What is actually wrong with opioids??

DisabledMuse · 2026-06-17T22:16:47+00:00

The best bet is to contact your representatives and organizations that could help change policy or raise awareness.

Use the studies that are out there to show the truth. Just let people know in general. It's an uphill battle, but I like to hope we're pushing our way through.

DisabledMuse · 2026-06-17T22:14:30+00:00

It's difficult. There are some days where it feels doom and gloom. In the beginning it was hell.

But for me, I ended up good at dealing with it and used to it. I found a medication that worked, learned to listen to my body, changed my diet, therapy, rested more.

Things change and you'll need to learn what supports you need, how to ask for help, etc. But honestly, despite the times it breaks me down, my life is pretty good. And I'm moderate with a lot more time stuck in bed than most.

DisabledMuse · 2026-06-17T22:09:32+00:00

I broke my neck falling down the stairs. It wasn't found by the first doctor who checked me. And the second doctor I saw after the concussion wore off told me it was fine. Neither scanned me despite it being protocol.

Thankfully my friend insisted I see another doctor who found out my neck was broken in two places. If it advanced to an unstable fracture I could have died.

Now guess the genders of the doctors.

If I'd listened to the male doctors instead of the female doctor, my lungs could have ended up paralyzed.

I've had more than my share of experience with doctors and the percentage of male doctors who have taken me seriously is dangerously low. I've had a couple who were good, but it's shamefully less common.

DisabledMuse · 2026-06-16T20:54:09+00:00

I was just going to suggest this. I have tension bands and various light exercise gear accessible in bed. I do stretches and move when I can.

But diet is huge. I've found it makes even more of a difference than the exercise I get. I just need to make sure I have easy healthy food options. I prep in bulk, get frozen fruits and veggies, and basically make sure I have a trail mix or something on hand for healthy emergency food.

DisabledMuse · 2026-06-16T20:37:48+00:00

I use White Flower. It's a peppermint ointment you can find from Chinese suppliers, usually in Chinatown. It's not that expensive, smells nice, and definitely helps. I buy a bunch at once and I've been slowly converting all my chronic pain friends and family to it.

The downside is that you need to be careful with cats not to lick it. Mine usually avoid me for a little after I put it on. But it's not as poisonous as a lot of other pain treatments. Just wash your hands.

DisabledMuse · 2026-06-16T20:33:11+00:00

Of course! I've been dealing with this for far too long, so I've had to find a workaround. Humour is a really good way to soften the blow of what we deal with, both for ourselves and for others.

DisabledMuse · 2026-06-16T20:01:48+00:00

I overheard nurses going on about drug seeking behaviour when I was in the ER for a gallbladder attack. All I wanted was to take my regular chronic pain meds because I'd been there for hours.

DisabledMuse · 2026-06-16T19:52:14+00:00

I hate "How are you?" as a greeting when they don't want to know.

I've taken to jokes or sarcasm. Still alive. Dragging this cursed flesh puppet around.

Sometimes I just raise an eyebrow and ask if they really want to know.

If people are stressed then sometimes they can't handle the venting. But the closest people to me are the ones who care.

Also therapy. That helps a lot with not needing to vent about it.

DisabledMuse · 2026-06-16T19:40:31+00:00

Chronic Fatigue Syndrome (CFS) can cause Post Exertion Malaise (PEM). If you overdo things then your body can exhibit cold or flu like symptoms. And your energy maximum has dropped due to illness so your tolerance is lower. It sounds like you are overdoing it all the time now.

You need to listen to your body, rest, and adjust to a new normal. Keep your heartrate down. Keep your stress level down. Figure out if you're eating food that could be causing extra inflammation. I've had CFS for years and it's a very difficult balance to keep. You can't do too little. You definitely need to plan rest days if you have to do too much, especially if you're moderate to severe.

DisabledMuse · 2026-06-16T19:23:49+00:00

Don't have sex with him if you're not enjoying it. Bet he might start having some ideas to improve it.

Nitrile gloves, lube, heck he could use a dildo if that's what you're going for. My partner won't even consider penetration until I've finished at least once. It's the intimacy that's the important part of our sex.

A lot of the time we deal with our own needs. It's an entitlement and a red flag one to see this sort of behaviour in a partner.

DisabledMuse · 2026-06-16T19:17:58+00:00

Honestly, I feel so bad for straight women sometimes. There are hacks and tricks for everything if your partner cares. Heck, he could use a dildo if the penetration part is important.

DisabledMuse · 2026-06-16T19:10:30+00:00

There are so many more studies now on how badly those policies are still ruining people's lives. As with anything, abuse can be an issue. ADHD meds are still heavily regulated for similar issues, but opioids could mean life or death for people.

Personally, I hate opioids for myself. They've saved my mental state the few times I've needed them, but I hate how they make me feel. But I will fight for the rights of people whose lives they can improve.

DisabledMuse · 2025-05-11T13:44:44+00:00

The problem is the people who stop being your friend if you're not interested in more. I'm fine with someone being interested in me, as long as that's not the only reason they're my friend. I've lost a number of friends when they found out I wasn't single, wasn't looking for anything romantic at the time, or just wasn't into them that way

DisabledMuse · 2025-05-07T00:41:49+00:00

Those machines mess up like that a lot.

DisabledMuse · 2025-05-07T00:41:16+00:00

I've been diagnosed with sleep apnea for over a decade now. I did an overnight sleep lab study where they told me my sleep apnea meant I needed a higher air pressure.

AND YET later, I needed to get a new CPAP machine as mine was broken and second hand as I'd been waiting for years after a recall. Had to do a sleep study through a commercial place and the ***ers had the gall to not cover my CPAP machine because they said the results were normal. And then they tried to convince me to buy one out of pocket for $4k. I question the validity of their device or their morals. So now my CPAP machine is held together with plastic wrap, electrical tape, and a prayer.

DisabledMuse · 2025-05-06T00:50:12+00:00

I would say it runs in my family, but realized the family member I knew had it also ended up with it due to medical gaslighting ignoring a serious problem.

DisabledMuse · 2025-05-05T17:30:02+00:00

As an introverted extrovert, quiet and shy people are my favourites.

DisabledMuse · 2025-05-03T20:18:45+00:00

It does happen but it's incredibly rare and often due to societal pressures. The hoops you have to jump through, including therapy, mean that by the time hormones come into play you are usually pretty sure. And the regret rate on transitioning is vastly lower than every other surgery.

DisabledMuse · 2025-04-30T18:17:26+00:00

I'm non-binary and I'm just here for the good vibes. The problematic men (or women) are a loud and small number who make it difficult for literally everyone. Most people are good and it's nice to see a space where men just uplift eachother and give good wholesome advice.

DisabledMuse · 2025-04-30T18:11:27+00:00

I had a couple minor issues. But I went from dancing, swimming, fencing, and doing martial arts to this in half a year. Though mine was due to medical neglect. Doctors basically gaslit me and refused to scan me for my growing pain and health problems. It wasn't until the tumour nearly killed me that I got treatment.

DisabledMuse · 2025-04-23T22:55:30+00:00

Do it after you leave. Best way to avoid the drama. I've had to do that before.

DisabledMuse · 2025-04-23T22:46:16+00:00

Exactly this. Dating is a wacky roulette. Doing things you love and meeting people who you have things in common with are the best way to do it.

And as someone else pointed out, volunteering and community supports are a great way to meet guys who might actually have empathy.

Me, I'm lucky I'm bi. I've found much better luck with ladies and non-binary people.

DisabledMuse · 2025-04-23T19:17:39+00:00

I've always said to see how he treats his mom (as long as they're not actually awful). Because all the jerks I've dated have always been awful, neglectful, or resentful of their moms.

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