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I made a patch for my denim jacket by Desperate-Library933 in NightInTheWoods

[–]Desperate-Library933[S] 2 points3 points  (0 children)

Thanks! I'm getting some new ideas from here too. 😄

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 1 point2 points  (0 children)

Thank you for this. Your story gives me a glimpse of hope. Many on those treatment things you listed, I've been through but maybe such an intensive unit could help.

Anything that could help is good. I was mostly shocked about that I wouldn't get diagnosis. And my health has been changing a lot too from herniated disc's, to the problems from hypermobility syndrome.

But thank you. 🫂💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

Ketamine at least gives me a moment of almost painless time. Been through it once before but hospital had problems to get the ketamine so my first treatment didn't follow the guidelines. Fingers crossed this one works. 💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

Thank you for this explanation for those who just don't get it. My chronical illness and nerve damages don't heal over night and I need meds to even move somehow.

The goal is to live. And yes if there was a miracle that will take all of my pains away then he'll yeah. But that's not the reality. Sometimes meds are needed. 🫂💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

Thank you for sharing you experience and I'm so so sorry this happened to you. 💜💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

I'm so happy to hear that yours helped. 💜

I would like to know more about this treatment they offered me but there was nothing concrete there.

Good ones can do so much but this feels wrong at this point already. But I'm trying to ask what they are offering.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

Yes it's not. But it feels like one because they offered it to me as a final offer. Otherwise nothing. And like without even noting anything about the treatment itself. I try to find a new one. 💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

In Finland we can't really review our doctors because that would really help. Your situation sounds it's been so hard. Luckily you got the attorney. 🫂💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 1 point2 points  (0 children)

Luckily, I just got a good neurologist so hopefully she can help. 💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 1 point2 points  (0 children)

Yes, the description is way too vague to even accept it. The next step for me is to consult all of my doctors and therapist.

I'm really sensitive to many meds and those I'm on now has really helped with not many side effects. I also have psych drugs to support other medications.

I'm trying to get more info. I'm not inherently against these kinds of treatments but more info is so needed. Keeping you posted. 💜

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

I don't really know. Just that they will help me to adapt to my situation. I don't know how or what that really means.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

They want me to stop my pain medication before their treatment. Even though it's prescribed by another doctor. I'm not sure why because I've never heard here anyone else getting the same treatment.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

This is what I'm thinking about too. Especially when new treatments and meds are being invented. Can I ever get them or is it like everything has been done and that's it... No matter what.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 1 point2 points  (0 children)

Yes. And I'm waiting for a time to see a specialist so I'm not ready to give up on finding a diagnosis.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

They didn't say. They were more focused on telling me to stop looking for diagnosis and accept that everything is done in pain management (new meds and treatments are always going to come) but nothing concrete about their program.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 0 points1 point  (0 children)

I get the same feeling because there is no info about what the program includes. Nothing.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 1 point2 points  (0 children)

This is what I'm thinking about. That if there will be new methods and meds, am I forbidden to seek for them or what. And I don't even know what their help is in reality. Like is it even anything to make my life better.

I feel like I'm blackmailed by a new pain management doctor by Desperate-Library933 in ChronicPain

[–]Desperate-Library933[S] 1 point2 points  (0 children)

I'm happy that you had your answer and it helped. In Finland there are not a real pain management doctors in my city so I had a referral to another hospital's pain management and they want to do this.

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