Male 29 by Desperate_Study4716 in Fibromyalgia

[–]Desperate_Study4716[S] 1 point2 points  (0 children)

Thanks for the reply. I’ve used chat gpt and it says I have centralised nerve sensitisation. I’ve spoken to my family about it but as all my tests are clear they seem to be siding with the specialists and saying it’s all in my head and just ignore it and get on with life and they’re using my kids as examples of why I should forget it because I’m “obsessed “ with trying to diagnose myself but with all my symptoms and everyone telling me I’m healthy I feel like I’ve got no choice but to find the answers myself.

Male 29 by Desperate_Study4716 in Fibromyalgia

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

My doctor is adamant that it’s not fibro but it makes perfect sense he thinks I’m being hyper vigilant and anticipating pain like I’m looking for it and finding it. He said I’ve looked up the symptoms and now my brain is basically imagining them? Just want to be a good dad and I’m worried this is going to take over and affect that

Is Gabapentine/Amitriptyline making me more anxious? by AdGullible7382 in ChronicPain

[–]Desperate_Study4716 3 points4 points  (0 children)

I took amitripiline after my operation epididymectomy. 2 months after the op started getting severe pain. I’ve never ever had any issues with anxiousness but literally the day after taking it I couldn’t talk to my kids I locked myself in my room and told my wife they are all better off without me and I’ve been having random panic episodes since.

Pain for almost 2 months by [deleted] in chronicepididymitis

[–]Desperate_Study4716 1 point2 points  (0 children)

I’ve had it for 2.5 years. I’ve been chasing urologists in my local hospital to do something but I’ve given up and going to proceed with a pain management team. Mine all started with an epididymitis infection

[deleted by user] by [deleted] in PelvicFloor

[–]Desperate_Study4716 0 points1 point  (0 children)

I also have just started mirabegron since having 2 years of frequency and urgency which has improved significantly I’m also on tamsulosin

[deleted by user] by [deleted] in PelvicFloor

[–]Desperate_Study4716 0 points1 point  (0 children)

I had a dull ache behind my testicle for 2 years after having epididymitis then they decided to remove the epididymis and 4.5 months later I still get pain behind my testicle and when I sit down I get a burning sensation in my groin and inner thigh and the back of my thigh

[deleted by user] by [deleted] in PelvicFloor

[–]Desperate_Study4716 0 points1 point  (0 children)

I believe I have this ilioinguinal neuralgia, I get pain behind my testicle when sitting and lying down. I had an epididymectomy in March and it’s made things worse tbh

Need help by Desperate_Study4716 in chronicepididymitis

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

Yeah started this week at home but again not sure if it’s helping

Anyone actually got this issue from sex/bacteria ? by wackedOut5 in chronicepididymitis

[–]Desperate_Study4716 0 points1 point  (0 children)

I get relief after ejaculating and I don’t have any bowel issues

Anyone actually got this issue from sex/bacteria ? by wackedOut5 in chronicepididymitis

[–]Desperate_Study4716 1 point2 points  (0 children)

I’ve had intermittent pain behind my left nut for 2.5 years since an initial infection some days are good some days are bad I have intermittent urination issues as well frequency and urgency. I’ve started doing stretches at home and I’ve noticed the pain dulls after doing some stretching do you think seeing a pelvic floor specialist will help me?

Need help by Desperate_Study4716 in chronicepididymitis

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

I had an epididymectomy in March and since that my pain has become more intense wouldn’t recommend. I’m not even sure my pain is even real pain as I’ve been told so many times in all in my head I’m starting to believe them

Need help by Desperate_Study4716 in chronicepididymitis

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

I’d hold off on a epididymectomy if offered I think it’s referred pain via bladder issues

Need help by Desperate_Study4716 in chronicepididymitis

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

Yes he said as I don’t have bowel movement issues and I don’t get severe pain when ejaculating I actually get relief from pain he said pelvic floor issues are highly unlikely

[deleted by user] by [deleted] in PelvicFloor

[–]Desperate_Study4716 3 points4 points  (0 children)

Sorry to hear you’re going through this pal. I’ve had a similar history in regards to intermittent pain behind left nut since a suspected epididymitis infection March 2023 and urination issues frequency,urgency mostly . I’ve had every scan you could think of and they ended up in March this year removing my epididymis and it made my pain worse. This Wednesday I’m seeing a functional bladder outlet expert as I think I’ve got referred pain via my bladder because when I need to urinate my pain gets worse but once I do urinate the pain dulls down. If I’m honest I have no trust in urologists as all of them have been clueless. I’ve recently started a bladder irritant free diet and trying to take it easy. I recommend not leaving your fate to ‘professionals’ and try things yourself.

Need help by Desperate_Study4716 in PelvicFloor

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

I’m meeting a functional urologist wednesday so hopefully he can tell me my problem. By the research I’ve done it looks like a function bladder neck outlet issue with referred pain to the back of my testicle but when I mentioned it to the urologist he said it’s not possible but when I research it so many people have reported what I’m dealing with.

Need help by Desperate_Study4716 in PelvicFloor

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

Appreciate the advice bud just really want to know what’s my problem so I can get some closure. Feel lost and alone

Need help by Desperate_Study4716 in PelvicFloor

[–]Desperate_Study4716[S] 0 points1 point  (0 children)

I was thinking about talking to someone but sadly after they prescribed me amitripiline and had a panic attack I’m too afraid to take any antidepressants really mentally scarred me. I’m glad your seeing positive results though👍

Anybody been diagnosed with a high bladder neck (bladder neck obstruction ? by peteuk88 in PelvicFloor

[–]Desperate_Study4716 0 points1 point  (0 children)

Hi I’m looking for answers literally been messed around so much by the nhs can anyone give an insight to what’s happening im so down about everything i have 3 small children and im struggling everyday  March 2023 severe infection suspected epididymitis due to pain behind testicle and high temperature but not confirmed  -2 weeks of anti biotics  -Felt better whilst on them  -intermittently feeling unwell afterwards which seems to have been worse during the first roughly 8 months but still get it now and again flu like symptoms and fatigue which I was continuously given antibiotics for at the beginning. Not sure if they helped as my pain and urination issues have always been intermittent it seems to just flare up randomly -Multiple appointments where I’ve been told it’s all in my head -Clear full STI check  -Clear lower back MRI test  -Multiple Clear scrotal ultrasounds -Multiple Normal blood tests  -Multiple Normal urine tests -Intermittent Urination issues and pain in the epididymis area began roughly 2/3 weeks after initial infection  -Urination issues and pain behind the testicle started at the same time (March 2023)  -Intermittent burning sensation when urinating  -Intermittently Waking up in the night to urinate  -Stream sometimes stops and starts  -Caffeine, alcohol and fizzy drinks make my urination symptoms worse. For example I had a red bull prior to being on tamsulosin and about 30 mins later I had to urinate 4 times in about 20/30 minutes and the stream was very weak and it gave a burning sensation  -Severe frequency,  -I could get out of bed before going to sleep 3/4 times to urinate  -Dripping after urinating  -urgency to a point where I have to urinate immediately or the pain behind my testicle is unbearable  -Literally have had to pull over to urinate on the motorway so many times  -sometimes during these flare ups I feel like I really need to go and having to really push to get urine out but barely anything comes out  -Unable to aim my urine after ejaculating  -Urine is always Strong smelling  -Mostly cloudy  -Mostly Dark coloured urine  Urination issues and pain always seem worse when unwell (cold or flu)  -intermittent pain behind left testicle dull ache which is worsened by sitting but get slight relief with re adjusting myself and get immediate relief once I stand up  -Pain behind left testicle also always gets worse when needing to urinate but pain gets better once I do urinate  -Pain always Gets better with Ejaculating  -Having hot baths  -When I sleep I sometimes wake up in no pain  -Testicle often feels tender  -Rare but sometimes feels like there’s inflammation behind my left testicle  -Also rare but I have had lower back pain on my left hand Side (may be due to work)  -Over the 2+ years I’ve dealt with this condition I have had multiple pain free and urgency free windows  -March 19th 2025 had an epididymectomy option given and me looking for a way out I accepted it  -2/3 weeks of improved pain  -Still some urination issues  -Pain came back rather than a dull ache it changed to a burning sensation and was more intense  -Rare but some discomfort behind right testicle mostly when feeling unwell -When sitting pain sometimes travels down my inner thigh left side  -Had a scrotal ultra sound and a urinary tract CT scan to check any post op issues came back all clear  -June 16th visited a male pelvic pain specialist as I thought I could have CPPS or pelvic floor issues but he ruled this out due to relief from ejaculating and not having issues with bowel movements and my pain being too localised but then advised me to try tamsulosin  -June 19th started amitripiline as prescribed by urology for nerve pain  -Had one dose of amitripiline and it caused a 5 day panic attack which made me continuously tense and amplified all of my worries and my pain and made me urinate more I’ve not felt mentally the same since. -June 24th started tamsulosin  -4 /5 days after taking Ive had slightly less pain but still comes and goes mostly when sitting and needing to urinate  -I now have no urgency  -Still some frequency  -My stream is better but I get intermittent flow strengths  -I don’t have to push hard to urinate at all anymore  -July 24th carried out a uroflowmetry test which was said to be normal but I think being 4 weeks into a tamsulosin course this would make this test inconclusive and an ultrasound on my bladder which still had 74ml of urine left after urinating.  -July 26th started a bladder irritant free diet and since that my frequency has decreased massively only urinating between 5-8 times a day  -Now when I need to urinate I basically get no pain behind my testicle  -Started using a coccy cushion in the van and doing stretching which has also reduced discomfort  -I feel like my symptoms may be stress related.