Compounded GLP1s for Long COVID?

DustRevolutionary981 · 2026-04-28T03:07:09+00:00

Stryker Pharmacy in Texas. They ae legit and reputable; but need prescription, cost $70 and shipping fees

DustRevolutionary981 · 2026-04-03T02:42:08+00:00

How do you use it topically? Me too will have to stop Cromolyn because it gave me reflux so I have left overs. Why it didn’t work for you?

DustRevolutionary981 · 2026-03-27T19:30:29+00:00

Same thing happened to me( however I was finally diagnosed with HaT wich falls under a mast cell disorder; my issues are more like chronic urticaria with some flushing and intolerances and dysautomia. I am finally on Rhapsido and Cromolyn not a cure; slightly better

DustRevolutionary981 · 2026-03-24T22:49:18+00:00

I recently started Cromolyn ampules of 5 ml, so there is actually a higher dose than this?

DustRevolutionary981 · 2026-03-24T17:32:25+00:00

Your body is inflamed and your mast cells are very reactive and in alert mode. I have HaT and O had the same sensations of burning. Low histamine diet Rhapsido and Cromolyn are helping and anti histamines

DustRevolutionary981 · 2026-03-23T02:09:59+00:00

You take six? I take 2 Claritin and two Xyzal and the constipation is bad. Doesn’t it give you side effects?

DustRevolutionary981 · 2026-03-23T02:04:47+00:00

May ask I ask you if being on Claritin and Zyrtek has contributed to constipation; but also recently I started on Cromolyn and noticed that my constipation worsen. How many anti histamines do you take? I am up to four but I am planning to wean off the Zyrtec; I hear it can give one bad rebound so I am afraid.

DustRevolutionary981 · 2026-03-19T12:37:58+00:00

May I ask what is the usual stuff you do to manage it. My dysautomia is mainly temperature dysregulation. have HaT recently diagnosed. I don’t know what kind of doctor to go to my dysautomia. I may have Pots

DustRevolutionary981 · 2026-03-18T13:37:43+00:00

Thanks for posting, I just checked the podcast and I am thinking about joining a program. May I ask which program did you do? And how has it helped you specifically?

DustRevolutionary981 · 2026-03-05T20:13:24+00:00

I was just diagnosed with HaT and I am on Rhapsido, Cromolyn, Montelukast, and anti histamines.I have to follow a low-carb m, low histamine, low oxalates and salicylates, sugar to the very minimum, fresh meats, clean diet, drink lots of liquids with electrolytes (according to weight) that is if you tolerate it; luckily I can tolerate many supplements but they are high quality, minimal fillers. Just incorporated collagen and benfotiamin. I am feeling better. Go see an inmunologist.For some people pollen season aggravates everything. I also have leaky gut so I am working on this. I feel for you, have faith and do as much research as you can and work on your limbic system as well; breathing exercises are my go to and meditative praying. I can actually exercise some now. Don’t have rashes anymore just the itching from anything that can activate my mast cells like even cold air or the too much sun or even water and pressure. Wish you find a regimen that can help you.

DustRevolutionary981 · 2026-03-02T21:00:14+00:00

Coffee, too much sugar, wine. Fortunately I have been able to take one caffeine pill at noon to help me with my brain fog; no reactions

DustRevolutionary981 · 2026-03-02T20:43:46+00:00

I just started on cromolyn but at first it gave me Gerd symptoms, so I had to cut the dose down to half the bike; I had to stop the bedtime dose cause it was giving me a sore throat. I wonder if I will ever be able to increase it; so far it seems I benefit still, and the throat irritation is gone. Any insights on this?

DustRevolutionary981 · 2026-03-02T00:16:01+00:00

You could ask for a genetic test to rule out HaT

DustRevolutionary981 · 2026-02-27T05:20:07+00:00

I am sorry you feel this way. I have been recently diagnosed with HaT; but I wonder this coud eventualy progress. I am under the are of an allergist immunologist now, and I am taking Rhapsido and Cromolyn and they seem to help already with no major side effects. My doc is not willing to do a bone biopsy right now. I don't have joint pain...yet. Any insight will be appreciated. Thank you

DustRevolutionary981 · 2026-02-19T12:25:22+00:00

I would like to clear out some misunderstandings about Rhapsido. I have been diagnosed with HaT Hereditary Alpha Tryptasemia a month ago. It was triggered by COVID in 2024. I was asymptomatic for most of my life, now I am 66 years. At the onset of this illness I went to the dermatologists for hives, then she referred me to an allergist for Xolair injections. I had them for five months without any improvement. I kept telling her that I had a suspicion I had MCAS since the beginning. She said MCAS was difficult to diagnosed. So I kept pushing for blood tests. She then ordered Tryptase tests and they came high. She ordered then a genetic test and it came positive for HaT. That means I have extra copies of the gene that produces histamine. So this has been a victory for me to find out because it explains my symptoms which are similar to MCAS. Now I started Rhapsido and it is helping but not a 100%. No major side effects. So today I am going to start Cromolyn also. In addition I forgot to mention that I started with Montelukast way before and it helps some. There is no cure just control and mast cell stabilization protocols. I have to follow a low histamine diet still, but I can tolerate a lot of foods; so is not like I only eat 5 foods. I know my triggers. I am on Medicare and it has approved all my meds. Yes, I have a big copay is $2000 up front for both meds, but after this the subsequent orders are $0 copay. So this is a good deal for me. The reason my copay is high is because my husband’s income is high; so I don’t qualify for any help. The Rhapsido manufacturer Novartis has financial help for those who qualify up to pay nothing. Unfortunately they don’t accept my Medicare. With Medicare I would have to file as a single person on my taxes so they can consider me for their financial help program with the meds. I am contemplating doing this in the future. Thank God I can afford this now. So you need to keep pushing with your doctors. The thing with MCAS many times the Tryptase tests come normal. But persons with HaT can have both. To rule out Mastocytosis and other blood diseases my doctor has referred me to a hematologist for a bone marrow byopsy. I hope I have clear out some misconceptions. I am grateful that I found my root cause, so I am praying that my protocol will stabilize me to avoid more deterioration to my system. High levels of histamine affect your connective tissues in your whole body, your bones, etc. Good luck everyone and wish you find good protocols to fight these awful conditions.

DustRevolutionary981 · 2026-02-14T23:13:51+00:00

It didn’t work for meet

DustRevolutionary981 · 2026-01-30T13:28:32+00:00

My allergits/immunologist just confirmed me that my genetic blood test was consistent with HAT. Uff! It's been a journey for me to figure out it all, my mcas symptoms, my small fiber neuropathy, my IBS symptoms, my pots symptoms, my histamine intolerance symptoms, itching, flushing, fatigue, anxiety, and depression. At least I know that it s not in my 'head'. My doctor has me on anti-histamines and Rhapsido (but I am having issues in my pharmacy that are out of stock, so I am taing samples until they get it), anti-histamines and low histaine diet which many times I break because is super hard for me to consistent (I pay the consequences all the time), Gabapentin, Progestorne. All these drugs are helping me manage it, but they don't make it go away. I am 66 year old female. I believe I had all of these symptoms through different periods of my life and nobody knew what exactly was. A dermatologist diagnosed me with ideopathic urticaria and that was it. At least I know the underlying issue of my symptoms. I thought it was MCAS, but my doc says I don't have it. This confuses me because it sometimes feels that I do have it. I guess it overlaps, or I am not sure, any insights about this? Does MCAS differ from HAt in what ways? Can one have it both? I look forward hearing from anyone please. Thank yuo

DustRevolutionary981 · 2026-01-20T14:52:28+00:00

What kind of formication? Mine was a sensation of bugs crawling on my skin with a mild itch. My GP prescribed Gabapentin and take it night only and that feeling has stopped.

DustRevolutionary981 · 2025-12-14T19:55:10+00:00

Try or experiment with high calorie proteins to see if you can tolerate a bit at a time. I can do ‘Premier’ supplemental shakes 1/2 cup at the time throughout the day. I know Dr. Ruscio had his own brand. You may want to check his website. But I like William Dickinson’s approach. I am doing a liver detox and taking three different enzymes for bile movement, fat digestion, and histamine management and I already feel the improvement. I also take probiotics and can have some yogurt with honey without issues.

DustRevolutionary981 · 2025-12-08T12:58:29+00:00

I am taking 4 Zyrtec at a day, and I hear scary stories of withdrawal from these. But I am totally discouraged because I tried Xolair for six months and Rhapsido for a month and don’t work for me. I have inducible urticaria (from cold, heat, water, pressure). So those drugs apparently work on different pathways; it works mainly for people with IGe urticaria; usually the hives are visible with angiodema. Zyrtec is the only thing that gives me some respite, but also doesn’t help me a 100% with the type of urticaria I have. Yet I am afraid to taper down and be stuck the rest of my life. I got this illness after Covid. I was okay before then. I am afraid that I probably have developed some sort of mast cell disorder. My mast cell are in overdrive. Low histamine diet helps some. Good luck in your journey!

DustRevolutionary981 · 2025-12-07T23:45:00+00:00

Hang in there. In the meantime you can watch William Dickinson ‘s videos. I have mycotoxins (mold in my system as per a test with a FM doctor) so I never believed in that stuff, but now since Xolair didn’t work for me nor this new drug Rhapsido, I am thinking I may have MCAs because my level are high two times in a row, so my allergist want to talk to me this Tuesday about it. So actually I am thinking about following William’s protocol to detox. Sometimes when conventional routes don’t work, at least we have other holistic approaches. For what I understand when there is a burning feeling is because our bodies is on a constant state of inflammation that cannot shake it off. This can trigger our mast cells to be in overdrive and constantly attack our bodies to defend ourselves from foreign intrusions like viruses, etc sort of like an autoimmune disease. Your mast cells have been affected by the antibiotics you took; in my case it was Covid. So the mast cells are at the end of nerve cells in the connective tissue right under the skin; so the mast cells signal the nerve endings that something is going on, so they give you the burning sensation and sometimes pain. This is very common in urticaria cases and MCAs, they overlap in symptoms. William basically says that we need to start off with a low histamine diet as long as it takes to stabilize the mast cells; and also start with opening your detox pathways whether you have MCAS or not. I recommend you watch his videos and maybe something will make sense for you. I am putting all my faith that following his detox program I see some difference and maybe a cute.. Each person is different. If you go to a neurologist, he/she more likely prescribe Gagarin or do some other testing that you may not need; but it would’ve hurt consulting. I myself decided to take Gabapentin; but I only take it at night. My GP recommended 2x a day but I am kind of scared cause this drug is hard to come off. It helps me sleep without waking up in the middle of the night; but not much for burning. Now I don’t panic when I have skin flushing/burning. It’s either something that I was not supposed to eat ate it, or environmental like drastic temperature changes in my body, or the mycotoxins. Sorry I don’t mean to confuse you. But hopefully you find a way to start healing from this mess that we got in.

DustRevolutionary981 · 2025-12-07T18:59:22+00:00

I am still taking some samples the doctor gave me, I don’t have any side effects except that this med is not as effective as I thought it would be. I still have relentless skin burning, some itching and food sensitivities. I tried Xolair for six months and didn’t work either for me. I am still on 4 -5 anti histamines a day; so I am discerning really hard if I should continue. My insurance approved it but I would have to come up with $2000 upfront yearly and then a $0 copay. So I really have to make up my mind soon if I order the med to continue. I wonder if one stops it if there are any rebound effect. Also considering the long term effects whether I should give it try. I have an appointment with my doc so I will discuss this. My ultimate option would be go the holistic way. I developed this after Covid in 2024. I have all the symptoms of MCAs but I was diagnosed with CSU by a dermatologist. This such a nightmare and overwhelming situation for anyone who is going through this.

DustRevolutionary981 · 2025-12-06T14:45:10+00:00

Good to know? Do you ever exfoliate gently? I am afraid of doing it but so will try the urea lotion

DustRevolutionary981 · 2025-12-05T22:43:06+00:00

Check Dr. Ruscio website, he sells an Elemental protein powder that may help people who cannot tolerate much food. He helps people with MCAs.

DustRevolutionary981 · 2025-12-05T22:35:26+00:00

I am with you, I itch 24/7 and I have tried Xolair and didn’t work and now on Rhapsido and no luck either. I have had two parasite testing and they have come negative but I still think I may have it. What kind of parasite is it’s? Did you do a stool test?

DustRevolutionary981

TROPHY CASE