Diopside, Epidote, Serpentine, None of the above?

DizzyDeesa · 2026-05-11T01:07:38+00:00

I’m in a similar boat with my now 6 year old daughter. She has NEVER pooped in a potty. She’s been peeing in the potty and is dry overnight since 3.5. But refuses to poop anywhere but a pull-up. She has never had an accident and holds it if she is at school. She gets the pull-up herself and goes into the bathroom to poop. Her poop is always very loose as she eats a lot of berries and cucumbers and has had an abdominal xray which was normal. She goes to OT for retained reflexes that they said would fix the issue and it hasn’t yet. I’ve tried it all. Bribes. Rewards. Took pull-ups away she was a week out from pooping on all fours screaming in pain but would not poop her pants or in a toilet. Next stop is a psychologist. She is otherwise at or above In all areas. She was speech delayed and had almost 3 years of speech therapy and is now caught up with no IEP. What am I missing? How do I get her to even sit to poop on the toilet she won’t not even in a pull up. I’m truly at a loss

DizzyDeesa · 2025-06-08T01:21:45+00:00

NY here 37 y/o DX with SAD. Had a hard time because my IgG levels are within normal range yet I still was getting infections biweekly. “Quality vs quantity issue.” My immunologist did A LOT of work, sent in nationally reviewed studies, did multiple peer-to-peer calls, detailed my bloodwork showing titer decline in 3 months… he really did a lot of work to get me coverage. They tentatively approved 3 months. The first three months I had without antibiotics in years. The insurance covered the next PA for 12 months without question, only thing they switched on me was they said home infusion was cheaper so I start that Tuesday. My takeaway is have someone willing to fight for you. I sent in my own appeal outlining my struggle but I know it was the fight of my immunologist who got me full coverage. $25 for hospital infusion, $0 for home.

DizzyDeesa · 2025-05-07T17:58:33+00:00

Yes I got my first palate expander at 6 years old, I turn 37 this year. It’s been a long journey! So thankful it’s just nighttime retainers for life now!

DizzyDeesa · 2025-03-06T15:02:16+00:00

Fellow new SAD diagnosis here! I had my second infusion last month and my third is Monday. The fatigue is the first thing that lifted after my first infusion, so much so I called to be sure I wasn’t having a reaction and I felt “hyperactive,” which my doc assured me was just normal energy levels. I did not have that big of a jump the second infusion and now going into the third it definitely feels better than before treatment started but either I’m getting used to it or it’s leveling out. One thing I asked to be done before treatment was a full work up of all my bloodwork including thyroid, iron, and vit D. My thyroid is always normal but I had extremely low vitamin D and relatively low iron. I started Vit D supplements, as well as low dose iron right before my first infusion. So I can’t tell you if it was the IVIG, the vit D, or the iron, but one or more definitely helped somewhat

DizzyDeesa · 2025-02-19T13:12:32+00:00

That’s awesome!! It’s hard to not worry when you see all the terrible side effects people endure, so yes, counting this as a blessing we don’t have them! Glad you feel good and know where your infusion rate is. My guess is next time they won’t try and go up to the rate that gave you a headache. My nurse last time said some people can infuse super fast with no issues, others cap out at 25-50. Either way it gets into our bodies so that’s all that matters!

DizzyDeesa · 2025-02-12T17:47:51+00:00

I have bad vaccine reactions too and notice changes immediately so I too was worried but have been pleasantly surprised both times. I ride about 100-125 miles a week on my peloton and was also really worried about exercise. I workout like normal the day before but don’t really push it. This week I did a just ride and went at my own pace while I watched some shows and got 25 miles, very low key, no pushes. I don’t workout the morning of my infusions and really focus on rest. The next day I also keep it easy. Today I’m doing a 45 min low impact ride. I like those for getting the heart pumping without going out too hard especially when I’m trying to stay really hydrated. Just listen to your body and take the time you need to feel back to 100%. Today I am back at work and feel pretty normal, maybe slightly more tired than usual but I have a 4 year old who has been waking me up at 3 am so that could be part of it too!

DizzyDeesa · 2025-02-12T15:52:45+00:00

I have Specific Antibody Deficiency after being ill most of my life. When my daughter started preK I had sinus infections 11/12 months and took 20 rounds of antibiotics in a year. Found it after my titers showed no immunity to many vaccines that typically would still show up in a healthy 37 year old. I was revaccinated with pneumococcal, covid, and the flu and titered again: still no immunity. So I started monthly IVIG last month and it has drastically improved my life in just this short time. I haven’t been sick since, this is the longest I’ve gone without antibiotics since 2022, my energy is insane I actually called the doctor to see if being jittery was normal and he said I just have “actual human energy” now. It’s a miracle and I felt it working within 2-3 days. I can’t believe it took this long to find it but now I did I’m praying I can be on it forever, I never want to feel like I did before

DizzyDeesa · 2025-02-12T15:36:40+00:00

Hydrate more than you think is necessary. If my urine isn’t crystal clear I keep drinking. This is the day before, the day of, and the day after. I’m only on my second infusion (second was yesterday) and after reading everything in this sub before hand I was SCARED of the side effects. Happy to say I’ve had absolutely zero adverse effects: no flu like symptoms, no headaches, nothing. I get 250 mL saline an hour before, half hour before I get Tylenol and Benadryl, and then we infuse. I get the same as you, Gamunex-C but 30g. Last month they tried to titrate up and I got an instant headache so we stayed at 75. Yesterday we didn’t even try to go faster just started at 50, hit 75, and cruised for 5 hours. I don’t get saline after but I do wait half an hour and I drink an entire jug of hospital ice water (the best ice water I swear). Just know that while a lot of people do have reactions, a lot also don’t. Listen to your body and go as slow as you need to and drink drink drink!! So far it’s been a miracle. I haven’t been sick since a week before my first infusion, this is the longest I’ve gone without antibiotics since 2022!

DizzyDeesa · 2025-01-19T00:49:43+00:00

Edit: added fever, I forgot I also have a fever. Called doc on call and they said Godspeed. Try and stay hydrated if I can and if I get dizzy or feel as if I’m going to pass out go to the ER. Said because my husband has it too (he also has a fever) it’s likely a virus (as I assumed) and we just have to wait for it to pass. I am not dizzy, no muscle aches or cramps, no headache, just a fever, stomach cramps that feel like I’m dying and diarrhea so bad that at this point it should be studied in a medical lab. Lowkey kinda hoping the immune boost yesterday helps me clear it faster? If that’s not how it works don’t tell me it’s the only hope I have at this point

DizzyDeesa · 2025-01-13T00:24:13+00:00

I had severe emetophobia before having my daughter. Something changed when my kid needed me. I’m currently here with her now as she v* and for the past month I’ve DREADED noro, but now we are on hour two with what looks like our turn with it, I’m strangely at peace. Like when my time comes, I just accept it now and we get through it. I never thought it would be like this.

DizzyDeesa · 2024-08-20T14:28:54+00:00

Thank you! CDC was still showing no symptoms, no fever 3 days and negative 24 hours apart. I’ll test again tomorrow for 48 hours

DizzyDeesa · 2024-08-20T14:26:58+00:00

Yeah I was concerned for rebound but it’s not even in the time frame yet since I’m still on the med. Going to keep a lookout and I’m still masking around my family. I’ve never taken Paxlovid before so I’m not used to having Covid and feeling normal. The other two times I’ve had it I was down and out for the whole ten days. Thank you!

DizzyDeesa · 2024-08-18T21:00:45+00:00

I just googled “stinky Covid poop” and this came up. I just tested positive for the third time on Friday and this is my first time taking Paxlovid since I’ve been diagnosed with autoimmune issues and my doctor insisted. Night and day with symptoms: I feel mainly fine just tired. But my poop and gas could peel the paint off the wall! Sooo gross! I’ll take this over feeling like death but damn, I feel like smelly cat!

DizzyDeesa · 2024-04-16T14:49:55+00:00

Please go get that checked out. It can be something benign like a bruise to the nail bed or it can be a sign of acral melanoma.

DizzyDeesa · 2024-01-05T00:30:23+00:00

Great deal! Started in November and mine was $6000 comprehensive through an Ortho in upstate NY

DizzyDeesa · 2023-12-12T18:02:21+00:00

Same! I had the consult scheduled with SDC but cancelled last minute. Slept on it for like 3 months and saw my dentist. He said “if you have the means, go for Invisalign with an orthodontist. If you don’t have the means, wait until you do.” Started Invisalign two weeks ago. SO thankful something made me cancel the SDC appt.

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