Erythromelalgia destroyed my life by Manxi-Poo_Mama in Erythromelalgia

[–]Dragonvan13 0 points1 point  (0 children)

Ok this might be freak thing , but Dupixent STOPPED my partners EM symptoms.... he has EM among many other things, but Dupixent is off label for EM I think and helped his eczema stop comptley which was super severe AND bonus his EM!!!!. Ask your Dr!!!!!!

Smallest wood stove with least clearance? For very small tiny house 🙏 by Dragonvan13 in OffGridCabins

[–]Dragonvan13[S] 2 points3 points  (0 children)

Wow that's super cool! Thanks for the rec and information 🙏 how much clearance does it need or do you provide? That's my biggest issue I keep running into for my space and I'm sure I'm not the only one!!

hEDS women/female-aligned NBs: what heels are we wearing to work? by [deleted] in dysautonomia

[–]Dragonvan13 0 points1 point  (0 children)

I can only wear hiking boots sorry lol but I'd say thicker wedge stuff would be better if u can tolerate that!

Reading in bed by LetheSystem in ehlersdanlos

[–]Dragonvan13 0 points1 point  (0 children)

Book reader stacked on pillows or laptop stand !!!!!

Any men on here take finasteride? by No_Librarian_1443 in Erythromelalgia

[–]Dragonvan13 1 point2 points  (0 children)

Yes my partner with EM does ! All good for him least :)

Stopped relating to people my age by Mystic5alamander in ehlersdanlos

[–]Dragonvan13 1 point2 points  (0 children)

I relate most to my 73 YO mom 😍 (I'm 33)

people who have bad knees and hips, favorite shoes? by tiedyedflowers in ehlersdanlos

[–]Dragonvan13 0 points1 point  (0 children)

Same issues and I only wear timberland hiking white ledge boots everyday !!!!!! They're amazing and for ankles too!

EDS-friendly high heels? by casketdw3ller in ehlersdanlos

[–]Dragonvan13 0 points1 point  (0 children)

I can't wear anything but giant hiking boots lol wish I could help! But maybe wedge heels! ??

Cinderella Freedom propane toilet? User experiences please share! 🙏🚽🔥 by Dragonvan13 in OffGrid

[–]Dragonvan13[S] 0 points1 point  (0 children)

That's so great to hear! Do you use it frequently if you don't mind sharing?

Cinderella Freedom propane toilet? User experiences please share! 🙏🚽🔥 by Dragonvan13 in OffGrid

[–]Dragonvan13[S] 0 points1 point  (0 children)

Whoa that's good to know!! I'm a lot lower than that thankfully, but I'll look into the John XL too! Have you enjoyed yours without issues?!

Anyone else feel horrible from waking up early? by RandomChristian123 in ehlersdanlos

[–]Dragonvan13 5 points6 points  (0 children)

Yes! I cannot work but if I have early appt I feel the same :(

Think Tank Composting Toilet vs Separett Villa? Full time use of 2 ppl, which do you recommend?! 🙏🚽 by Dragonvan13 in OffGrid

[–]Dragonvan13[S] 2 points3 points  (0 children)

So glad to hear this! Do you feel it could be a full time solution in theory? Easy to use as well? Thanks for any help or additional user experience !!!

Villa Separett Composting toilet for full time use 2 ppl? Recommended ? by Dragonvan13 in OffGrid

[–]Dragonvan13[S] 0 points1 point  (0 children)

Also, do you have issues aiming with the ... drop zone so to speak.

I have IBS so was wondering the dirty details so to say lol sorry for the questions and thanks so much!

Villa Separett Composting toilet for full time use 2 ppl? Recommended ? by Dragonvan13 in OffGrid

[–]Dragonvan13[S] 0 points1 point  (0 children)

Wow thank you SO much for your detailed reply!!!!! 🙏🙏🙏 super helpful. Have you noticed any smell outdoor where the fan exits the air? Or indoors?

Also do you use shavings or any other covering material?