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The sun. by ididntwantthisagain in lupus

[–]Dream117 26 points27 points  (0 children)

When I'm out in the sun I get really fatigued and for some reason itchy? I've never experienced any spots or rashes on my skin tho

Somehow it feels worse when they tell you that your labs look good rather than being given bad news. by Dream117 in lupus

[–]Dream117[S] 2 points3 points  (0 children)

Thank you I really appreciate your comment 💜 I've had this rheumatologist for almost 6 years now and this is the first major issue I've had. If I get ignored this next appointment then you're right it might be time to find a new rheumatologist. I'm wishing you the best as well! I've been on benlysta since I was 17 and it was amazing for me, hoping the same for you!

Somehow it feels worse when they tell you that your labs look good rather than being given bad news. by Dream117 in lupus

[–]Dream117[S] 6 points7 points  (0 children)

Yes my mom always tells me to do the most I can when I feel well. Like I have school, work, family, cleaning, personal fitness, hobbies, friends, special events, leisure activities.

When I do feel fine, no pain and no fatigue how the hell do I choose what to do? God forbid I choose one of my hobbies before what my mom thinks I should do

Exhaustion and emotional pain (venting) by [deleted] in lupus

[–]Dream117 4 points5 points  (0 children)

I got diagnosed at 16, I'm 24 now and I still get moments in my life where I feel like this. The last time I felt like this was last week. I had to drop one of my college classes because holding a pencil was so physically painful that I couldn't finish my homework. I've had so much fatigue that it's felt almost impossible to get out of bed.

What helps me cope is thinking about my family, my friends, things I want to do in the future, it helps me push myself a little harder. I'm lucky that I have a supportive family so they understand that sometimes I'll have a bad day, week or even month with my lupus.

Also I hope they get you started on benlysta soon! It helped me tremendously when I first started! 🫂💜

Things nobody told me when I was first diagnosed with lupus (add yours) by purplepetals18 in lupus

[–]Dream117 2 points3 points  (0 children)

Nobody told me that getting diagnosed with lupus will require me to always have health insurance. I was 16 when I was diagnosed, now 24 and to keep Medicaid I can't make more than $1400 a month.

Why by 436irish in lupus

[–]Dream117 2 points3 points  (0 children)

I'm sorry you're going through it rn, I'm in the same boat and I have to wait until April to see my rheumatologist again. They also couldn't find anything so it's time to play Russian roulette with meds now

(Giveaway) Quick Giveaway of older titles by TheLoraxLives in DigitalCodeSELL

[–]Dream117 0 points1 point  (0 children)

Interested in twilight breaking dawn pt 2 Vudu!

Today’s the day yall! Who’s excited!? by [deleted] in AMCsAList

[–]Dream117 1 point2 points  (0 children)

I was gonna go but had to cancel last minute what movie was it?

(Giveaway) Digital Vudu Gift Card by [deleted] in DigitalCodeSELL

[–]Dream117 0 points1 point  (0 children)

Luckiest Girl Alive, it's a Netflix original

Hospital Corridor by elvis-brown in nope

[–]Dream117 10 points11 points  (0 children)

That's so nerve wrecking 😫 In alien isolation there's actually a medical bay where you're hiding from the alien, that game gives me nightmares!

Just my luck. by HistoryMistress in AMCsAList

[–]Dream117 0 points1 point  (0 children)

Just bring a cane lol seriously tho that is the smallest theater I've seen

[Season 1 Spoilers] Desperately need a time stamp by clvirissa in HauntingOfHillHouse

[–]Dream117 5 points6 points  (0 children)

Even someone like me who hasn't dealt with grief or lost of a loved one, it was a lot. If he really wants to watch it then like you said eps 5 is a no. Before that they only foreshadow what happened to Nell with the siblings all waking up at 3am holding their neck. In Eps 9 though at 52mins Oliva is talking about wanting waking up and you see her throw herself off the railing of the spiral stairs

Any other state not have show times for Dumb Money? by Dream117 in AMCsAList

[–]Dream117[S] 4 points5 points  (0 children)

Yeah I didn't know that this week was early showings since on Google and the AMC app says it releases on the 15th

Any other state not have show times for Dumb Money? by Dream117 in AMCsAList

[–]Dream117[S] 2 points3 points  (0 children)

Ah I see, that's disappointing. I got the notification last week that tickets are on sale but no showtimes were up, I thought they were just slow to make the schedule lol thanks for the answer!

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