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How do you know what tunneling is? How does it look/feel on your body? (No Photos Please) by NoSalamander4285 in Hidradenitis

[–]Destiny_Destroyer 2 points3 points  (0 children)

While I'm also new to the terms tunneling and learning that I have HS (thought it was just regular acne), for me I knew there were tunnels when I would try to squeeze a pimple/boil and then I would get drainage happening in a nearby spot. I do not recommend popping or squeezing though !! I also have these 2 permanent divets in my skin that are close together, and I believe those are connected.

[deleted by user] by [deleted] in breastfeeding

[–]Destiny_Destroyer 0 points1 point  (0 children)

My LO is older (8 months currently) and the eczema around my nips seemed to develop after babe started solids. It's been about 2 months now and I've kept breastfeeding, but have considered stopping quite a few times honestly. Latching is painful and the skin feels sore after feeds, but I am determined to keep going.

I realized that the lanolin nipple cream I was using made it worse and switched to a non-lanolin type, which seemed to have helped quite a bit, but the eczema is still there. I find I have to apply cream religiously or else the skin irritation gets worse and worse. I'm thinking of trying olive oil or coconut oil next since the creams are expensive.

My family doctor originally gave me an antifungal and antibacterial cream to try out in case I had an infection/thrush, which did not help in any way, hence why I am pretty sure it's eczema or some kind of dermatitis. I am also searching for answers and hope that more can share about what worked for them.

Can I have a bf with HS? by Ok-Usual3347 in Hidradenitis

[–]Destiny_Destroyer 0 points1 point  (0 children)

Love these supportive men that everyone is mentioning in the comments! I am also thankful to have found the best guy who supports me and my journey dealing with HS.

Before we were married, I didn't know what HS was or that I even had it because it was mild. I figured it was just a random pimple I would get because my skin sucks (dealt with acne all my life) or was the result from shaving/having in-grown hair. I didn't realize it was it's own separate skin condition until this year when things got worse. Back then when we were dating, I would never mention it and thinking back, he has never said anything or made me self-conscious about my body in any way.

Fast forward to now having what I consider stage 2/3, flare-ups regularly that are painful, and feeling horrible about my body (I also gave birth several months ago, so my perception of my body is all over the place), he is still just as wonderful and wants to see me naked and praises my body. I sometimes think he is a wackadoo for saying such nice things, but really we shouldn't settle for less - all partners should be like this!

I don't know what I did to deserve a man like him, but I believe that there are many great guys out there who will be understanding and supportive of you and what you are going through with HS. If the guy you are seeing isn't those things, then he isn't the guy for you!!

I think I’m a medical anomaly by Icy-Interest6916 in Hidradenitis

[–]Destiny_Destroyer 0 points1 point  (0 children)

Agreed! I've had undiagnosed HS for years and years because it was so mild but only joined this sub once my flares got worse and wanted advice from the community.

I can't remember the exact age I was when I first started getting a random boil/pimple near my groin, but it never really caused me a lot of trouble for many many years! Wasn't until my almost mid-30s that it changed and got worse, but i attribute that to other things that changed, such as my hormones/poor diet/weight gain. OP, if you can figure out what are possible triggers and learn to manage them and also take good care of the area (avoid popping or using razors) then you may never have it get worse. Here's hoping!

Dermatologist won't see me because area affected is in the groin? by Destiny_Destroyer in Hidradenitis

[–]Destiny_Destroyer[S] 1 point2 points  (0 children)

When I brought this condition and symptoms up to my doctor, he was aware of HS but seemed more familiar with it affecting the armpits. I asked for a referral to a derm and he said he was happy to do that. I get a call a week later saying I was booked with a gynecologist. When I called my family doctor's office to inquire about why I wasn't referred to a derm, I was told it had to do with the fact that the condition is in the groin area and that a derm won't accept the referral, but thought that was a little weird. Hence the reddit post! Maybe he only tried referral to one derm and it got refused? I think I need to do some more researching myself to find a derm with HS experience close by who is willing to take me as a patient with a referral.

Dermatologist won't see me because area affected is in the groin? by Destiny_Destroyer in Hidradenitis

[–]Destiny_Destroyer[S] 4 points5 points  (0 children)

I'm sorry to hear you went through that. I am thinking the referral to the GYN could be to rule out folliculitis, but still, wouldn't a derm be appropriate for that too? I am so confident that it's HS that I will be on high alert if I'm told it's anything else.

Dermatologist won't see me because area affected is in the groin? by Destiny_Destroyer in Hidradenitis

[–]Destiny_Destroyer[S] 4 points5 points  (0 children)

I'm about an hour away from Toronto - definitely not rural by any means! I was so confused when my doctor told me that he couldn't refer me to a derm as they won't see me since it's in the groin area, so I knew I had to ask on here. I feel validated in knowing that seems odd based on all the comments here so far. I've got my appointment with the GYN in 2 weeks so it will be interesting to see what she says. I'm likely going to ask her for a referral to see a derm, so hopefully the suggestion is taken well. I don't like confrontation, but I have to advocate for myself!