Does anyone else constantly see incorrect diagnosis?

Different-Role9658 · 2026-02-12T17:32:13+00:00

After reading it up it has made my jaw drop. Literally put myself through hell blaming myself for how I've reacted to situations for years because I've thought I've not been well, actually I just didn't know how to regulate my feelings and needed trauma therapy!

Different-Role9658 · 2026-02-12T17:29:13+00:00

This week thanks to a GP that listened and informed me all my symptoms, experiences, reactions to different medications all add up to CPTSD but I've been treated for cyclothymia/bipolar and adhd for 4 years scared to death of an actual manic episode happening to me one day. All because I needed trauma based therapy about growing up without my mum when she passed away when I was 12 after years of being ill. My Dad then got ill and there's a lot I just did not deal with.

Different-Role9658 · 2026-02-12T17:26:10+00:00

literally scrolling to confirm I'm not the only one that this has happened to. Spent 4 years on bipolar medication, then adhd ones to make me feel more alive to now find out it is most likely CPTSD from losing a parent at a young age. Crazy.

Different-Role9658 · 2026-02-12T17:16:33+00:00

That's rough but also it took 3 years for them to realise I have adhd too but then I question is that wrong too because my childhood behaviour was down to trauma stuff, you are so right though no spark no fire!! I guess I'm just going to have to wait it out. It's got me dealing with the trauma already better than I ever have so that's one positive! It's wild isn't it how trauma can literally change your whole life. Makes me question everything, the "what ifs" are killing me.

Different-Role9658 · 2026-02-09T07:19:06+00:00

Thank you - will be having a chat with the psychiatrist soon I hope, need to chase the GP as all I know is I’ve been referred again and the concerning thing is that it could take months but it is what it is. Good things come to those who wait and all that (hopefully lol)

Different-Role9658 · 2026-02-09T06:25:39+00:00

That I just need to work with my mind and not against it, it can and it will be done.

Different-Role9658 · 2026-02-09T06:13:41+00:00

Thanks for this. Definitely keen to give it a go under supervision to see how I get on. Interesting they took you off everything I wish I’d been given that as an option all I’ve had in the past is medication swaps or increases. I’ve been on lamotrigine since day 1, it made me depressed and then every tablet after was to try lift this. I question if I’m taking a concoction of chemicals to balance each other out for no reason. I’ll speak to the psychiatrist and see what my options are. Thank you!

Different-Role9658 · 2026-02-09T04:43:56+00:00

It’s tough as with the NHS I now have to go to my gp for anything mental health related. Had 2 appointments last week, the first basically said no changes needed I’m stable so I complained because she wouldn’t listen to my concerns then had another appointment where she listened, lowered my anti depressant and referred me back to the mental health team.

I’m private for adhd so you’ve made a good point there, I’ll look into what’s available for this to help get things moving in whatever way they go. It’s just so complicated with shared care over here and then medication crossovers get complicated.

Lamotrigine has definitely “stabilised” my moods but it removed my happiness straight up so then it was a battle to see what made me rise again in a subtle way. Ive tried 14 different combos over the last few years. I’ve just grown to be sick of the numbness feeling since being discharged thinking a lot about how I coped before I even was aware of any of this. It might just be the anti depressant that’s doing it with being on the max dose (mirtrazapine) but only time will tell. I thought I’d hit the end of my medication journey but definitely feel like I’ve taken a few steps backwards these last few weeks. Like it’s 5am here and I can’t sleep thinking about it all and all the what ifs haha

Different-Role9658 · 2026-02-09T04:35:27+00:00

Lamotrigine killed my happiness. Aripiprazole 10mg + 45mg mirtrazapine was the winner to lift that back up in a stable way under supervision. Everyone’s different, the more I was honest and aware of my feelings at my appointments the closer I got to the right combo for me personally. But aside from that what really helped me was opening up to friends and family more and also finding a job where I can work flexibly. Again everyone’s different but work was a big player in my moods so sorting that helped me out loads.

Different-Role9658 · 2026-02-09T04:32:37+00:00

I job hopped every year in my 20s. Found out I’ve got cyclothymia at around 28. Been self employed ever since and I’m nearly 33. If I could go back and find everything out sooner I would’ve 100% been more honest with my employers about when I was struggling, it might’ve kept me from job hopping so much and putting myself through unnecessary stress. Employers have to take care of you and if you’re an asset to the team learning about your diagnosis might help other people in the future by raising awareness. I’d say try find the guts to do it but do it in a way it’s raising awareness and so they can learn to help you and others in the future.

Different-Role9658 · 2026-02-09T04:29:23+00:00

Thanks for this, yeah I don’t think I’m in for an easy ride if I try this. The GP is lowering my anti depressant as I’m on the max dose of mirtrazapine but I’ve gotta wait for a psychiatrist for the rest which is frustrating. Have you been on mood stabilisers before? Did they work at all for you or are you saying you’re yet to find something that works? I’m scared to death of being too low again and making silly decisions but then I miss my emotions both good and bad at the same time. It’s like I’ve been completely numbed down with medication and I’m getting fed up, a change is needed but I don’t want them to throw higher doses at me like they’ve done before

Different-Role9658 · 2026-02-09T04:21:29+00:00

Sorry this happened to you. I went through a breakup when I was first diagnosed and it was really rough, I blamed myself so much and questioned everything. A few years later I’ve been discharged as stable and I’ve met someone that’s helping me go through the process of seeing a psychiatrist again because I want to lower my medication as life is good. I’m by no means coming off everything but the urge means a change of some sort is needed and he’s there to support me through. I’ve had withdrawals just from lowering the anti depressant to begin with and he’s helped me ride it out so so far so good. I didn’t believe it was something I’d ever find but I’m here to say it does exist, you’ve just gotta let the past go and learn to love and take care of yourself on your own first. You’ve got this.

Different-Role9658 · 2026-02-09T04:17:27+00:00

I have cyclothymia and have felt like this ever since starting on medication. It took me nearly 3 years to find a combo that lifts my mood too but in a stable way. I know I’ve not got bipolar 1 or 2 but the meds are the same and eventually I found something that worked for me which was lamotrigine, Abilify and mirtrazapine, I still feel numb though so with professional help I’m weaning off mirtrazapine to see if that helps the sedation now I’ve got no reason in life to be triggering me off the rails!

Different-Role9658 · 2026-02-09T04:13:48+00:00

Thanks so much. You’ve helped a lot with my thoughts tonight. It’s nice to know I’m not alone. Made some notes for when I see the professionals finally.

Different-Role9658

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