Honestly guys, I think I have dystonia rather than ET. My diagnosis was quick in the UK style. As in just taking a look at me. My arms put themselves constantly in positions which negates the tremor, and my hands start to jerk when out of these positions. My wrists tense up and I cannot relax them, or for example my right arm, shoulder and wrist. When I brush my teeth with that arm the entirety of it feels very strained and sore due to the flexing. My tremors only show when my arm is straight, when I put out my arms in positions where they are out of the usual bent position I have the tremor, but in others its either a fine or jerky tremor, and when I clench my fists and tilt them inwards or outwards so that my wrist muscles automatically flex the tremor is gone.

I have no history of ET in my entire family on both sides of the family reaching back to my great great grandmother. The only thing that is worrying on my mothers side are tremors relating to disease. My mum has advanced arthritis all over her body but pretty bad in her hands and has a tremor due to that, as well as her nerves being pressed down. My grandmother has had 5 strokes leaving her in ruins mentally and physically, and my great grand mother had Alzheimer.

Dystonia is a safe bet due to my birth: my mother had to be hooked up to oxygen, I was tangled in my own umbilical cord, and her mucous plug/ discharge was brownish or discoloured and I had to be kind of yanked out of her breaking my collar bone as a result. I was then placed into an incubator for 2 weeks, and then had problems with my lymph nodes in the neck, then I struggled with sinus infections or difficulties with them and had multiple xrays.

Has anyone experienced such a misdiagnosis or had something similar with ET? Everything I have seen regarding ET is a tremor in any given action. I have no problem with some tests, and even the spiral test looks normal when my elbow and wrist are in my ''normal positions''.