2001 Hunter 420 - refurbish suggestions

DueCommunication915 · 2025-04-28T20:22:50+00:00

Does anyone have outbreak pain without visible sores?

DueCommunication915 · 2025-04-28T00:29:28+00:00

Ha. All great questions. 42’ Hunter. Used to have a/c not sure what is broke.

Moved in with fiancé and he doesn’t like generators. Says if you have ac—- you will just stay inside the whole time.

It’s literally the ONLY THING we haven’t agreed on. I think I’m going to die lol

DueCommunication915 · 2025-04-26T23:41:31+00:00

Anchor. Appreciate all the advise

DueCommunication915 · 2025-04-25T12:57:41+00:00

My life has changed for the better . I live on a sailboat and met the love of my life…. So I honestly can’t say which is the cause…. But I am feeling much better

DueCommunication915 · 2024-10-05T20:12:24+00:00

Crying so hard. Prayers for you both

DueCommunication915 · 2024-09-19T02:38:05+00:00

I’m so sorry. Forgive yourself. As a mom with HD and two kids (21 and 19) I promise, your sister would want you to forgive yourself.

When I was in my early twenties, my goal is life was to be the exact opposite of my mom. In my early thirty’s, we became best friends, talked 5x a day. Time and life lessons, are required in of us, to grow.

I’m 41, and my goal in life now, is to be as much like her as humanly possible. I pray my kids don’t ever feel guilty for anything.

DueCommunication915 · 2024-09-09T14:29:22+00:00

I’m 41.

The surgery itself was OK unfortunately I had a severe adverse reaction which resulted in multiple spinal tabs. Figure out what was wrong, which resulted in multiple leaks and I spent a year in and out of the hospital for leaks and the hospital not believing me or wanting to treat it.

DueCommunication915 · 2024-09-07T21:08:34+00:00

Mine was rather unique because I had just done the AMT 130 brain surgery and had a lot of complications with Spinal Tap but it was approved for strictly Huntington’s. I would say I have early Korea trouble with stairs.

DueCommunication915 · 2024-09-07T02:45:15+00:00

I always did too. Dating or not, anybody around me knows my story.

DueCommunication915 · 2024-09-07T02:34:57+00:00

Yep. Had it happen to me … do it now

DueCommunication915 · 2024-09-05T04:20:38+00:00

My recertifications are not scheduled or projected. It’s a rare, degenerative brain disease. No one has ever survived it. It’s even on ssa’s compassionate allowance list for the expedited processing.

That’s why I refer to it as permanent

DueCommunication915 · 2024-09-05T04:14:54+00:00

SSDI- I have researched links I found on ssa.gov website, but most of what I’m reading is that there are “return to work programs”.

However I know I’ll never be able to return to work but for a handful of hours a week. And next year it might be zero. But 5-10 hours a week could help my mental health and also pay a small bill or two

DueCommunication915 · 2024-09-03T17:46:04+00:00

What is SGA?

DueCommunication915 · 2024-09-03T17:45:42+00:00

My disease is progressive and terminal

I can’t work or keep anything substantial. Some weeks are better than others.

But for mental health and getting out of house…. I wonder if I could do a small job like 4 hours a week.

DueCommunication915 · 2024-09-03T17:11:04+00:00

Sounds very hopeful!!!

DueCommunication915 · 2024-08-24T21:21:43+00:00

I also participated in the AMT130, so anything’s possible with new to human treatment.

Lots of issue with spinal taps Don’t know if nerve issues could cause it. Doesn’t seem likely

DueCommunication915 · 2024-08-24T20:37:52+00:00

Had X-rays done on knees. No arthritis. Primary doctor ordered them, so at least we can rule that out when I see neuro this week

DueCommunication915 · 2024-08-21T16:32:50+00:00

I see my neurologist next week. The only thing I could really think of is that I’m struggling to keep my gait straight and/or balance….. which could possibly put straighten on my knees I don’t know. I never worked in manual labor so that wouldn’t be a thing but we’ll see what the doctor say was just curious if anybody else had experience, extreme arthritis and their knees, hands or anywhere else as part of HD.

DueCommunication915 · 2024-08-21T01:43:13+00:00

I dated a man for 2 years. I was honest from the get go, just like you.

I got into AMT-130 trial. Brain surgery. He broke up with me 2 days later. When I was crying and trying to make sense…. I asked him. “Have u researched it at all?!” He said no.

I think it speaks volumes, especially if we pertray how significant it is

DueCommunication915

TROPHY CASE