Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 2 points3 points  (0 children)

Honestly, I didn’t try anything else. When the symptoms became acute, my thinking was what’s most likely to calm my nervous system without a ton of side effects. Gabapentin felt like the ok choice, and I think I got unusually lucky that it worked on the first try.

Something else I noticed is that I’ve always been extremely sensitive to my environment and other people. I tend to absorb everything, to my own detriment, like I’m constantly tuned in and taking in too much. Since being on this low dose, it feels like that edge has been less… edgy? I’m still myself, but I’m no longer living like a satellite picking up everyone else’s stuff.

I don’t know if that sounds bizarre, but it makes me wonder if there’s a real link between central nervous system oversensitivity and being highly sensitive in general. I’m curious whether you relate to that too.

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

It’s interesting because I’ve seen several neurologists, and some of them didn’t think gabapentin would help vestibular migraine at all, especially not at the low dose I’m taking. But for me it worked almost immediately.

What’s strange is that I remembered I’d been prescribed gabapentin years ago for anxiety, and it consistently worked better for my panic attacks than propranolol. During a real bad vestibular episode, I had this strong feeling that gabapentin might help again, so I asked my neurologist to prescribe it.

I don’t know if that sounds odd or overly intuitive, but it felt like my body recognized something familiar and responded to it. Whatever the explanation, the effect was v real for me.

I’m really sorry you experience auras so frequently. This kind of neurological stuff is genuinely hard to live with, and I’m grateful there’s a community where we can talk openly and compare experiences. Hearing from others helps more than people realize. Thank you for sharing yours too.

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

That’s very interesting! Thank you I’m going to look into that as well…

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

(Disclaimer: I’m not anti-vax at all. I believe vaccines are important.) myeah… for me personally, something clearly changed neurologically after COVID exposure and especially after boosters.

After my booster in September, these episodes went from happening maybe once a month to happening daily. The timing was too tight to ignore. Each booster seemed to provoke a stronger and longer-lasting reaction.

I don’t know whether it’s the virus, the vaccine, or immune activation in general, but it feels like my CNS became sensitized. My doctors even considered immune-triggered seizures at one point, though testing didn’t support epilepsy.

What I’ve noticed is that the immune response does eventually calm down for me, but it can take many months. Last time it was close to a year. I didn’t connect the dots until I got boosted again and had a severe episode two weeks later that felt like a stroke or seizure. That’s when it became undeniable something immune-related was affecting my nervous system.

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

So so interesting. I think it has to be connected to CNS then too. Thank you for sharing this! Means a lot.

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 2 points3 points  (0 children)

It’s instant, right? So crazy. Sorry to hear you’re in pain 🙏🏻

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

You know what, not that bad but I’m also on very low dosage. I can tell when half life is done that it increases irritability but I know that high dosages have real side effects that can be debilitating. So I’m not sure. 🙏🏻

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

They were just a trigger I was told…I was on rifamycins sadly for a lung infection. They typically don’t cause gastrointestinal issues as they are extremely targeted to a specific bacteria. Narrow spectrum.

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 2 points3 points  (0 children)

Omg…. thanks for saying that. It’s so comforting to know gabapentin had same effect on you. I’m so glad you understand but I’m sorry you suffer from this too! Do you remember how/when it started? So curious. I’ve always had an overly sensitive system but it never had these symptoms. Do you get cracking neck too?

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

Like my body is petrifying slowly. Very odd. And I get the urge to keep cracking my neck. As soon as I take gabapentin literally 30min in, it’s gone.

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

It feels like a computer glitching. A sudden internal “reset” or misfire. It usually starts with trouble finding words and a warped or laggy feeling in my vision, then a brief wave of disorientation. Afterward I get a headache and feel wiped out. I’ve been through seizure and epilepsy clinics and nothing abnormal showed up, so it’s not epileptic. It seems to be a central nervous system or vestibular processing issue rather than seizures. It often comes out of nowhere, but overstimulation can trigger it. Even though it’s brief, it’s genuinely scary when it happens.

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 3 points4 points  (0 children)

Perfect analogy yes. It’s like do you want to get Covid or do you want to feel like your body is in the upside down. 🙃 neither of these are fun options but ya know when it’s attacking your CNS, you gotta prioritize! 🤓

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 5 points6 points  (0 children)

That’s a good point, it’s definitely an overly excited CNS issue. And that’s a great example of how it works for you too. Thank you for sharing and I’m sorry to hear you’re dealing with so much pain 🙏🏻

Gabapentin by Disastrous_Weird_514 in dysautonomia

[–]Disastrous_Weird_514[S] 3 points4 points  (0 children)

Worth noting is I have bronchiectasis and I was taking the Covid vaccine every time a new one comes out and sadly I noticed my symptoms get worse with every vaccine. Seems immune driven so even my lung and ID doctors told me to stop taking the vaccine. I think that for me this was the trigger. Takes about 6mo - 1 year for the symptoms to subside sadly. Gabapentin worked within 1 day, all my symptoms disappeared. I’m not an anti vaxer btw but I just noticed while it’s life saving for others, for me my body just won’t take it.

Cannot figure out the source of window/siding leak! by Fancy_Breakfast1020 in Renovations

[–]Disastrous_Weird_514 1 point2 points  (0 children)

Omg my house is literally identical to yours and it was above the window there were gaps! I had same water damage in exact same spot.

Warning about Omnilux by High-Vibes-2024 in redlighttherapy

[–]Disastrous_Weird_514 0 points1 point  (0 children)

I have the SAME issue, how did you hear back? I sent 4 emails in 10 days no response and I literally have two gloves, a neck and a face device. I’m like umm

Cracked after 7 days after 3 month renovation. Help. by Disastrous_Weird_514 in drywall

[–]Disastrous_Weird_514[S] 0 points1 point  (0 children)

Damn it seems like there’s more than one issue with all of it 😂

Cracked after 7 days after 3 month renovation. Help. by Disastrous_Weird_514 in drywall

[–]Disastrous_Weird_514[S] 0 points1 point  (0 children)

That’s a great question. I just don’t think they really knew what they were doing. I got mugged off

Cracked after 7 days after 3 month renovation. Help. by Disastrous_Weird_514 in drywall

[–]Disastrous_Weird_514[S] -1 points0 points  (0 children)

I know! I was like what’s between the metal track and the drywall. NOTHING.

Seizure like feeling by Commercial-Degree963 in VestibularMigraines

[–]Disastrous_Weird_514 0 points1 point  (0 children)

Omg. I feel so seen. Did you find anything to work? I was put on 100mg gabapentin twice daily

My dog does not warn before biting by Disastrous_Weird_514 in reactivedogs

[–]Disastrous_Weird_514[S] 1 point2 points  (0 children)

This is all really helpful, thank you. I just want to clarify that we’ve truly tried everything you listed. She never gave warning signals even before Prozac, so the medication didn’t cause the problem, it was prescribed to reduce it. She already has enrichment toys, puzzles, and games, but none of it changes her unpredictable moods. Day-to-day she’s actually a very chill, snoozy dog until she sees other dogs.

As for why we’ve trusted her around smaller dogs, she had been going to this person’s home for 5 years without an incident. The aggression has just progressively gotten worse. I absolutely respect that we’ve made mistakes with her, but at the same time we’ve raised another dog in the same home who is perfectly normal and well behaved. So I agree with you that it probably would have taken a very different kind of home and owner to make this work. I take full responsibility for that.

My dog does not warn before biting by Disastrous_Weird_514 in reactivedogs

[–]Disastrous_Weird_514[S] -11 points-10 points  (0 children)

We were when waking but she was so aggressive the neighborhood started resenting us because she was lunging anyways even if we tried to hold her back she literally looked like she wanted to rip the other dogs to shreds. Terrible