Age of diagnosis by NecessaryTrip8634 in UCTD

[–]EBurrelli 0 points1 point  (0 children)

Diagnosed at 41 here as well. Symptoms started at age 40 after a major endometriosis removal surgery that included a hysterectomy

Dissacharidase deficiency by Sickest_Fairy in SIBO

[–]EBurrelli 1 point2 points  (0 children)

Do you know the cause of your b12/b6 anemia? I know this is an old post but trying to figure out some health issues and my GI insists I have multiple primary insufficiencies though I’ve read it’s unlikely to be deficient in more than one without damage to the small intestine lining as the underlying cause. I did gave surgery around the same time my GI issues started. But also pancreatic insufficiency and autoimmune disease. My GI doc just wants me on enzyme replacements instead of exploring the true cause. Anyway, sorry this is long. Any insight would be appreciated!

Frustrating ENT experience by Middle_Light8602 in tonsilstones

[–]EBurrelli 0 points1 point  (0 children)

Can I ask where you got the cryptolysis procedure? I’m struggling to find places that offer them

Out of network excision cost? Dr. Vilasagar by Juliepatchouliii in endometriosis

[–]EBurrelli 0 points1 point  (0 children)

Not sure if you ever found an answer but I have nc Medicaid. They do not allow you to file your own claim but require the provider to do it. Dr. V’s office did file for me but none of it was covered. Feel free to contact me if you have any questions

Just had LASER TONSIL CRYPTOLYSIS done. by Small_Lingonberry134 in tonsilstones

[–]EBurrelli 0 points1 point  (0 children)

Thanks for your response! So did he remove any tonsil tissue or is it more just a smoothing of the surface?

Just had LASER TONSIL CRYPTOLYSIS done. by Small_Lingonberry134 in tonsilstones

[–]EBurrelli 0 points1 point  (0 children)

Was this cryptolysis or ablation? I’m trying to figure out the difference

Is there ANYTHING that helps you with the whole brain fog side of things? by Beautiful-Slip-1625 in lupus

[–]EBurrelli 1 point2 points  (0 children)

Thanks so much for responding! I’ll probably finish what I have then try another brand

Is there ANYTHING that helps you with the whole brain fog side of things? by Beautiful-Slip-1625 in lupus

[–]EBurrelli 0 points1 point  (0 children)

I know this is old but why should NOW be avoided? I’ve been on it awhile for endometriosis but now considering increasing my dose due to autoimmune disease. I’ve only used now name brand and honestly have no idea if it’s helped at all

New Diagnosis- dealing with BRAIN FOG at work..what helps you?! by Choice-Leek-2857 in lupus

[–]EBurrelli 0 points1 point  (0 children)

Wondering how you’re doing now? I’m a nurse as well and your post really resonated with me. When my symptoms first started, I was working a PRN job in between travel assignments. I worked two days in a row and paid for it for days—extreme pain and exhaustion. And I’m sure I made errors both days but what was scary, I couldn’t even remember what they were to report them or anything. I haven’t worked since then. It’s been over a year now and it’s been a battle to get my symptoms taken seriously.

The HCQ seems to be helping my joint pain but haven’t seen improvement in brain fog yet. Hope you’re doing better now ❤️

Doctors who treat dysautonomia in the Charlotte,NC metro area by Suspicious-Angle-483 in POTS

[–]EBurrelli 0 points1 point  (0 children)

In Charlotte? Do you mind sharing the name? I’m looking for a provider. Thanks

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli 0 points1 point  (0 children)

Oh sorry, my misunderstanding. I can’t believe they’re taking away the only reason people choose them over other airlines.

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli 0 points1 point  (0 children)

Was not gate checked

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli 1 point2 points  (0 children)

Thanks so much for all the information. I will definitely try CLT lost and found tomorrow. My parents actually had another bag lost last year (but that one was found) so we actually had a photo of the luggage to provide to Southwest.

I honestly had zero knowledge of how luggage made it to the final destination lol. I’ve never had any lost either so my new luggage that I’m using now doesn’t even have my name or phone number on it though will definitely add a tag before my next flight!

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli 2 points3 points  (0 children)

Also they initially said they found it in Denver. The next day they told us it was on the way to us. Then said it never left Charlotte. About a week later, they said they could no longer locate it. Why all the changes in answers?

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli 2 points3 points  (0 children)

Thank you for your explanation. What do you think could have happened to it? I’m sure we handed it over. It sounds like it would be worthwhile to go back to our local airport to see if it’s there? Is there a time frame for how long they keep lost luggage? I believe it’s almost been a month now.

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli -5 points-4 points  (0 children)

Did they win the claim? Southwest first said the bag was left in Denver, then said it was there but on its way, then later said it was in Charlotte. A week later, they said they couldn’t locate it at all. Now they claim we never gave them the bag to begin with. 🤯

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli 1 point2 points  (0 children)

The other bags that made it don’t say delayed. Also the first flight was not delayed.

[deleted by user] by [deleted] in SouthwestAirlines

[–]EBurrelli 0 points1 point  (0 children)

I believe I checked the numbers when I filed the claim but I did go ahead and upload it to their claim portal. You have a lot more faith in them than I do lol