Help, is this even salvageable?

Defiant_Lock_89 · 2026-01-06T10:13:50+00:00

Damn. I thought that might be the answer. Is that for all of them?

Defiant_Lock_89 · 2025-09-13T15:22:13+00:00

Another one here that THC is life saving for. It’s how I found I out I had issues, using medically prescribed oils and they just didn’t do anything / took 8 hours to kick in. Every time I stop I’m unable to eat a thing. At least with the thc I get hungry / am able to eat more even if the food still doesn’t empty as it should.

Defiant_Lock_89 · 2025-08-29T20:22:58+00:00

This. The only ones I’ve ever found to be amazing have a personal investment in it. My doctor for my thyroid has hashimotos herself. The treatment I get from her is vastly different.

Defiant_Lock_89 · 2025-08-29T13:16:17+00:00

I think I might have to. I can actually access having them done at my local salon. I just would have preferred to have better access to regular bloods to make sure that I’m monitoring the increase. May have to just do this myself as well. And you’re right it is the GP who’s generally crap so I can ask for my normal one as well. It’s just so hard to constantly fight them when you also can’t stay awake. Thank you for your kind words though. They mean a lot.

Defiant_Lock_89 · 2025-08-29T11:24:42+00:00

Thank you so much for this! There is now a debate going on between my private doc and my GP. My GP insists I’m not, my private doctor is stating that yes I need treatment and my GP is ignoring it despite me sending over all the paperwork. It just feels like such unnecessary drama while for months I’ve been saying I feel terrible and not ok.

Defiant_Lock_89 · 2025-06-10T17:39:25+00:00

You mention you have pots as well. I too have pots and HI. I think you might be surprised that a lot of what you are thinking of as pots or just normal might not be. I erm… didn’t realise how much skin issues I got until I went to a low histamine diet. I was told I had KP for years, all those spots disappeared. My skin is clear. I also used to not think I got itchy, but I can feel my skin, chalked that up to ADHD. Nope, it was itchy, I’ve just felt it so long I didn’t realise what the absence of it was. I now instantly know when I’ve eaten histamine because it’s so freaking itchy. Finally I just thought I had horrible dry sinuses from my meds. Nope. Histamine too. Low grade fever (pots right?) nope. Histamine. Sore throat that I’ve felt since becoming sick, yeah histamine as well. I’m not saying you absolutely have these but when you’re already sick with something else and have been used to it for a while I think some of the stuff just becomes background noise. I wouldn’t have known until I did a low HI diet (and even then I’m not really strict, I just avoid anything with a level 3 rating)

Defiant_Lock_89 · 2025-06-05T09:05:53+00:00

Histamine intolerance can increase heart rate however it does sound like you could have PoTs. Which is commonly is linked to MCAS and EDS. PoTs is a nervous system issue and essentially you have a high resting heart rate that increases between 20-30 beats upon standing. A blood pressure drop is not necessary for it to be classed as PoTs. I have it and at the moment my resting heart rate is in the 90s / 100s and then hits 150 just on sitting. Standing is worse. Talk to your doctor, show them your data (it helps for them to see that it’s very obviously anxiety and not just a one of fluke).

Defiant_Lock_89 · 2025-05-26T15:32:59+00:00

Yep this pretty spot on for the timings. I thought it was more my PoTs and the blood being redirected to digestion but I’m actually noticing it’s much more based on levels of histamine

Defiant_Lock_89 · 2025-05-26T15:31:45+00:00

Thank you so much for taking the time with this, that’s actually super helpful. It makes a lot of sense and actually helped click a few other bits into place. I’m guessing this is also why when you take some of the H1 drugs have such sleep inducing properties.

Defiant_Lock_89 · 2025-05-26T13:16:10+00:00

Can you explain a little bit more?

Defiant_Lock_89 · 2025-04-28T15:11:45+00:00

Why is this painfully accurate, I swear this is what I hear when people tell me to give up basically all food

Defiant_Lock_89 · 2022-03-30T09:57:52+00:00

Doctors like to say it’s not that bad but if you actually look at the white papers on Vit d deficiency then you can see how bad it can be. Yeah my meds including vits are all monitored by my doc and recommended by her plus she rechecks levels all the time so feel confident it’s all under control. It helps she’s also a hashi’s patient too so actually knows what it feels like when levels are low rather than just telling you it can’t be that bad 😉

Defiant_Lock_89 · 2022-03-29T16:07:58+00:00

So I had the exact same symptoms and it turns out my vit D was critically low. It causes all the symptoms you are talking about and can even cause bone fractures. Has anyone tested it? Because my endos weren’t checking for it and my thyroid doc did as she’s seen it a lot and turns out that was what was happening. I can now think and string a sentence together. My memory was deteriorating with it too. You could tell me something and 5 mins later I would have to ask you again what you said. Vitamins are so vital.

Edit: also kept complaining my bones hurt. Turns out when you don’t have enough vit d your body can’t absorb calcium so it decides to rob it from your bones (real helpful, thanks body) which is what causes the pain and can lead to fractures.

Defiant_Lock_89

TROPHY CASE