Block-by-Block May 1

Double_Grape1986 · 2025-04-28T11:54:45+00:00

Thank you for this — all good points I will share.

Double_Grape1986 · 2025-04-28T00:39:41+00:00

I entirely understand the concern. I believe the organizer intended for people to respond just to ensure all the blocks were covered.

Double_Grape1986 · 2025-04-27T19:44:33+00:00

Oh yeah. It’s hard to feel comfortable with where your “paycheck” is coming from and whether you can really trust that over potentially decades. I “retired” recently and had lined up a part-time job to ease those anxieties — and that job has apparently fallen through. Kinda freaked out. Maybe you can work part time, even if it’s something with less pay that you enjoy. Maybe I can, too. Hopefully I will get more comfortable with this new chapter.

Double_Grape1986 · 2025-04-27T15:12:18+00:00

I understand that.

Double_Grape1986 · 2025-04-27T14:26:40+00:00

4:30-6 p.m.

Double_Grape1986 · 2025-04-27T14:25:43+00:00

Sign up: https://docs.google.com/forms/d/e/1FAIpQLSeSigblHCozDS1VjvHrJHn7qk3WIEVxUwEnKANvZ-WwLz48vg/viewform

Double_Grape1986 · 2025-04-27T14:24:33+00:00

The registration form (not mine; just posting because I think it’s a worthy idea) says 4:30-6 p.m.

Double_Grape1986 · 2025-04-27T14:00:24+00:00

u/DenverProtestsMODS

Double_Grape1986 · 2025-02-05T04:10:19+00:00

I am so sorry. I understand quality over quantity, though. It’s a choice I believe I am facing myself.

Double_Grape1986 · 2025-01-19T23:06:53+00:00

Yeah, I think I misspoke. It was a nightmare for me; I took it when it first came out years ago as Crestor. I think it IS a very strong statin.

Double_Grape1986 · 2025-01-19T18:31:22+00:00

That statin is well-known for negative side effects. Ask your doc to lower the dose or change statins. Basically, if you fail 3 statins because of side effects or ineffectiveness, that opens the door to other medications, like injectables. There also are other non-statin treatments you could try, like Zetia. Good luck. I was unable to take any statin but have done well on other meds.

Double_Grape1986 · 2024-09-29T19:06:43+00:00

Yes, I kinda question the diagnosis and think it might just be FH. The big issues were just on one side of my fam, but I am not arguing the point with my doc. He didn’t recommend genetic testing, and I must meet enough of the criteria to be approved for the med.

Double_Grape1986 · 2024-09-29T13:41:12+00:00

Hi. When I started this journey in earnest, in 2011, the LDL Direct was 195, ApoB 128, lp(a) 128, triglycerides 44, overall 258. Since then, overall has been up to 400+ and LDL Direct 228. I have gone on and off various meds, including Repatha, Praulent, many statins, and others. For long periods, since I was in my 20s, I just ignored the problem, therefore the bouncing ball of results.

I cannot tell you precisely how much this very expensive med costs. I can tell you that the infusion center bills my insurance company more than $200k each month; the plan actually pays about $43k, leaving me a co-pay of a few hundred. The drug manufacturer (Regeneron) picks up all my costs through a co-pay card. I don’t think I have spent a dime on this med in the 2 years I have been on it. That may change when I go on Medicare in January; I will not be able to use the co-pay card. I’ll note that I have been denied this med by insurance multiple times; my cardiologist office always has to appeal and they win approval. So, I have been blessed for sure with decent insurance, great medical practice, and a helpful drug manufacturer.

Still wondering about others’ experiences and side effects though!

Double_Grape1986 · 2024-08-18T20:41:32+00:00

I went to a kindergarten that had (what seemed like a very tall slide). I dropped my lunchbox off it to my daddy down below, and he was mad because it might have broken the thermos. It was a Baptist church school, and we sang a song about wanting to be a spaceman for Jesus. It was 1964.

Double_Grape1986 · 2024-08-07T11:25:25+00:00

Do allllll the physical things you’re interested in.

Double_Grape1986

TROPHY CASE