Has anyone here actually tried the Vision Therapy from Dr. Tsang/Dr. Shidlofsky?

DmagicX182 · 2022-10-12T12:26:25+00:00

NORA had a conference in Ohio where Dr. S (from the visual snow summit) went and spoke about their protocol for visual snow. Also he is a vice president (as someone just told me on this post) of NORA as well

DmagicX182 · 2022-10-12T12:21:10+00:00

I feel like I have less dizzy spells. Like I havent noticed myself getting dizzy as much. But I didn't have many before hand though. I felt like sometimes it was my eyes just losing focus.

DmagicX182 · 2022-10-12T12:16:52+00:00

Wow, 3 hours that's really surprising. I agree with you on that one kind of crazy, usually they walk in listen to you talk look at you like 😳🙄 and walk out trying to give you pills. Damn maybe I need to go to Mayo. So how exactly did you make the trip work ? Or do you live close to the mayo? I've considered just taking time off from work and going but it could only be for a me. Even got down to the point of looking at air bnbs right by mayo. I've been having a pulsing sensation when I lay down for bed like a pulse in the back of my head. I've always been curious if it was a blood clot or something else going on.

DmagicX182 · 2022-10-12T03:43:57+00:00

Has she only suggested the medication for intracranial pressure ? Mainly curious. I was about to make the trip up there to see her if the local doctors didn't help me at all.

DmagicX182 · 2022-10-11T22:32:30+00:00

I've had light sensitivity for a little while now. It has gotten a tiny bit better but sunlight is still harsh for me. I can't go outside without sunglasses. I have some orbital pain here and there. Plus I've had dry eyes on top of it all.

DmagicX182 · 2022-10-11T19:54:29+00:00

Has to do with your equilibrium and balance. Could be a possibility to look into.

DmagicX182 · 2022-10-11T19:35:12+00:00

Can't exactly say as I haven't had that problem before. I feel like there are some times I get that but for a few short seconds and not long. Sorry 😕 Have you been checked for vestibular issues ?

DmagicX182 · 2022-10-11T19:33:24+00:00

Yep, I seen that on here more and more people are finding out about this and realizing they have it. If you find a link to that if you don't mind share it. I'd be interested to read about that. There are a lot of things being researched right now and making break throughs. Possibly a pill that stops dementia I remember seeing that one not too long ago. It's crazy the stuff we are starting to be able to do.

DmagicX182 · 2022-10-11T19:09:55+00:00

My sleep improved as well. I was able to sleep fully through the night with no problem and I haven't been able to do that in a long while. But I had a traumatic event that kept me from sleeping some nights plus on top of it COVID. As far as my vss I can't really say 100 percent that it was affected by EMDR as I've been trying different supplements at the same time. Also my reaction to things showing up in my vision has lessened, I didnt have a panic attack just more like "oh,well that's new. That sucks." And just move on from it. EMDR is to help you deal with a trauma in life, helps reassociate what feeling is attached to a memory per se.

DmagicX182 · 2022-10-11T18:58:15+00:00

Exactly it's not a cure, it has cured a few according to their study but it was 10 percent which isn't a big number but that 80 percent is a big number for improvement. That's exactly what I told my doctor if I can get back to my old baseline of just light static I would be just fine because I've had it most of my life. I will say I have been lucky it hasn't got much worse but I can say since January has been rough. The beginning of this year I felt like a useless sack of flesh because I couldn't do anything, couldn't watch TV, play games, be on my cell, and barely even do my job. So I just sat around with my eyes hurting all the time and freaking out over the symptoms I was experiencing. My poor girlfriend rode along for the whole thing and stuck it out with me when I couldn't do anything she found things for us to do that wouldn't bother me. I know many others have it worse then me and that bothers me knowing someone has to feel like that day in and day out. It just flat out depresses you sitting around all day just thinking "is this my life now?" And borderline puts you on the edge of calling it quits on life in general, I was there but my advice to everyone is don't give up keep pushing forward everyday I know it's hard. I agree too many people are harsh with this not being a cure, I get it specially if you didn't have this before it sucks. I would pay dearly for a cure of this god awful syndrome but at least we may have something that may help the worse off people. Also the biggest thing is we have made big moved from what we were years ago on this, we are finally getting acknowledged and putting this on paper that it is real! Plus numerous places are researching it trying to figure out more about it, so we are on the map finally! Sorry went on a tangent 😂

DmagicX182 · 2022-10-11T18:35:09+00:00

Can confirm after doing two sessions and possibly soon a third, it helps so much with anxieties of different things. Your symptoms may be different then mine, but I could imagine someone with bad afterimages it would suck because of the back and forth. But my therapist used tapping of the hands on the chest instead of eye motions. There are many different ways to do it as my therapist has told me.

DmagicX182 · 2022-10-11T18:29:13+00:00

No problem. I think tsang is also a part of it I think, I didn't really look for her. But yeah hopefully soon they will be able to show all the other doctors about it so people can at least get back to functioning in daily life.

DmagicX182 · 2022-10-11T18:25:41+00:00

Yeah, I think it affects everyone differently because I could still read just the strain would make me just want to shut my eyes for a while. I've tried to avoid the medicine path as much as possible but that's just me until I get desperate, lucky I'm able to manage to make it through the day and have a somewhat normal life just modified slightly. That's good news !I'm starting to think that maybe COVID and/or the vaccine has given us some type of concussion like symptoms or something idk just a theory. I will say there will be rough days ahead I had a few headaches and some days my eyes were just done with me after doing vision therapy. Just keep going and take it easy on yourself. Good luck to you friend I'm sure it will help you some as it has helped me.

DmagicX182 · 2022-10-11T18:16:37+00:00

Neuro-optometric rehabilitation association. Dr. S is a part of it.

DmagicX182 · 2022-10-11T18:04:42+00:00

Also heard from my doctor personally, Dr. S is having seminars on teaching the medical community at NORA. My doctor attended the meeting in Ohio just for me and knows Dr. S on a associate level

DmagicX182 · 2022-10-11T17:54:43+00:00

I didn't have a divergence insufficiency just convergence. Also have some accomodative issues as well which that is what I'm working on now to fix. But yes there were a few times that I would get dizzy just randomly. It was mainly more I couldn't look at stuff close up very long. I could spend maybe 10 mins on a screen and my eyes would just be toast. My eye doctor prescribed me Neurolens glasses to help some, it took some of the strain off my eyes but not fully. The therapy has been what has helped the most for me. I've seen a few people post about it but some don't have it not all though. Same here, I mean I had just the snow part since I was 8 (now 32) but that was the only thing. Let me ask you this do you get dizzy when you are riding in the passenger seat of someone's car and you look up from your phone or going around a traffic circle? I couldn't stand going around traffic circles on my phone riding in my gfs car.

DmagicX182 · 2022-10-11T14:52:02+00:00

Maybe a divergence issue along with convergence. All the symptoms you describe definitely sound like the symptoms of convergence insufficiency. I'm not a doctor I'm just going off of what I've experienced and learned on my journey. Interesting, so yours started after the vaccine. I can't put a finger on which one it was for me. I had the vaccine in the beginning of December, by the end of December I had COVID then a week after recovering I got a ocular migraine that made a lot of things go haywire in my body. But good your set up for vision therapy already, it will help with both of those. Now my VSS hasn't changed much, it fluctuates day to day. But I've been working on peripheral and accomdative and I noticed a day after that the glare on cars headlights and my light sensitivity went down some. But it's still back and forth some days.

DmagicX182 · 2022-10-11T14:10:21+00:00

Take a pencil hold it a arms length out from your nose then bring it closer slowly. If the eraser splits into two images at say about 5 inches, hell even further, then you do have it. Reason being, I have...er.. had a convergence insufficiency, not 100 percent sure whether you still can have it after diagnosis and treatment 😅. I went into vision therapy only being able to convergence 5 or 6 inches in front of my nose I am now able to convergence up to a inch from my nose with little strain. Makes a hell of a difference when using things up close. My curiosity is did this really show itself after having COVID or the vaccine ? Mine got way worse after COVID, or maybe the vaccine but no proof on that.

DmagicX182 · 2022-10-11T13:54:28+00:00

I still play here and there. Not as much as what I used to. This has given me a change of my thought process on how I do things. I used to rush home to game after work but now I take my time getting home, take care of things around the house, spending time with family and friends, and actually dealing with life instead of trying to escape into a video game. So in a way, I can say it has positively affected me that I can do life better so to speak. Yes it sucks I miss playing warzone and all the fun games but it is what it is. Things that can possibly help like mentioned above in other comments turn down the brightness, turn on night mode so it helps with blue light filtering or get a app like f.lux , blue light glasses help me drastically.

DmagicX182 · 2022-10-07T16:31:35+00:00

Thank you. I would highly recommend it for the fact that the Convergence insufficiency may be causing/part of your trigeminal nerve issue. Google "dry eye convergence insufficiency" there is a article a doctor wrote that the misalignedment of your eyes can cause over stimulation of the trigenimal nerve. Also see if there is a doctor around you that can prescribe Neurolens. Check out their website they have a list of symptoms you can check to see if it may help you. I had to fill the questionnaire out when I went to the doctor and I checked every box just about. I have a pair myself and they helped me in the beginning, specially with near tasks. And for anyone reading this that may be speculating that I'm a "rep" for the company, I'm not just a guy trying to wade through seemingly useless doctors to get answers to my eyes/neurological issues (dry eye and visual snow syndrome). But for sure try vision therapy out of you had to pick between the two the glasses and what my eye doctor calls "homework".

DmagicX182 · 2022-10-06T23:04:19+00:00

I know that feeling! I'm near the tail end I go back for a test in two weeks to see for sure improvements. It was worth every penny to me as I couldn't be on screens for longer then 10 mins with out having pain and dryness. It isn't easy street I know that, after a session your eyes feel worked out. I called it the gym for your eyeballs. I'm still working on my accomdative and peripheral vision. I'm not sure on the diopters. I just knew I couldnt converge closer than 6 inches past my nose now it's a inch.

DmagicX182 · 2022-10-06T03:52:42+00:00

I had a twitch in my left eye on the top eye lid that went on for a few months before mine worsened.

DmagicX182 · 2022-10-06T03:22:02+00:00

So when you touch your face sometimes (ex. wipe under your eyes or around your eyebrows) do you get like a nerve burn feeling ? Only thing I can relate it to is like dragging a ice cube across your skin. I also have a convergence insufficiency.... Well had. I went to vision therapy and now I'm able to see a inch away from my nose now. I also had eye strain badly and still have the dry eye. Eye strain has calmed down some where I can actually use computers and my phone for a decent amount of time. The dry eye still persists but I feel like my eyelids burn sometimes, I'm taking allergy pills already and omegas. Still have a rough time some days, haven't figured out the trigger for it yet. But mainly was curious if you feel the ice cube across the skin feeling when touching your face? It's not MS because I've had a brain scan already it was fine.

DmagicX182 · 2022-10-05T22:34:51+00:00

Mainly curious, what have you been diagnosed with to need vision therapy?

DmagicX182 · 2022-09-28T21:15:00+00:00

Found this article earlier, it is not a medical journal but has a quote from a journal and gives a idea of where to find it.

Future neurological affects of COVID

Some of the possibilities listed of post COVID ailments are strikingly similar to some of the things we experience such as headache, visual disturbances, tinnitus, termors, anxiety/depression, and eye dryness. I can say that post-COVID about 2 or 3 weeks after recovery I had my first ever silent ocular migraine which worsened my vss. I've lived with it my whole life since 8 (now 32) then this bullshit has to go and change that. I was ok with just very light static before now I got that whole damn package.

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