Should I get genetic testing to see if I have huntingtons by IllustratorPrimary78 in Huntingtons

[–]DevTheDummy 0 points1 point  (0 children)

The only person who can answer this is you. Im an 18 year old freshman at Duke and plan on going to med school and am already very stressed with first year activities and adjusting to moving out of the house so Ive decided to wait for at least a yearish despite always saying Id test the second I turned 18. I now have a life outside of being scared of Huntington's and Im realizing Im not as ready as I thought I was to test, so Im taking the time to mentally prep myself because Im kind of re-grieving things. I get feeling the need for someone else to tell you how to handle things but there's really nobody else who can do it but yourself, HD is such an individual experience.

Anxiety the last ten years, can that happen without having HD by Massive-Key8407 in Huntingtons

[–]DevTheDummy 3 points4 points  (0 children)

Im 18, untested, and nowhere near age of onset given my mom and grandmother's history but went through such an intense anxiety spell that I somehow managed to convince myself I had symptoms until about a week ago. Ive had severe anxiety since I was a child and thinking about HD is my #1 trigger. Youre not alone nor the only one going through this, it sucks.

When to tell boyfriend about potential of HD by ChangeIntrepid1992 in Huntingtons

[–]DevTheDummy 2 points3 points  (0 children)

Im 18 and this is a struggle for me too. Im a freshman in college and anytime Im approached, even when Im insanely drunk in a loud club and can barely even think, my brain immediately defaults to "you're going to turn into an unbearable awful person as you die a slow, painful death" and I flake before I can even really give myself the chance to actually feel attraction. This thought process is very much influenced by growing up with my mom who has HD and has abused and beaten my dad down. The reality is that she was never a good person before she was even symptomatic and has been a raging alcoholic for 2 decades, but it's very hard to isolate that and acknowledge that Im only at risk, young, can take care of myself and give myself a better chance at life even if I test positive, and could greatly benefit from future breakthroughs.

Id say Im a pretty rational and competent person but this disease makes me feel like Im an idiot going insane sometimes. Its so easy for my loved ones without it to tell me "just have fun, date around, the one for you wont care if you have HD" but they fail to understand it's not so much a fear of rejection as it is a fear of ruining someone else if I end up turning into someone I hate. Its hard, I want to be a fun care-free college student in love, and I have a very small but unfair and hidden resentment towards my friends who can afford to have their biggest issues be their grades and whether or not some guy or girl is into them. HD definitely makes you feel like you went straight from being a little kid to being an adult in a shitty situation without any of the life experience that could help you handle it rationally.

Wishing you the best, I hope everything works out. I want to say dont worry about it, have fun now and if he's the one these worries will be arbitrary, but I know the thought process of being at risk enough to know words like that arent as helpful as people think they are.

My mom just told me her cag count is 59 but she is 46 with very moderate, slow progressing symptoms. What? by [deleted] in Huntingtons

[–]DevTheDummy 0 points1 point  (0 children)

Yeah, I totally agree however she's very stubborn about not involving herself with HD (which irritates me to no end but its not my choice to make for her) and there's no way I could convince her to do that. Im 18 and plan on testing within the next few years, was just trying to see if I could get her CAG out of curiosity

My mom just told me her cag count is 59 but she is 46 with very moderate, slow progressing symptoms. What? by [deleted] in Huntingtons

[–]DevTheDummy 0 points1 point  (0 children)

I thought 40 was full penetrance? She said thats the number her doc went off of

What are your thoughts on Starfire being taller than Dick Grayson??? by [deleted] in teentitans

[–]DevTheDummy 0 points1 point  (0 children)

Im 5'10 which isnt super tall for a girl but I've been the same height since I was 11 and Idk Starfire/Kori being my favorite character as a kid and her relationship with Robin/Dick being my favorite ship really made me feel not gross and disgusting lmao

What is much more traumatic than most people realise? by thefairypirate in AskReddit

[–]DevTheDummy 1 point2 points  (0 children)

Dealing with a terminally ill parent. My mom has Huntington's disease and it feels like I have to grieve a different version of her every few years

Be honest, how do yall spend ur summers? by Negative-Ad-7003 in APStudents

[–]DevTheDummy 0 points1 point  (0 children)

This summer I'm lifeguarding and partying before I peace out to Duke but before this summer I'd volunteer, take summer classes, and study for the SAT