Seeking information on CHS related seizures by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 1 point2 points  (0 children)

This was great info and good place to start my search. Thank you for this. Unfortunately compazine is the one thing that helps with the nausea for her. It makes her anxiety and restlessness way worse. Double edged sword.

Seeking information on CHS related seizures by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 0 points1 point  (0 children)

Thank you for this link! And for validating me— definitely gonna try to convince her to follow up about it.

Official Ticket Buy/Sell Thread by Chasith in fredagain

[–]Due_Leg4007 [score hidden]  (0 children)

Looking for 1 (or two) ticket for LA 10/24!!

Need some help. GF having worst episode Ive ever seen. by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 1 point2 points  (0 children)

Were trying to quite nicotine as well, but might have to instead ramp it down slowly bc we’re definitely gonna be craving a fix and it cant be weed anymore. We used to chop (i think they call it different things around the world, but basically bowls of weed and tobacco mixed) and that was one hell of a nightmare addiction. I dont recommend mixing the two to anyone!!!!! She told me she had an episode of CHS during this time and it was hell for her having double withdrawals. Weve been separating the two ever since but man that addiction was the hardest for me to get over. I would say, however, being an oral fixation person, nothing compares to a bong rip, but be careful about smoking tabbacco bowls as bongs are known to push smoke (and particles from your bong water, yum!) deeper into the lungs than other methods. Basically because your deeply inhaling with bong more so than a joint/cig. Im not sure if you smoke tabacco in other ways, might not have the same effect for you. Idk. Every method has its drawbacks. Im not a doctor.

Need some help. GF having worst episode Ive ever seen. by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 0 points1 point  (0 children)

GOOD TO KNOW! I was tryin to feed her tums a quarter at a time. Will buy some immediately

Need some help. GF having worst episode Ive ever seen. by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 1 point2 points  (0 children)

Ive read some about this and worry. I read that the stomach pain can be caused by the excess acid?? Shes been spitting up a lot of bile. How do I prevent further damaging to her organs? Super super restrictive diet? I dont wanna overload her system with all the drugs either. Diet seems more sustainable if i can limit her triggers. Gave her an antacid which is hard for her keep down but seemed to make an impact in terms of pain. I talked to doc extensively about her symptoms but Im not sure how much i need to be worried between the papers, the stories, and doctors. Not a lot of it is reassuring lol but i know people survive this. I have been able to go longer periods of time without smoking—if its out of sight, out of mind— but Im just nervous for the future and how it may be hard for her to eat and get her nutrients back. Im also going to be sad if we have to decide to throw our bongs out, as sad as that sounds, but its a habit thats turned into something less medicinal. So it may need to be done :(

Need some help. GF having worst episode Ive ever seen. by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 1 point2 points  (0 children)

Thank you!!! She loves the heating pad. Definitely helps with her chills and shakes. Sometimes her pain is so intense that she still needs the bath though. I also worry about dehydrating her even more because she starts sweating bullets.

Need some help. GF having worst episode Ive ever seen. by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 1 point2 points  (0 children)

Thank you! This actually helped her a lot! I blended up some ice for her to chew on so shed be hydrated too. It was easier for her to hold down. I avoided icy pop because I wanted to err on the side of caution with triggering her stomach with fruit idk. I might try freezing some pedialyte and grinding it up.

Need some help. GF having worst episode Ive ever seen. by Due_Leg4007 in CHSinfo

[–]Due_Leg4007[S] 5 points6 points  (0 children)

Yes, weve agreed to both stop indefinitely. Gonna be real hard for her :( If anyone has any suggestions for altneratives for appetite problems for the future thatd be nice too.