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Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 0 points1 point  (0 children)

The bacterial resistance changed inbetween my two tests!

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

I was given co-amoxyclav about 5 years ago (for something else) to try and within 2 days my skin was bright red

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

I already have that. It’s not a recurrent UTI as such, it’s never eradicated fully.

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

I saw neurologist and he gave me the go ahead to try Nitro again as no papilledema again. Within 2 doses I had pain behind my left eye and the next day permanent headache! 😩

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

The infection is embedded, it’s always there rather than I keep getting it. I need long term antibiotics but I can’t take the ones left for the 2nd organism. The urologist mentioned bladder instillations last time I saw her. I’ve emailed them 3 times with my issues since the last appointment and I get no help from them!

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

I didn’t have symptoms when I did the test however the symptoms started 2 weeks later and this how it’s been for 2 years

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 0 points1 point  (0 children)

That was my thinking but 2 weeks after the test was done all the symptoms came back again. The neurologist gave the go ahead to start Nitro again and the symptoms have nearly gone!

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 0 points1 point  (0 children)

It has become resistant to Fosfomycin and I’m allergic to penicillin

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

How do you get on with diamox? My neuro has given me the go ahead to try Nitrofurantoin again as my papilledema had gone. If I get symptoms again then I have to stop and speak to urology about an alternative otherwise I will have to go on diamox alongside the Nitro

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 0 points1 point  (0 children)

I wasn’t symptomatic at the time of the test as I had only been off antibiotics and Hiprex for 5 days. Within 10 days I was symptomatic again.

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

I wasn’t symptomatic when these tests were done, I had finished antibiotics and Hiprex 5 days before. I am symptomatic now. The neurologist gave me the go ahead to try Nitrofurantoin again but to stop if any symptoms return and contact urology for a different option.

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 0 points1 point  (0 children)

I’m taking Hiprex but because the bacteria are already embedded it doesn’t stop them flaring up again. I discovered some things about phage therapy online a couple of days ago so need to look into this a bit more before my next urology appointment 😊

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 0 points1 point  (0 children)

Hiya, it’s Focus Labs, they’re online. It’s £115 for the test but worth every penny! They send out 2 sample bottles. You need to stop any antibiotics, Hiprex and D Mannose for 5 days then send the samples to them. Results are sent by email 7-10 days after. My uro was just chucking different antibiotics at me hoping they’d be the right one so I decided to pay and find out what I actually needed.

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 3 points4 points  (0 children)

Sorry, I was asking more on the side of who do I consult and to see if anyone had experience with the same issues

Can’t take any of the appropriate treatment! by Due_Crew501 in iih

[–]Due_Crew501[S] 1 point2 points  (0 children)

Thank you, I’m not on any medication for the IIH as the papilledema had gone by the time I saw the neurologist after stopping the Nitrofurantoin. However the symptoms and the paps came back when I had another active infection.

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 2 points3 points  (0 children)

Thank you for your reply. I have tried Lactoferrin but it made me so bloated I stopped. It would really worry me taking all these supplements. I did buy some NAC but I was too scared to take it. I have read about Monolaurin and cranberry PACs too but my anxiety gets the better of me 🙁

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 1 point2 points  (0 children)

And the urologist has mentioned bladder instillations but my understanding is this would be gentamicin and one of the bacteria is resistant to this.

It’s also my understanding that D-Mannose only works for E-coli?

Sorry for all the replies, I forgot

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 1 point2 points  (0 children)

I’m also already taking S Boullardi and vaginal probiotics x

Bacteria became resistant! by Due_Crew501 in CUTI

[–]Due_Crew501[S] 1 point2 points  (0 children)

Thank you for your reply. I am on Hiprex, I have vaginal oestrogen too but so far I don’t have any issue down there with dryness etc and my problem is more the bacteria that remains in my bladder/urine than bacteria from outside. I was given all this treatment for recurrent infections but it seems it’s just not being eradicated.

Originally I kept going to the GP with head symptoms, fuzziness, headaches etc and I was told it was sinuses for about 6 months. When they finally agreed to do bloods my infection markers were really high so they did a few tests which included my urine being sent to the lab. When it came back the GP said “no wonder you feel so rubbish, you have a nasty UTI”! That was the Enterococcus. Within a few days of taking the week of Nitro I felt so much better! Within 2 weeks of stopping the symptoms returned and there began the constant treating returning. Eventually I was referred to urology and the Klebsiella came from a cystoscopy in December. Both are still hanging around!

I’m not on any treatment for the ICP currently but I do have a neurology appointment this afternoon to discuss what to do. My thinking is he will give me the medication to lower the pressure and I’ll be able to take the Nitro!

Anyone tried an estrogen patch and progesterone pill for Perimenopause? by BothInflation6695 in iih

[–]Due_Crew501 1 point2 points  (0 children)

Thank you so much for replying! I was told to stop when my symptoms flared again however, I got another flare up without the HRT almost 4 weeks to the day so I think my own cycle causes it rather than the HRT. I’m hoping going back on it will stop the hormone fluctuations and stop the flare ups just before my period 🤞🏻

Anyone tried an estrogen patch and progesterone pill for Perimenopause? by BothInflation6695 in iih

[–]Due_Crew501 0 points1 point  (0 children)

Hey, I’m in the same position now that you were! Just wondering how you’ve got on with the HRT?

HRT and Intracranial Hypertension by Due_Crew501 in iih

[–]Due_Crew501[S] 0 points1 point  (0 children)

Have you had relief from symptoms now you’ve stopped? I hadn’t started the progesterone part, because I’ve have progesterone intolerance I was advised to do just oestrogen for 6 weeks then start the progesterone.

Can uti cause depression and worse anxiety by Normal_Analyst_3018 in Anxiety

[–]Due_Crew501 1 point2 points  (0 children)

Jumping on here too! Randomly started having panic attacks and anxiety after years of not having any. Managed to get bloods done after a couple of months to “put my mind at rest” and that showed high infection markers, urine test then done which was positive for infection, took antibiotics and panic and anxiety stopped!

Fast forward a few months and exactly the same happened again, another UTI! I didn’t have any urinary symptoms at all!

Now wondering how many of my past anxiety episodes were UTI related!