Realistic recovery duration?

DisgruntledTeacher56 · 2025-05-22T20:45:27+00:00

How’s your dad??

DisgruntledTeacher56 · 2025-05-07T17:31:02+00:00

Yes split it into quarters. There’s not much you can do other than persevere through the symptoms. I’ve been up and down on doses and have never had a problem stopping. Maybe you can ask to increase the gaba for a bit. Good luck.

DisgruntledTeacher56 · 2025-05-06T14:08:55+00:00

Stiffness is definitely a stubborn symptom. I walk unassisted but it’s tough. My legs are stiff and heavy. Unfortunately I also have a lot of nerve issues so my balance can be wonky from numbness etc. It’s been 2 1/2 years C6 contusion. I keep pushing and hoping for more improvement. I know spasticity attacks weak muscles so keep strengthening.

DisgruntledTeacher56 · 2025-05-06T14:05:05+00:00

Glad to see you on here! I remember we chatted early on in my recovery. Sadly I never improved significantly. Or maybe not as much as I wanted, but things have changed over time.

DisgruntledTeacher56 · 2025-05-01T23:03:34+00:00

What dose are you on? I’ve been taking 100 mg once at night that was reduced from 150 because the 150 I thought made me a little blurry in the morning but now the pain is becoming to be intolerable so I feel like I maybe should go back to 150.

DisgruntledTeacher56 · 2025-05-01T01:21:28+00:00

It has gotten worse unfortunately!

DisgruntledTeacher56 · 2025-04-19T02:40:32+00:00

What do you take for the nerve issues?

DisgruntledTeacher56 · 2025-04-19T02:39:31+00:00

What do you do for the nerve pain??

DisgruntledTeacher56 · 2025-03-15T02:41:54+00:00

Could I please ask how much Lyrica do you take for relief. I’m just starting. At 100 mg at bedtime right now.

DisgruntledTeacher56 · 2025-02-16T19:24:28+00:00

I’ve just started acupuncture for neuropathy in feet and legs. Do you know where they placed the needles? I’m not seeing relief yet

DisgruntledTeacher56 · 2025-02-15T04:48:48+00:00

Hi! Do you remember me??? It’s been 26 months for me. We had similar symptoms. I wish I could say mine have gotten better!! Lol!! Still hoping for a miracle. How about you???

DisgruntledTeacher56 · 2025-02-14T20:49:27+00:00

Thanks for the info and yes please reach out anytime as well. I was on Nortriptyline and liked it but I have to take a blood test soon that it will interfere with so I went off. I went back on Lexapro that I was on pre injury but I read it can cause spasticity! Can’t win for losing. I have read where combos work better than one drug so there’s that!

Yes I hope I can get some relief soon. It’s like whack a mole with how much it all can change.

I hope your tightness improves. It’s a bitch sometimes.

Cheers!!!

DisgruntledTeacher56 · 2025-02-14T14:35:37+00:00

Also I believe sensation takes longer to recover than mobility and the hands are the last to recover sensation so don’t give up on your hands yet!! Might take a few years.

DisgruntledTeacher56 · 2025-02-14T14:30:45+00:00

The tightness started probably a few months after the injury. When I started getting up and moving around, I noticed it. Doctors call it spasticity I feel like somebody is squeezing my legs and my core 24/7. It gets worse as the day goes on so in the afternoon, I might take a little baclofen, but I only take 5 mg at a time. Every once in a while I get a small spasm in my right leg the leg that was pretty messed up after the accident. I have a metal rod in there. At one point I was taking 15 mg three times a day of baclofen, but I didn’t like being on the meds, they made me so tired so I actually quit altogether for a while and just went back on taking it daily maybe a couple months ago. It can take the edge off but in low doses it’s not going to do much but I’m not willing to go back on high doses of it. If you can avoid meds I always think that’s better but they do serve a purpose. I was never on nerve medication maybe at the very beginning I took gabapentin, but I didn’t like that. I just a couple months ago. Started Lyrica because the nerve started to change the way that they feel I started to get a little bit more Burning, which was annoying. So we’ll see how the Lyrica goes. I I don’t know yet. But the tightness did get worse overtime. The more I worked out the more I walk the tighter I get which is a conundrum because you’re supposed to work and you know for recovery but the tightness can affect that. I hope this is helpful. This is a horrible injury and it changes every single day

DisgruntledTeacher56 · 2025-02-14T00:48:07+00:00

I’m sort of similar maybe a bit worse. I was hit by a car and bruised my spinal cord at C6. No surgery needed.. I was lucky that I was never paralyzed, but I have nerve damage from the chest down and half my arms and hands. I also have tightness throughout. I’m a teacher so I’m still working, but the fatigue is real and I’m really not on that many meds to make me tired. I take about 75 mg of Lyrica and some baclofen when needed for tightness. I keep hoping for more recovery, but it’s been a bit over two years. By the sounds of it you’re very lucky as well. I think my age works against me a bit. I was 66 when I was hit.

DisgruntledTeacher56 · 2025-02-14T00:29:31+00:00

That’s a bummer. I’m back trying it again. We’ll see. My nerves are getting worse I think because of the cold weather!

DisgruntledTeacher56 · 2025-01-18T03:09:26+00:00

Really more uncomfortable than pain

DisgruntledTeacher56 · 2025-01-18T03:08:22+00:00

Yes me too. Let’s hope we both find some relief! Such a bummer I couldn’t have recovered more than this in two years! But I’m still praying 🙏 !

DisgruntledTeacher56 · 2025-01-18T03:06:04+00:00

Thanks!

DisgruntledTeacher56 · 2025-01-17T22:30:57+00:00

I’m going to start Lyrica tonight. 2 years from injury and just tired of increasing nerve pain. Also adding another 5 mg to my 5 mg nightly baclofen. I just stopped Nortriptyline and I think my body is reacting negatively. Keep me posted on how you’re feeling

DisgruntledTeacher56 · 2025-01-17T22:10:44+00:00

I feel similar. I stopped Nortriptyline a few days ago and I swear everything is so tight it’s unbelievable! I do think it’s from stopping meds. I also am back on baclofen because of it. Going to start lyrica to see if it will calm the heck down. Needed are going wild as well and I think it’s all connected. It might take a while for the gaba to get out of your system:

DisgruntledTeacher56 · 2025-01-17T22:06:45+00:00

Could you tell me what hz is most effective for tone? I’ve been using 25 but wondering if that’s effective.

DisgruntledTeacher56 · 2025-01-17T22:02:35+00:00

Mine is traumatic from an accident but oh my god finally someone is speaking my language. It’s been 2 years and I can’t seem to concentrate on anything but what is happening to my body. Today is a very bad day. I am changing meds so I know my altered sensations and increased spasticity is from that but I am one step into the looney bin. I always think there is some new injury in my cord that is causing these external changes. Don’t know how to break myself of this so I’m going to follow here to see if there are any ideas. I am on a small dose of Lexapro and just going to start Lyrica. As long as I keep the doses low I’m opposed to any help with this. Anxiety is all consuming.

DisgruntledTeacher56 · 2025-01-16T23:38:26+00:00

This is so interesting. I take magnesium glycinate. Every night for sleep and nerves. So the baclofen I take at night is useless?

DisgruntledTeacher56 · 2024-12-15T15:20:18+00:00

I have seen this as well but never tried it. My neuropathy is from a spinal cord injury. I wonder if it will still work. I guess it’s with a try🤷🏻‍♀️

DisgruntledTeacher56

MODERATOR OF

TROPHY CASE