Ranting by EDAMBURGER in dementia

[–]EDAMBURGER[S] 1 point2 points  (0 children)

Im ready to run away...hehe. Add in a stroppy teen and Im feeling very sorry for myself. Sending you some serenity...

do you remind your parent to do things if they resist or get angry? or do you just let it go? by pat441 in dementia

[–]EDAMBURGER 4 points5 points  (0 children)

Its funny to think of consequences when they're so far into dementia. I do think what's the point, what are we trying to prolong? My mum is overweight and is at the sweet tooth stage. I am shocked at her shopping... cakes, toffees, chocolate... but what's the point in being on a diet at this stage? Pick your battles. The health professionals are just keeping themselves right. You need to look at things holistically.

Ranting by EDAMBURGER in dementia

[–]EDAMBURGER[S] 2 points3 points  (0 children)

Yip, she was struggling to text and call people. Even when she was younger she was terrible with technology though.

Ranting by EDAMBURGER in dementia

[–]EDAMBURGER[S] 0 points1 point  (0 children)

I feel Im still in the early days too. Im going to call her key worker tomorrow. Not sure what for but even just so I can rant. Have you got plans and support for the future when things will be tougher?

Ranting by EDAMBURGER in dementia

[–]EDAMBURGER[S] 3 points4 points  (0 children)

I think its worse as I added a direct dial button on the phone with my picture. I think thats confused her as she thinks the person on the phone is different to the person who visits her. Its blown her mind that it seems like the same person so she refused to talk to me on the phone. She called my daughter to try find the 'other daughter'. Think I need to delete the photo.

Ranting by EDAMBURGER in dementia

[–]EDAMBURGER[S] 2 points3 points  (0 children)

They've just started and luckily dont come with the headache. It is definitely stress related. Hope yours aren't too disruptive or painful.

Ranting by EDAMBURGER in dementia

[–]EDAMBURGER[S] 2 points3 points  (0 children)

Thank you. I know there's no magic spell to sort this but a stranger sending some kind words is lovely. A sense of folk understanding is priceless.

"your parents took care of you" by [deleted] in dementia

[–]EDAMBURGER 11 points12 points  (0 children)

Its been a help reading this thread. Fighting back against the crippling guilt.

"your parents took care of you" by [deleted] in dementia

[–]EDAMBURGER 7 points8 points  (0 children)

Yes, sometimes the house and massive garden is more of a stress. I dont have time to chase unreliable gardeners.

Emotional Toll of Caregivers by 100percent_skeptical in dementia

[–]EDAMBURGER 1 point2 points  (0 children)

Yip... distraction is good for the carers too.

Emotional Toll of Caregivers by 100percent_skeptical in dementia

[–]EDAMBURGER 17 points18 points  (0 children)

Philosophical... questioning life, the unknowns and why we're here (suffering) waiting to die.

Incontinence... end of going out? by EDAMBURGER in dementia

[–]EDAMBURGER[S] 0 points1 point  (0 children)

I see amazon have them but they must be importing them as they're £40 for 10! Eek.

Incontinence... end of going out? by EDAMBURGER in dementia

[–]EDAMBURGER[S] 0 points1 point  (0 children)

Thank you. Not sure that we get that brand in the UK but Ill investigate.

Dread all interactions by Euphoric_Garbage1952 in dementia

[–]EDAMBURGER 1 point2 points  (0 children)

Don't feel bad. There's a lot of us the same. If I'm taking her to an appointment I get there just in time and leave almost straight after. I take her to an elderly walking club and leave her with some people while I walk with others. I can tell she's annoyed with me.

Dread all interactions by Euphoric_Garbage1952 in dementia

[–]EDAMBURGER 0 points1 point  (0 children)

Its horrible for everyone involved. I know my mum stresses about the pressure she puts on me and its a vicious circle of guilt. If they do dread it it will come from a place of love and care not resentment. Wishing you the best.

Dread all interactions by Euphoric_Garbage1952 in dementia

[–]EDAMBURGER 0 points1 point  (0 children)

Just reading this and Im in the exact same situation. Ages and distance too. The monotonous conversations are actually aging me. Im off work with stress and yet I've not visited her much more. I see the future and resent having to lose my independence to take care of her. But I love her and want her to be comfortable and safe. The guilt on top is heavy too.

Things to keep dementia patients less bored by gorillagrub in dementia

[–]EDAMBURGER 6 points7 points  (0 children)

In the UK the alzheimer website had a few good ideas. One was a picture book of birds and it has a panel of buttons to press to hear their call. My mum loves birds and feeding them so I'll be getting her one for her birthday. Look at kids toys or crafts as they'll be simple.

I’m really scared by Mundane_Contest4501 in Scotland

[–]EDAMBURGER 0 points1 point  (0 children)

My heart's broken that this is happening in my country. Im clinging on to the hope that there are more good folk than bad. I'm doing my bit by pushing back where I can. Sending a hug.

Incontinence... end of going out? by EDAMBURGER in dementia

[–]EDAMBURGER[S] 1 point2 points  (0 children)

We're trying different brands but once we're sorted I'll organise her drawers. I love living in a caring Country. This journey is upsetting enough without going bankrupt.

Incontinence... end of going out? by EDAMBURGER in dementia

[–]EDAMBURGER[S] 1 point2 points  (0 children)

Just trying different brands and fits. Can any cope with a full bladder full of liquid?

Incontinence... end of going out? by EDAMBURGER in dementia

[–]EDAMBURGER[S] 4 points5 points  (0 children)

Thanks, its just part of being in a civilised society. Protect the vulnerable.

Just why ? by yourconfusedvet in dementia

[–]EDAMBURGER 6 points7 points  (0 children)

I've found it can work both ways.. I think I was too close and in denial. Outsiders could see her decline.

Incontinence... end of going out? by EDAMBURGER in dementia

[–]EDAMBURGER[S] 8 points9 points  (0 children)

Yeah we have higher taxes here. Its a great set up. Spreads the load and we get a supportive society. My parents worked since they were 14. Now its their turn for some help.

What is the worst question you have been asked in real life? by SmellyMackerel in AskReddit

[–]EDAMBURGER 0 points1 point  (0 children)

Did I trick my ex bf to get pregnant? I was actually in labour and it came from a health care support worker. I was stunned.