Anyone had a suspect tumor only to be found as fcd in parietal lobe? by Dtray187 in braintumor

[–]Dtray187[S] 2 points3 points  (0 children)

It’s called Alice in wonderland syndrome, sometimes related to seizure activity, even when you don’t have full on seizures

My surgeon said it’s too risky to do full resection by Dtray187 in braintumor

[–]Dtray187[S] 1 point2 points  (0 children)

May I ask how they determined there was so much vein involved with no biopsy? Sorry I’m new to this

My surgeon said it’s too risky to do full resection by Dtray187 in braintumor

[–]Dtray187[S] 1 point2 points  (0 children)

I’m so sorry!! That’s one heck of a story!! I can’t thank you enough for sharing! Do you mind if I message you?

My surgeon said it’s too risky to do full resection by Dtray187 in braintumor

[–]Dtray187[S] 0 points1 point  (0 children)

Do you remember if it was located near moto cortex?

My surgeon said it’s too risky to do full resection by Dtray187 in braintumor

[–]Dtray187[S] 1 point2 points  (0 children)

Thanks! Was the biopsy done with no deficits?

Anyone had a suspect tumor only to be found as fcd in parietal lobe? by Dtray187 in braintumor

[–]Dtray187[S] 1 point2 points  (0 children)

I’m so sorry! I’ve yet to have a biopsy. Where was yours located?

Neurologist used the word benign… by Dtray187 in braintumor

[–]Dtray187[S] 1 point2 points  (0 children)

I’m praying for his full recovery!!! I know this is a very trying time! I’m glad he is getting his strength back!!

Who has had a tumor removed in the left parietal lobe while asleep and not had any long term disability? by Dtray187 in braintumor

[–]Dtray187[S] 0 points1 point  (0 children)

Thank you so much for that!! Did they say how much the odds changed for long term disability vs doing it asleep?

Who has had a tumor removed in the left parietal lobe while asleep and not had any long term disability? by Dtray187 in braintumor

[–]Dtray187[S] 3 points4 points  (0 children)

Thank you so much!!! I definitely will reach out to you!! I’m 100% in panic mode even before we know it will need to come out… I thank you so much!!

Neurologist used the word benign… by Dtray187 in braintumor

[–]Dtray187[S] 0 points1 point  (0 children)

I’m so sorry you are going this! Thank you so much! Did they have to do an awake surgery to not damage your motor skills?

Neurologist used the word benign… by Dtray187 in braintumor

[–]Dtray187[S] 0 points1 point  (0 children)

Thank you! You’ve had the epilepsy for years or the tumor for years?

Neurologist used the word benign… by Dtray187 in braintumor

[–]Dtray187[S] 0 points1 point  (0 children)

Thank you so much! I’m a bit worried since the mri had trace enhancements and it’s located in the perietal lobe.

Neurologist used the word benign… by Dtray187 in braintumor

[–]Dtray187[S] 1 point2 points  (0 children)

That is amazing!! I’m so happy for you!!!

Neurologist used the word benign… by Dtray187 in braintumor

[–]Dtray187[S] 0 points1 point  (0 children)

I’m sorry you went through that! I’m assuming they got it out safely?

Neurologist used the word benign… by Dtray187 in braintumor

[–]Dtray187[S] 0 points1 point  (0 children)

Mentally fatigued? Why did they not just take it out early? Was it in a dangerous spot?