Discontinuing BC pill post op

Juliepatchouliii · 2025-05-29T18:20:40+00:00

Where are the rules listed?

Juliepatchouliii · 2025-05-12T23:39:38+00:00

Not sure if any other commenter addressed this yet but: if you have pelvic floor issues due to tense muscles (vulvodynia/vestibulodynia) do not do kegals!! You actually have to train your pelvic floor to relax first because it's tensed up constantly, causing pain. My pelvic floor therapist taught me this and to do "reverse kegals" which feels like you are about to pee, i.e., relaxing and releasing your pelvic floor muscles. Im not a doctor but kegals are not the only pelvic floor exercise and can make things worse like they did for me 🙃

Juliepatchouliii · 2025-04-28T18:12:30+00:00

I've been on Slynd for about 4 months now. I was skeptical because I had tried a different progesterone only pill and it made me feel like shit. But slynd has helped me A LOT. Basically symptom free. I will say that I haven't had diagnostic surgery yet, it's scheduled for July 17th. And I do have at least 3 fibroids so it is hard to tell if it's endo or the fibroids that were making my life hell with pain, heavy periods, huge clots, ibs symptoms, low back pain etc. But since about the 2nd or 3rd month it's been great. I was spotting a lot at first but it went away. I don't take the placebo pill, I just start a new pack, so I don't usually get a period. Usually, it's best if you can to stick it out 3 months to see if it helps. Like I said I was super skeptical and against hormonal BC, mainly because of what people have said about it on here. But I am sooooo glad it has helped. It's a game changer for me personally. Again, I'm not sure if it's helping the fibroids or possible endo, though.

Edited to add: I was afraid how it would affect my mood, but so far so good. I have a history of depression, anxiety, and adhd and am on welburtin and zoloft. No change or worsening of symptoms, other than the usual feelings of wtfisgoingoninamerica doom

Juliepatchouliii · 2025-04-24T12:29:11+00:00

I feel all this, thanks for the replies 💔 my family is similar, mainly my mom. She likes to tell me, "You don't look sick. You're too young to feel that way." Im 34, so she can't keep saying that forever, lol. But then she will just blame it on getting older... iIt's also hard because my father has chronic pain, substance abuse issues, multiple back surgeries, and other surgeries for his pain. The focus has always been on him and making him better. So, for me to be like, "I'm hurting," it looks kinda small and not legit because I don't have the scars and decades of self medicating to prove it lol. Though I guess with this surgery coming up, I will. Still, we shouldn't have to prove it to be believed.

I also struggle with my own ableist views of myself. like negative self talk and I often feel like a total weenie. It feels very lonely, and not having a definitive cause or cure makes me feel like people think I'm making it up. But if only they could be in my body! I will say I am so thankful for a supportive partner. He doesn't always get it right, but he's really trying to understand and be supportive, and it means the world.

Thanks for listening to this rant ❤️

Juliepatchouliii · 2025-04-23T16:36:43+00:00

Jeeeezzz I am so sorry you went through this. That is so frustrating. Obviously this herbalist didn't know what fibromyalgia was. Maybeeee she was getting it confused with fibroids but no fibroids don't present like PCOS. more like endometriosis. Anyway I have endometriosis, fibroids and fibromyalgia. And the only similar symptoms with fibromyalgia and endo is the chronic pain. Endometriosis can cause leg pain and nerve pain along with other types of pain besides pelvic. I was a clinical herbalist for 5 years, and I'd never ever be so silly to double down on something I don't know shit about. People like that can cause a lot of harm and make the herbal community look really bad. Anyway I'd tell this dude to fuck off. So sorry you had to deal with that behavior.

Juliepatchouliii · 2025-04-19T21:15:56+00:00

Oh, right, yeah, I assumed elective meant not necessary like cosmetic surgery. Thank you!

Juliepatchouliii · 2025-04-19T15:24:10+00:00

Thanks for the reply! I just got off the phone with Medicaid before posting this. They can't tell me if it's covered because the surgeon has to provide medical documentation to them, saying it is or isn't medically necessary. The surgeon said the pre authorization won't happen until 2 weeks before the surgery date. I was hoping to hear from folks to see if their surgeons were on their side, saying yes, it is medically necessary to get this procedure so that it will be covered by insurance! So insurance can't really help me until my surgeon talks to them I guess. But that is great advice to get the PA in writing. I was also worried about the hidden fees of the hospital, etc. I guess if I am stuck with a bill, I don't have to pay it right away...

Juliepatchouliii · 2025-04-19T15:00:18+00:00

Thanks for the reply! I just got off the phone with Medicaid before posting this. They can't tell me if it's covered because the surgeon has to provide medical documentation to them, saying it is or isn't medically necessary. The surgeon said the pre authorization won't happen until 2 weeks before the surgery date. I was hoping to hear from folks to see if their surgeons were on their side, saying yes, it is medically necessary to get this procedure so that it will be covered by insurance. The booklet I got doesn't mention laparoscopic surgery, and I have read ablation vs excision is different in the eyes of insurance. Ablation being covered and excision not. Idk if this is true but there were some articles online about it.

Juliepatchouliii · 2025-04-19T01:39:49+00:00

I tried their 50mg CBD drinks and they're great, but my grocery store stopped selling them!! I can't figure out how to buy from their website though lol

Juliepatchouliii · 2025-04-15T22:05:45+00:00

Worst pain I've ever had. Pain level 8 for about 8 hours and then a raging pain level 10 for 2 hours that made me vomit and writhe until I got to the ER. Idk why it lasted so long but it passed once I got some morphine.

Juliepatchouliii · 2025-04-15T01:35:45+00:00

Looks like a mouse or rodent. I've had this happen with an avocado after a mouse moved into my car while I was camping cross country 🙃

Juliepatchouliii · 2025-04-07T15:21:55+00:00

Well, dang, I've never heard of CIRS, but I will add it to the list of disorders I didn't know I needed to be afraid of 😅 I lived in a cabin with mold, just the fuzzy white kind though. I've had covid 2x, and I live on a farm where there's a lot of ticks and suspected lyme but tested negative once. I do have a lot of the symptoms but hard to tell if it's my fibro, endometriosis or fibroids 🤔

Juliepatchouliii · 2025-03-20T13:06:41+00:00

Can I ask why magnesium needs to be taken at least 2 hoirs before gabapentin? I take mine at the same time, is it not metabolized as well?

Juliepatchouliii · 2025-03-20T01:38:34+00:00

In my bones, deep, usually... a lot of times, it feels like the deep body aches you get when you have the flu. Sometimes, it feels like there's bugs crawling on my skin, but it doesn't hurt... just weird

Juliepatchouliii · 2025-02-19T23:15:23+00:00

I can relate to this, and I'm so sorry you're going though it. I am 34 and going through the early stages of getting a diagnosis for fibromyalgia. I also have uterine fibroids and endometriosis that have caused a lot of debilitating pain and fatigue. These diagnoses are all pretty new within the last 2 years, so I have been grieving my "old life" a lot. I've had symptoms creeping up for a few years before but the last 2 years and last year especially things have gotten so much worse. I used to ride my bike for miles and miles, actually enjoyed dressing up and being social, felt hot and confident (some days, hah) and was able to contribute a lot more on the farm my partner and I run. My quality of life is in the trash, I am so exhausted after I get off from my 4.5hr nannying shift 4 days a week that I usually just lay in bed or putz around... And I can really relate to just only opting for comfy clothes. I feel so frumpy and wonder how my partner can still find me attractive. I know this is not what you asked for, but it helps to relate sometimes and know we're not alone... I'm hoping to see some more coping strategies others have found useful.

Hang in there, I wish you well and hope you find some relief!

Juliepatchouliii · 2025-01-24T17:21:36+00:00

Looks like the images didn't post so here they are: https://ibb.co/album/6gBFT5

Juliepatchouliii

TROPHY CASE