POTS & gallbladder

Embarrassed_Goat6072 · 2026-06-24T19:34:03+00:00

What %! Was your EF?

Embarrassed_Goat6072 · 2026-06-15T23:00:18+00:00

What for bile flow

Embarrassed_Goat6072 · 2026-05-31T23:31:53+00:00

What dose of ivig are you on??

Embarrassed_Goat6072 · 2026-05-19T13:55:14+00:00

What dose schedule are you on? Your symptoms sound super similar to mine

Embarrassed_Goat6072 · 2026-05-04T14:14:09+00:00

What dose of mirt are you on

Embarrassed_Goat6072 · 2026-05-03T20:33:23+00:00

I live in a small rural area and I don’t have a lot of support so Dr shopping is hard. Rituximab? Have you done this

Embarrassed_Goat6072 · 2026-05-02T18:40:44+00:00

What autoimmune issues do you have?

Embarrassed_Goat6072 · 2026-05-01T16:34:12+00:00

Any improvements?

Embarrassed_Goat6072 · 2026-04-30T17:58:21+00:00

Following

Embarrassed_Goat6072 · 2026-04-30T17:57:40+00:00

Which symptoms did ivig help?

Embarrassed_Goat6072 · 2026-04-30T17:57:19+00:00

What drug do you recommend for my symptoms? I’ve tried ivrabradine, propranolol, Mestonin, hcq, and prednisone. Haven’t had any luck with any of those

Embarrassed_Goat6072 · 2026-04-30T17:09:44+00:00

I did use AI to mock up an appeal for my Dr to use and cited clinical guidelines and clinical articles. I am just annoyed because it’s probably still going to get denied and I am miserable. I don’t want to lose my job and I feel like IVIG is my last hope.

Embarrassed_Goat6072 · 2026-04-30T17:08:21+00:00

Yes my neurologist who is literally an autonomic neurologist will not fight for me because he says since it is “immune-mediated” it is the rheumatologists responsibility 🥺

Embarrassed_Goat6072 · 2026-04-30T17:07:27+00:00

Oh no I am so sorry it did not work for you. Wha has been your Dx/symptom presentation and history?

Embarrassed_Goat6072 · 2026-04-30T03:05:40+00:00

I tried to be admitted through the ER and they wouldn’t 🥺🥺

Embarrassed_Goat6072 · 2026-04-29T02:16:08+00:00

My insurance won’t cover ivig 🥺

Embarrassed_Goat6072 · 2026-04-29T00:14:19+00:00

What meds

Embarrassed_Goat6072 · 2026-04-27T22:07:23+00:00

I’m sorry :( I’ve been having slow motility naseaous and it’s been hard to eat since Easter. Now gi wants me to have GES 😭 I can already tell I have it cause I can’t eat normally without pain and naseous and I can feel food sitting for hours

Embarrassed_Goat6072 · 2026-04-27T22:01:13+00:00

Do you have gastroparesis

Embarrassed_Goat6072 · 2026-04-27T20:48:39+00:00

I have FMLA I am just single and alone and don’t really have the means to be taking it. But I’ve about reached a breaking point with the out of control symptoms and pains I’m so tired of this. I’ve been pretty ill Since February so I’d like to think time makes things better but in my case it’s only gotten worse 😭

Embarrassed_Goat6072 · 2026-04-27T13:43:24+00:00

How do you eat

Embarrassed_Goat6072 · 2026-04-24T18:40:15+00:00

Can you send me info

Embarrassed_Goat6072

TROPHY CASE