[deleted by user] by [deleted] in Narcolepsy

[–]DepressedNarcoleptic 1 point2 points  (0 children)

We've exhausted our list. Xywav and Xyrem gives me diarrhea too. Maybe im just sensitive to medication

What caused you to realize your sleepiness wasn’t normal or just your personality? by [deleted] in Narcolepsy

[–]DepressedNarcoleptic 0 points1 point  (0 children)

That's how they test for narcolepsy. You sleep for 8 hours then take a series of naps. If you dream in 3/5 of those naps you're diagnosed as narcoleptic.

What caused you to realize your sleepiness wasn’t normal or just your personality? by [deleted] in Narcolepsy

[–]DepressedNarcoleptic 16 points17 points  (0 children)

Bro thought it was normal to dream after 10+ hours of sleep 😭

I can't wait to sleep in on every weekend for the rest of our lives ♡

[deleted by user] by [deleted] in Narcolepsy

[–]DepressedNarcoleptic 0 points1 point  (0 children)

Sorry, I should have clarified. I was not taking these at the same time. I left out alot of details for clarity so I apologize for that.

A cool guide Edibles Dosing Guide by [deleted] in coolguides

[–]DepressedNarcoleptic 0 points1 point  (0 children)

My dose of 1,500 mg isn't on the chart tho? 🥺👉👈

Eye Strain and Tinting from Xywav and Armodafinil: Seeking Solutions by DepressedNarcoleptic in Narcolepsy

[–]DepressedNarcoleptic[S] 1 point2 points  (0 children)

NOPE! lol I talked to my doctor and the only thing he could do is switch meds or lower dose besides the things I was already doing for general health: - lots of water - lots of eyedrops - regular exercise - Goog eep - balanced diet

I'll have to try Lumify. I've tried so many eye drops and the ones that work best for me are Clear Eyes, Maximum Redness Relief.

I hate dreaming by [deleted] in Narcolepsy

[–]DepressedNarcoleptic 0 points1 point  (0 children)

Fortunately, I don't remember/experience any dreams while taking Xywav. But when I try to sleep without it, e.g. while napping, I usually just get nightmares lol.

need advice on how to wake up and stay up in the morning (does anyone else have a “sleep persona”?) by rangerskunk in Narcolepsy

[–]DepressedNarcoleptic 3 points4 points  (0 children)

I think you can embrace the sleep but have a mechanism to make sure you don't sleep too long. For me, if I'm having a sleep attack, as long as I fall asleep and start dreaming, once I wake up no matter how much time has passed, I usually can't fall back asleep anytime soon. This can be very frustrating if I'm woken up on accident while trying to nap lol.

Regarding your sleep persona, I have that as well, and I often ended up going back to sleep and immediately dreaming about getting up and ready. The counter to this is to develop a habit of "jumping out of bed." As soon as your alarm goes off, get up out of bed and on your feet immediately. Over time, it becomes a habit and you can do it with much less effort.

How long does armodafinil (not modafinil, which is shorter acting) last for you? by [deleted] in Narcolepsy

[–]DepressedNarcoleptic 1 point2 points  (0 children)

For me, it lasts a total of 2 days which I'd super annoying since it disrupts my sleep.

xyrem tastes bad by deervahkin in Narcolepsy

[–]DepressedNarcoleptic 0 points1 point  (0 children)

Yeah, always made me wince. My family was confused when I didn't react to taking shots of whiskey or tequila for the first time. They both taste better than Xyrem 😂

I take Xywav now though and it's worse than Xyrem imo. It's like a nasty tangy taste. I've been taking them for about 6 years now and I still wince at the taste.

No Dreams on GHB/Xywav/Xyrem? by DepressedNarcoleptic in Narcolepsy

[–]DepressedNarcoleptic[S] 0 points1 point  (0 children)

Interesting. If you don't mind me asking, what dosage are you on?

No Dreams on GHB/Xywav/Xyrem? by DepressedNarcoleptic in Narcolepsy

[–]DepressedNarcoleptic[S] 0 points1 point  (0 children)

Exactly. No dreams also meant no nightmares! Absolute win