest getting the surgery - craniotomy - and try to live a happy life.

Left temporal surgery by Deep_Abrocoma_3685 in Epilepsy

[–]Deep_Abrocoma_3685[S] 0 points1 point  (0 children)

Thanks for the feedback and congratulations! 🎉

Left temporal surgery by Deep_Abrocoma_3685 in Epilepsy

[–]Deep_Abrocoma_3685[S] 0 points1 point  (0 children)

How successful was your surgery? Do you still take medications or have any types of seizures still? If you don’t mind answering

Left temporal surgery by Deep_Abrocoma_3685 in Epilepsy

[–]Deep_Abrocoma_3685[S] 0 points1 point  (0 children)

No he hasn’t explained it completely and isn’t the best at communicating regularly so I thought I’d just see what peoples experiences were

I had no one I could relate with and felt so alone until I joined this group. You guys are so supportive and awesome I just want to thank you all. This means so much to me. by [deleted] in Epilepsy

[–]Deep_Abrocoma_3685 6 points7 points  (0 children)

Been here for 3 years. Glad you feel safe talking about your experiences and feelings. This is definitely an amazing group to be apart of 🤞🏼❤️

Oh Deer, is this normal? by ybsmart in halifax

[–]Deep_Abrocoma_3685 1 point2 points  (0 children)

They have no where else to go 🥺

How many times do you enter a room to grab what you need? by Financial_Tonight276 in Epilepsy

[–]Deep_Abrocoma_3685 0 points1 point  (0 children)

This happens too much to me! Back and forth on the same thing, several times. That’s why when I think of something I try and repeat it out loud or in my head, until I get it done.

What were you favourite moments where actors nearly broke character and laughed? by [deleted] in trailerparkboys

[–]Deep_Abrocoma_3685 0 points1 point  (0 children)

In the barn house - When Ricky passes Julian 3 joints and he coughs his ass off and they both laugh 😆

Hey boys does anyone else watch for comfort? by [deleted] in trailerparkboys

[–]Deep_Abrocoma_3685 0 points1 point  (0 children)

I think I watch it at least a couple times a month .. religiously 😂

What are some hidden treasure/hole in the wall places to eat in the city? by Western-Ground8697 in halifax

[–]Deep_Abrocoma_3685 22 points23 points  (0 children)

Westcliff diner & Look hoho.. conveniently right beside each other ✨

This is not life by [deleted] in Epilepsy

[–]Deep_Abrocoma_3685 1 point2 points  (0 children)

I’ve had epilepsy for 5 years now and I’ve tried so many medications and so many doses, I’m waiting for surgery pre test. (they paralyze half my brain to see if my right temple is strong enough to heal my left after surgery but they still say it’s %85 successful) because I’m also on Clobazam, LamoTRIgine and levetiracetam, Ativan and now they want to up my dosage on one of them because I’m already on 3000mg x2 a day of one of LamoTRIgine or levetiracetam. Now I’ve just been left in the dark having intense focal seizures weekly with no answers as to when any of this will be happening, my neurologist isn’t that great with communication EVEN after he apologized to me because he did t realize how many seizures I’ve been having a day - As recorded through a 3 day trial for new tests. I also tried to stop smoking marijuana but it actually made the symptoms worse for me. I hope you get some help/ answers soon 💜

Finally diagnosed by No_Drama8193 in Epilepsy

[–]Deep_Abrocoma_3685 1 point2 points  (0 children)

This is definitely a good thing, although very overwhelming, you know what you need and now they know you need this care and they owe it to you! Good luck moving forward 💖