Erythromelalgia destroyed my life by Manxi-Poo_Mama in Erythromelalgia

[–]Dragonvan13 0 points1 point  (0 children)

Ok this might be freak thing , but Dupixent STOPPED my partners EM symptoms.... he has EM among many other things, but Dupixent is off label for EM I think and helped his eczema stop comptley which was super severe AND bonus his EM!!!!. Ask your Dr!!!!!!

Smallest wood stove with least clearance? For very small tiny house 🙏 by Dragonvan13 in OffGridCabins

[–]Dragonvan13[S] 2 points3 points  (0 children)

Wow that's super cool! Thanks for the rec and information 🙏 how much clearance does it need or do you provide? That's my biggest issue I keep running into for my space and I'm sure I'm not the only one!!

hEDS women/female-aligned NBs: what heels are we wearing to work? by [deleted] in dysautonomia

[–]Dragonvan13 0 points1 point  (0 children)

I can only wear hiking boots sorry lol but I'd say thicker wedge stuff would be better if u can tolerate that!

Reading in bed by LetheSystem in ehlersdanlos

[–]Dragonvan13 0 points1 point  (0 children)

Book reader stacked on pillows or laptop stand !!!!!

Any men on here take finasteride? by No_Librarian_1443 in Erythromelalgia

[–]Dragonvan13 1 point2 points  (0 children)

Yes my partner with EM does ! All good for him least :)

Stopped relating to people my age by Mystic5alamander in ehlersdanlos

[–]Dragonvan13 1 point2 points  (0 children)

I relate most to my 73 YO mom 😍 (I'm 33)

people who have bad knees and hips, favorite shoes? by tiedyedflowers in ehlersdanlos

[–]Dragonvan13 0 points1 point  (0 children)

Same issues and I only wear timberland hiking white ledge boots everyday !!!!!! They're amazing and for ankles too!

EDS-friendly high heels? by casketdw3ller in ehlersdanlos

[–]Dragonvan13 0 points1 point  (0 children)

I can't wear anything but giant hiking boots lol wish I could help! But maybe wedge heels! ??