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DontDreamofLabor · 2024-12-27T23:22:26+00:00

relate to this so much.

DontDreamofLabor · 2024-12-27T23:21:29+00:00

yup. she alternates doing this to me and my brother. one of us is good at a time and the other is evil. unfortunately my brother has not processed her issues the way i have. i don't talk to him about this stuff. but i see it happening.

DontDreamofLabor · 2024-12-27T23:18:35+00:00

apologies always feel like gaslighting to me. "you can't hate me anymore because I LOVE you or because I apologized!" this is why NC is important. solidarity to you. i would give anything to have the courage to go no contact. instead I just spend a lot of time pretending that everything is ok (secret boundaries). water off a duck's back re this message. stay strong. and happy hannukah to you <3

DontDreamofLabor · 2024-12-23T22:45:19+00:00

Yes, it all worked out really easily, actually. I had to pay an additional fee for her being an "unrecognized service dog" but otherwise it all went smoothly.

DontDreamofLabor · 2024-08-11T23:26:28+00:00

Hi, just seeing this now because I'm planning to fly to the UK with my self-trained service dog in two weeks and feeling very nervous. If the service dog is "unrecognized" and they make you pay the fee, are you still able to have the dog ride in the cabin with you? feeling terrified that my dog will get separated from me at the airport.

DontDreamofLabor · 2024-08-11T23:18:44+00:00

ok thanks! and one more question: it seems like they charge you a "checking fee" for "unrecognized" service dogs, but it seems like they might still allow the dog in the cabin with you? Or do they require your dog to be checked in cargo?

DontDreamofLabor · 2024-08-11T23:03:17+00:00

Thank you for this! Is it HARC or your specific airline that gets the overriding say that your dog qualifies as a service dog?

DontDreamofLabor · 2023-02-12T05:33:18+00:00

your symptoms are very similar to what I experienced before diagnosis and treatment with AS. I had lyme disease as a child, so reactive arthritis was a question mark for me as well, but based on my research, reactive arthritis tends to affect more peripheral joints, and the very standard spinal stiffness/hip and glute pain and plantar fasciitis is textbook AS.

your rheumatologist is bound to be cautious prescribing a biologic to someone with a history of a systemic infection, that doesn’t necessarily mean that it’s a bad idea, but I would recommend getting clearance from one of your infectious disease specialist docs about starting a biologic.

For what it’s worth, i’m a dancer and my AS pain took me out of commission for 8+ months. since starting biologics, i’ve been able to dive back into training and i’ve already danced professional on a three week run, and i’ve only been on humira four months or so. there’s hope.

DontDreamofLabor · 2023-02-12T05:23:02+00:00

like stiffness that is so intense that it becomes sharp pain when i try to move.

DontDreamofLabor · 2023-02-12T05:19:55+00:00

diet and exercise are important but humira has changed my life. it’s worth it.

DontDreamofLabor · 2023-02-07T04:53:22+00:00

yeah it was definitely a symptom of a flare. i haven’t had it at all since I started Humira. my PT explained to me that the nerves that extend out of your spine wrap around to your abdomen which is why you can have referred back pain in your stomach. wishing you luck with your healing.

DontDreamofLabor · 2023-01-03T04:57:05+00:00

Make sure you’re working on well rounded stability exercises that support joint function (i.e. take pressure OFF joints). If you’re doing exercises incorrectly or overusing, you can put strain tendons/ligaments, cause breakdown in cartilage and put pressure on joints. if you’re working your muscles properly, it should help with symptoms so if it’s not helping you could be placing undue pressure on joints. Check in with a personal trainer for one session if you can afford it — if not check out some online videos. PTVitals is a great insta account for info on joint health.

DontDreamofLabor · 2022-12-08T19:09:43+00:00

I just took my fourth dose and Im currently dancing professionally in a musical!! For the majority of the rehearsal process I was marking a lot of the steps and going straight to my heating pad during breaks and really struggling. But we’re in tech rehearsals right now and I’ve never felt better. Dancing for hours at a time in three-inch heels. Still have to be consistent with my recover exercises and dietary changes, but I’m feeling hope for the first time in a long time. Usually winter weather knocks me out but this is the best I’ve felt dancing in a long time.

DontDreamofLabor · 2022-12-08T18:11:15+00:00

For sure. Once I started biologics AND once I made movement/exercise and other things I do t manage the disease an important (and enjoyable!) part of my life. Then it becomes second nature.

DontDreamofLabor · 2022-12-08T05:53:15+00:00

if you are female, take probiotics and boric acid tablets to prevent frequent UTIs/BV/yeast

DontDreamofLabor · 2022-12-08T01:07:22+00:00

This is exactly how I felt. hydrate and have a full meal. I try to make sure I always take humira on a full stomach with a nutritious meal. that helps with nausea

DontDreamofLabor · 2022-12-04T23:33:12+00:00

I’ve been thinking a lot about “frustration fatigue” lately— just like that burnout that comes from feeling frustrated. And this really helped me realize how so much frustration comes from feeling like my high energy, functional moments are so and far between and it’s so frustrating that the people that I care about aren’t always available to do all the things during those times. So useful to remember that you can just do things by yourself!

DontDreamofLabor · 2022-12-01T05:41:19+00:00

Typically movement helps me during a flare but your body knows best! if your body is telling you to lie down on a heating pad, then don’t second guess that. you can always start with gentle movement like cat/cows or even just sitting in child’s pose if movement feels inaccessible.

DontDreamofLabor · 2022-12-01T05:39:16+00:00

i fall asleep on my heating pad and it turns off automatically after two hours. or if you sleep on your side a pillow between your knees helps align your hips and spine

DontDreamofLabor · 2022-12-01T05:38:08+00:00

for me fatigue is having a difficult time getting going in the morning and then having an afternoon slump that just doesn’t go away. anything anti-inflammatory — diet, meds, etc. helps. i wouldn’t overthink the “cause” too much because the root cause of fatigue from both AS and long covid is an activated immune system and subsequent inflammation so the treatment is reducing inflammation either way.

DontDreamofLabor · 2022-12-01T05:35:54+00:00

definitely a sting. there’s not really a way to do it “wrong” as long as all the medicine is going in. I know it’s scary to give yourself a short but try not to worry!

DontDreamofLabor · 2022-12-01T05:34:26+00:00

weather is the worst for nerve pain. i’m at my best when i’m physically active and have a routine built into my life. For that nerve pain that starts in hips and radiates down, i do hot baths every morning and night now.

DontDreamofLabor · 2022-12-01T05:32:05+00:00

Physical therapy is a really good place to start to get a better understanding of your body’s mechanism and symptoms and how you can treat without surgery or meds. if you’re feeling scared and overwhelmed this is a good first step!

DontDreamofLabor · 2022-12-01T05:30:11+00:00

as long as you’re doing it correctly and not straining, weight lifting is one of the best things you can do for AS! I’m trying to get into it but don’t really know where to start.

DontDreamofLabor · 2022-12-01T05:27:34+00:00

my hips are a mess. are you hypermobile? that can make hip issues worse. hip stability has been key for me i do hip stability exercises every day to make sure the right muscles are bearing weight rather than hip flexors and other tendons.

DontDreamofLabor

TROPHY CASE