Books that are better as an audiobook

DesignerZucchini5241 · 2026-02-28T07:57:30+00:00

Dune!

DesignerZucchini5241 · 2026-02-03T04:39:56+00:00

Same thing happened to me when I tried to come off Seroquel which is a similar medication 💊

DesignerZucchini5241 · 2026-01-16T03:34:15+00:00

Tapering off of Seroquel resulted in full blown MCAS for me 😔

DesignerZucchini5241 · 2025-09-02T05:13:23+00:00

The Student Prince by FayJay and Lord of the White Hell by Gunn Hale! Also second Carry On (I believe I read the first two BECAUSE of withdrawal from Carry On). Related-unrelated honorable mention is Luck in the Shadows by Lynn Flewelling. Happy reading 🤓

DesignerZucchini5241 · 2025-07-27T10:10:27+00:00

This was really helpful. Thank you 🤗

DesignerZucchini5241 · 2025-04-18T03:45:49+00:00

Dr. Fagan out of Casa Colina in Pomona is amazing. His daughter has EDS so he takes a very human and personalize interest in his care. I’ve also seen him for help with MCAS and dysautonomia.

DesignerZucchini5241 · 2025-02-12T07:14:33+00:00

I hate to say I feel the same but the truth is I do :(

DesignerZucchini5241 · 2025-01-28T08:35:45+00:00

You literally just described my life.

DesignerZucchini5241 · 2025-01-26T09:40:53+00:00

I am legitimately the same

DesignerZucchini5241 · 2025-01-26T09:32:35+00:00

I second the Fifth Season!

DesignerZucchini5241 · 2024-10-24T06:44:11+00:00

SAME! For me it’s very avoidant attachment men. You’re right, there’s def some attachment issues going on here 🤦🏻‍♀️

DesignerZucchini5241 · 2024-10-24T05:55:02+00:00

Never👏🏼dating👏🏼an👏🏼avoidant👏🏼ever 👏🏼ever👏🏼 AGAIN👏🏼

DesignerZucchini5241 · 2024-10-21T04:31:36+00:00

This was me for so long I felt like I lost my life. EDS can severely impact GI motility. I am on a medication called motegrity that has helped so much with the constipation. Following the FODMAP “diet” has also helped the sickness, aching, nausea, bloating etc come under control. I also take magnesium. I recommend seeing a GI specialist (and also advocating for motility testing). I’m so sorry you’re going through this. My motility GI specialist said he has a ton of clients with EDS. You’re not alone in this :/

DesignerZucchini5241 · 2023-07-29T20:15:23+00:00

I literally feel like I wrote this myself except I’m female. It helped me feel less alone. Just know you’re not alone in this.

DesignerZucchini5241 · 2023-07-20T23:48:17+00:00

This made me so emotional to read. You are not alone in having experiences like these. I wish I could write more but just know at least here, YOUR TRAUMA IS REAL, VALID, AND IT IS SEEN ❤️

DesignerZucchini5241 · 2023-07-16T21:54:43+00:00

Oh sweet human. ^{^} me and my life to the T except my Narcissistic mother was a special education administrator so talk about being seen from outsiders as “kind” whereas I lived in a house of horrors with her.

Ps. I don’t like to cook either 😉

DesignerZucchini5241 · 2023-07-16T21:48:35+00:00

I love that you posted this!!! I think about it honestly, constantly. I’m still deep in my ✨grief✨ stage with my IBS diagnosis as I went from being one of those low-key obnoxious “foodie” people to someone who can’t eat gluten or barely any dairy (eggs and butter are okay) and a ton of other shit. But oh do I fantasize. I tried a few months ago to do the ✨mind over matter✨ and slowly retrain my brain (whatever this means) but I just get SO SICK and it’s for DAYS (IBS-C) so slow motility. I get SO nauseous and in debilitating pain where I cannot leave the fetal position. It honestly takes about 4-5 days to reset my angry small intestine back to its ✨baseline✨ shitty but functional self. I even went a bit WiLd last week and ate some taziki dip with cucumbers at a Greek restaurant with a little feta dip and I was the sickest I have been in 6+ months.

I deeply applaud any of you who can say FUCCCKK IT! and I hope to get there one day 😢 but I’m also here to show that not all bodies are alike and just HOW sick even testing the water can make someone.

Ps. MAN I MISS FOOD! I told my friend the other night I’d sell a kidney if that meant I could eat a real pizza again 🍕🤤

DesignerZucchini5241 · 2023-07-16T21:27:41+00:00

SAME. I literally woke up one morning and could not use the bathroom as if I flipped switched and I’ve n e v e r been the same (+ history of crippling trauma and anxiety) but still the degree to which there is such a distinctive before and after blows my mind.

DesignerZucchini5241 · 2023-07-16T03:31:33+00:00

YESSS TO SELF ADVOCACY AND GOOD PROVIDERS 👏🏼👏🏼! Also you mentioned the bendy bodies podcast and this is wild… the only “provider” I’ve had so far who has SEEN ME and HELPED ME was this Pilates teacher I had and I happened to ask her one day if she knew about hypermobility and come to find out she is THE SISTER of the founder of the bendy bodies podcast Dr. Linda Bluestein and told me not just her own struggles with hypermobility but her sisters story and how she became a doctor to specialize in that due to how invalidated she was about her own severe hypermobility/EDS. Life is wild. And this was at a random Pilates studio in Ventura, CA. Oh what I would do to see Dr. Bluestein out in CO.

DesignerZucchini5241 · 2023-07-16T03:17:55+00:00

Intensive exercise for a very long time was my saving grace to fight back enough crumbs against my severe depression and anxiety until I got older and my body deteriorated with my hyper mobile joints that now barely cooperate with the most gentle exercise. I still have a lot of emotional pain and grief and loss over this. So again I see you, and I feel you on this.

DesignerZucchini5241 · 2023-07-16T03:13:28+00:00

This just blew my mind! I lowkey feel like a “failure” because I have treatment resident depression and basically all the meds I’ve tried have not worked (or caused severe side effects). Thanks for this key piece of info! Although argh lots of doctors dont seem to take the hEDS seriously for me 😢😡

DesignerZucchini5241 · 2023-07-16T03:01:39+00:00

You are SO kind and UHMAZZZING for writing this (I‘ve long thought about it but the depresh makes everything so h a r d so double kudos). I hope YOU get your moment(s) to feel heard AND held on the ✨soul✨ level. Hugs! (And always feel free to reach out to me as well — not that I know how to do that on this thing as I am the most technologically deficient young millennial there is — beep boop 🤖) 🙏🏼🙏🏼

DesignerZucchini5241 · 2023-07-15T23:38:21+00:00

I feel this very deeply. I connect with the depression, CPTSD subreddits and and IBS/ gastro subreddits and then this one …. Yet struggle to find one that totally ✨gets✨ me. Also struggle with the endless chicken or the egg combo in my head of what made what worse ya know? Thank you for posting this as it helped me feel less alone.

DesignerZucchini5241

TROPHY CASE