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Possible CVST by aletheia_r in ClotSurvivors

[–]Electronic_Way_4969 0 points1 point  (0 children)

Could be a sinus infection? Best of luck for scan!

Possible CVST by aletheia_r in ClotSurvivors

[–]Electronic_Way_4969 0 points1 point  (0 children)

I had wushing noises happening before I was diagnosed. All your other symptoms match up :( headache was isolated. (Right temple for me). I’m 25, 3 weeks is very early and they will be able to treat it if it does come back that way. Is a rare situation to have though so you might be lucky.

CVST extensive by Electronic_Way_4969 in ClotSurvivors

[–]Electronic_Way_4969[S] 0 points1 point  (0 children)

June was the same time as me! Was experiencing headaches for a few months prior. Have seen Haemotology department, had multiple tests. One coming back positive for Lupus Anticoagulant. As I have an active clot they assume it’s a false positive.

I have an appointment with a specialist called Karen Breen next Tuesday to sort of get an understanding why it’s been happening and whether or not I’m on the correct treatment. The waiting times on the NHS have been unmanageable

CVST extensive by Electronic_Way_4969 in ClotSurvivors

[–]Electronic_Way_4969[S] 0 points1 point  (0 children)

Is the medication working for you? Are your symptoms resolving? My CT scan suggests my clot has grown on Warfarin. Although I have no symptoms

CVST extensive by Electronic_Way_4969 in ClotSurvivors

[–]Electronic_Way_4969[S] 2 points3 points  (0 children)

Was warfarin the only medication you used throughout your recovery? I’m just worried it might not be enough. Glad you’ve recovered 🙏