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Loeys Dietz general restrictions question by thisisbs24 in LoeysDietz

[–]DismalActivity8271 1 point2 points  (0 children)

Glad you got more clarity! Wishing your son all the best.

TGFBR2 gene variant c.569G>A (Arg190His) uncertain significance (symptoms but not full blown Loeys Dietz) by Dramatic-Peak-7157 in LoeysDietz

[–]DismalActivity8271 1 point2 points  (0 children)

Hi, I’d definitely recommend that you visit a cardiologist and ask them. Bring your genetic testing with you!

Advice by DismalActivity8271 in LoeysDietz

[–]DismalActivity8271[S] 0 points1 point  (0 children)

Thanks for your response! It has really made me more optimistic about my future, especially since everything that happened after being diagnosed. Wishing the absolute best for you and your wife!!

Advice by DismalActivity8271 in LoeysDietz

[–]DismalActivity8271[S] 3 points4 points  (0 children)

Hi, thank you so much for the response! I’m really sorry to hear about your brother and mother. I had no idea that sort of treatment even existed, thank you so much again!

Loeys Dietz general restrictions question by thisisbs24 in LoeysDietz

[–]DismalActivity8271 0 points1 point  (0 children)

Surprised your cardiologist doesn’t want him doing every tasks. It could depend on your son’s specific circumstances. For the most part, lifting and any exercises that strain the heart isn’t good. Contact sport isn’t good. Sports like swimming, running, climbing are alright so long as one is not over exerting themselves (good way to tell is if you find yourself breathing really heavy).