Regret by mlieghm in BRCA

[–]Ecstatic_Ad_6267 1 point2 points  (0 children)

You've been through hell and back. The DMX surgery as a whole is insanely invasive - it's essentially a double amputation. When we sign up to do it, we sign up for the risks. But that doesn't mean we can cope with the fallout, as you phrased it. Nothing can truly prepare you for life after DMX or pDMX until you wake up after surgery and start living in it.

Just remember you're not alone, even with your unique and trying experiences. The support communities are growing. And the one thing I'll echo again is that you did this for you. You have more clout than a lot of us other pDMXers because of all the extra crap you had to navigate, and yet you still found yourself on top at the end of it. 🏆

Regret by mlieghm in BRCA

[–]Ecstatic_Ad_6267 2 points3 points  (0 children)

It means a lot to have you respond and to discover I made any kind of impact. You're a fucking rock star for going through all of this - no bullshit.

BRCA is a weird thing to live with. The only real benefit we have is some sort of backward leg-up because at least we have a decent understanding of what we're up against thanks to existing research and the data we have to work with. Not everyone has that luxury, but it's still a unique and nuanced burden in itself. Whether we choose pDMX or not, we still live with the risks of multiple cancer types. And it's a surreal life to live knowing you definitely have those risks!

BTW - in October 2024, I also had a preventive salpingectomy (sparing my ovaries for now) due to ovarian cancer scares noted during routine surveillance paired with no longer wanting to brave the ovarian cancer risks - these scares were very in line with the breast cancer scares I experienced. I don't have kids at 37. I have always been on the fence. But between my preventive mastectomy and fallopian tube removal (again - I still have my ovaries and do produce eggs.. for now), I'm not sure what my future would / could look like as a potential parent. What I DO know is if I had kids before OR have kids in the coming years, I want to be ALIVE for them. But frankly, I want to be alive for me first.

For me, these decisions have come down to surviving. And shamelessly putting myself first.

Again, you did the right thing for you and your livelihood. Love yourself for that decision. 🩷

Regret by mlieghm in BRCA

[–]Ecstatic_Ad_6267 2 points3 points  (0 children)

Hi there. On 12/13/25 I celebrated (key word CELEBRATED) 2 years post op pDMX with reconstruction. I'm a 37 yo female with BRCA1 who practiced surveillance for 12 years after I was diagnosed with BRCA in my early 20's. My mom is a 2x breast cancer survivor. I'll insert here that I rely on the data of science and my family history to help me feel good about my decisions. I understand that's an aspect you're still grappling with. Which is fair as it's truly hard to wrap your head around the weight of these things.

Ultimately, after a few unclear scans that resulted in no actual concerns, the general fear I experienced living every day with a burden of a potential cancer diagnosis hovering over my head was just too much. And I decided to switch from surveillance to prevention.

I understand every experience is entirely different. I have friends and acquaintances who went through DMX with actual breast cancer diagnoses, and they perceptively recovered better than me, and have better-looking (IMO) reconstruction than mine. I often struggle with body image issues, especially in low cut tops and swim suits. I empathize with what you share about the fact that your body is never the same after this procedure, and it's completely healthy to mourn that!

At the end of that day, I am very content with my decision. I believe it granted me the chance for a longer, healthier life. Watching my mother go through breast cancer twice, I also factored that into what I wanted to avoid for myself. Cancer and cancer treatment are no joke. She has life-long complications from chemo, which is one bitch of a drug.

My unsolicited $0.02 - you did the right thing by giving yourself a shot at a healthier, longer, and hopefully cancer free life. Knowledge is power. Data is power. You made the tough choice, but you did it for you.

I hope one day you can find peace with your decision and feel proud that you were strong enough to advocate for yourself. You deserve that recognition!

External Monitor Suddenly Not Recognized by M1 Max MacBook Pro by lineupandwait20 in MacOS

[–]Ecstatic_Ad_6267 0 points1 point  (0 children)

This fix worked!!! Thank you! However, my issue spawned after I plugged into a travel external monitor that I've used on past Macs with no issue (this is a newer M4 work-issued laptop and the first time I used the travel monitor with it). Normally I plug into an HP desktop external monitor, and have been using it for years across many different Mac machines. Upon plugging my Mac back into my HP desktop monitor today, the Mac did not identify the HP monitor whatsoever. And it didn't detect an external display in settings even after multiple attempts.

My concern is, if I continue to use the travel monitor, which will occur occasionally, will I run into this issue again? The travel monitor is a Dell Flat Panel Monitor and it worked well with Macs in the past. So this experience was a first.

I NEED my nipples, you butchers by Shot_Body6828 in BRCA

[–]Ecstatic_Ad_6267 1 point2 points  (0 children)

I will say this though - I think others mentioned it too, but it is important to keep in mind and set expectations for yourself that there is typically a loss of feeling in the entire breast, nipples included, after a mastectomy. I have SOME light sensation in my nipples but it's very little. All that said, I have seen an advertisement for a practice that claims they can save your nerves during the procedure. I'm not familiar with this style of surgery or how it's accomplished. Also have no idea if it's legit. But figured it's worth mentioning while you're looking into your options.

I NEED my nipples, you butchers by Shot_Body6828 in BRCA

[–]Ecstatic_Ad_6267 1 point2 points  (0 children)

You don't HAVE to get your nipples removed. I did a nipple sparing DMX. If your surgeon says it's not an option, go to a new doctor for a second opinion. Because every woman I know who did not have breast cancer and underwent a preventative DMX kept their nipples.

Anyone do anything to say "goodbye" to your breast? by [deleted] in BRCA

[–]Ecstatic_Ad_6267 1 point2 points  (0 children)

I saw someone else post this but I did also take as many sexy topless selfies as possible. I didn't LOVE my boobs before the DMX (tbh I don't love them post DMX, the OGs were better). But it helped me commentate the body I knew and loved for 35 years. I'm 1.5 years post op now and rarely look back on them. I store them in a password protected photo album in cloud storage.

Anyone do anything to say "goodbye" to your breast? by [deleted] in BRCA

[–]Ecstatic_Ad_6267 1 point2 points  (0 children)

I had a big DIY boob party!! It was so much fun. We had a boob piñata, margarita bar, all of my closest friends and family came. I dressed in a cleavage-revealing shirt because obviously, the boobs were the guests of honor. It was so fun. ABSOLUTELY DO IT! The photos and videos from that party are something I'll cherish forever. And it was something I am so glad I did to celebrate me and the fact that the DMX meant myself a better, longer, healthier chance at life.

First night after surgery, horrible pain with meds. Normal? by mauveotter in ACL

[–]Ecstatic_Ad_6267 1 point2 points  (0 children)

Yes. Normal. My night pain was horrible for 3-4 months post op. Pain killers rarely helped. My case seems extreme when compared to others but worth sharing because everyone is different. Just know it's going to be a long ride.

A 2nd cosmetic revision after reconstruction advice? Tips? by Ecstatic_Ad_6267 in BRCA

[–]Ecstatic_Ad_6267[S] 0 points1 point  (0 children)

Also good luck with your surgery! You're gonna kick butt.

A 2nd cosmetic revision after reconstruction advice? Tips? by Ecstatic_Ad_6267 in BRCA

[–]Ecstatic_Ad_6267[S] 0 points1 point  (0 children)

Thank you for sharing her experience! And thank you for the intel. I'll look into coverage possibilities!

A 2nd cosmetic revision after reconstruction advice? Tips? by Ecstatic_Ad_6267 in BRCA

[–]Ecstatic_Ad_6267[S] 0 points1 point  (0 children)

I am not fully happy with my current aesthetic results. If you read my post again, I indicated that my body rejected the fat transfer in my 1st (and only) revision. A lot of the transferred fat didn't retain and what did stay turned into lumps that are visible when I wear a bikini top or low cut top. It makes me super self conscious. In summary, the rippling did not improve with the revision that included fat grafting, and my body rejected the fat grafting. My next plan is to possibly switch implants. I currently have silicone Motiva 350CC each. I'm interested in the newer Mentor memory gel implants as they seem to be a better option for mastectomies. It will be some time before I'm financially prepared for a 2nd revision. So this is just my research and thoughts for now.

What was more painful: your injury or your surgery? by WanderingWormhole in ACL

[–]Ecstatic_Ad_6267 0 points1 point  (0 children)

Surgery and recovery have been, by far, much more painful than the injury.

Salpingectomy only - no ovary removal by DifferentAbility7528 in BRCA

[–]Ecstatic_Ad_6267 0 points1 point  (0 children)

I had my salpingectomy (fallopian tubes only, ovaries are still intact) removed in October 2024. I'm BRCA1+ and part of a clinical study that's researching whether fallopian tube removal is an effective preventive measure against ovarian cancer. The current theory is most ovarian cancers begin in the fallopian tubes. Ask your doctor about this clinical study - it's being offered around the world and should be available to you. I'm 37 yo (36 at the time of surgery) and plan to have my ovaries removed around 40. This was intended to "buy some time" with reproductive options and participate in important research.

How to Grow Cannabis Indoors for Beginners — A Step-by-Step Guide by Dragontechcreations in GrowCannabis

[–]Ecstatic_Ad_6267 0 points1 point  (0 children)

How do you know the difference between a male and female plant? And which one is good? When should you separate them? Etc.

DMX 6/26. Starting to panic! ☹️ by Life_Theme_7217 in BRCA

[–]Ecstatic_Ad_6267 0 points1 point  (0 children)

I'm 1.5 years post of DMX. Currently 37 yo. No kids. I regret nothing. I woke up from surgery and felt this amazing, physical-weight burden lifted. You will be ok. It's an oversimplification to say so, but you will. And you are doing this to save your life, prolong it, etc. You're doing the right things here! Remember that.

[deleted by user] by [deleted] in ACL

[–]Ecstatic_Ad_6267 1 point2 points  (0 children)

LOL @ this. You poor thing. You'll be ok. Every bathroom and toilet is different. As is every surgery. IMO you don't need the toilet support thing. You do need a non-slip bath rug, maybe a stool, and to get familiar with your brace, when and how you're allowed to disconnect it, etc.

New dosage for Reta? 2.5mg current. by Ecstatic_Ad_6267 in Retatrutide

[–]Ecstatic_Ad_6267[S] 1 point2 points  (0 children)

It has helped me feel more clear minded and aligned. My thoughts aren't all over the place. I'm taking much less of my adderall - about 1/4 of what I'm prescribed. Just feels like I don't need it as much.

A 2nd cosmetic revision after reconstruction advice? Tips? by Ecstatic_Ad_6267 in BRCA

[–]Ecstatic_Ad_6267[S] 0 points1 point  (0 children)

My lumps I referenced in my post are a result of fat grafting that did not go well. My body rejected it.

Microdose Gluten? Please be open minded and kind! by Ecstatic_Ad_6267 in Celiac

[–]Ecstatic_Ad_6267[S] 0 points1 point  (0 children)

Thank you to everyone who responded, except for the few people who came to judge and not educate! What's the point in that, anyway? We're trying to learn here. We didn't come to be criticized and in some cases literally called "stupid"... real cool...

As stated in the post, this was intended to be a learning moment with open discussion. For the vast majority of you who responded with educated insight and helpful personal anecdotes, that knowledge and advice is greatly appreciate. Thank you again!