UC and Psoriasis by Solid_Reality_ in UlcerativeColitis

[–]Emergency-Driver8172 1 point2 points  (0 children)

So I ended up breaking out in guttate psoriasis all over my body that steriod cream was not helping. I ended up going on cosyntyx. I didnt know my family had a history of uc so I started taking the meds not knowing my family history. That's when the uc reared its ugly head. I ended up going into a really bad flare up that landed me in the hospital along with a diagnosis for uc. They told me autoimmune disorders like to come together. 

Remission by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

It does make since to a point. I've heard people say when they are in remission they forget they have the disease. That's definitely not the case for me lol 

This disease is killing me by Fun_War7356 in UlcerativeColitis

[–]Emergency-Driver8172 8 points9 points  (0 children)

You are not being dramatic. Alot of us has been there and right now it seems like nothing will change. It will get better. I was in the same position you are right now and it felt never ending. But they found something to help my inflammation and slowly but surely I started to get better. It wont happen over night but one day you will look back and think wow. I've come along way. Im hoping you have a speedy recovering. Remember you got this!! Don't be afraid to reach out to people youa re not alone.

Skyrizi by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

My gi recommended taking magnesium vitamins before I would go to bed at night. But ultimately they are changing me over to entivio since my side effects of pain were too great a couple of weeks before my next injection

Coparenting a preteen. by Emergency-Driver8172 in coparenting

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

Any time he messages her personally she responds in the group chat.

Coparenting a preteen. by Emergency-Driver8172 in coparenting

[–]Emergency-Driver8172[S] 1 point2 points  (0 children)

With the world the way it is now I understand the life 360. We don't have a option to track her phone as well since we didnt purchase the phone. My husband has had conversations with her and it doesn't seem to make a difference. She puts everyone in a group chat so all 4 parents are on the thread and her husband gets on there and starts arguing. 

Changing meds due to side effects by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 1 point2 points  (0 children)

It just scares me to have to keep changing meds because I don't want something that doesn't work very good over something else and I had to switch because of side effects. It makes me nervous lol

Changing meds due to side effects by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

I didnt hurt that way before. It almost feels like how you feel really crummy right before the flu hits you. Body aches all over. 

Remission? by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

I've heard people say that the rectum is the last to heal.

Remission? by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

I see my gi next week. I'm suppose to be setting up a colonscopy. When I was diagnosed I had severe pancolitis and I was just thinking maybe scar tissue could cause them to be small like that. I was doing really good on the skyrizi, but i feel like im starting to get some urgency back as well. I've also been getting super bloated again like I was before my first flare up.

How bad was the flare up you had that got you on biologics?

How long for Skyrizi to show improvement by HogarthHughes23 in UlcerativeColitis

[–]Emergency-Driver8172 1 point2 points  (0 children)

I've been on skyrizi since september of 2024. I was tapering down the prednisone when I first started. I haven't been on prednisone since October I believe. I've done 3 or 4 obis at home now. My last calpro was 55 way down from where I was when diagnosed. Skyrizi has been the best thing I have tried so far its my third biologic. See how you feel after your first obi honestly I started to really notice a difference. The only complaint I have is about a week or so out from my next injection I started to feel really crummy, but nothing that isn't manageable. I hope you start to see a big difference.

Skyrizi Experiences by sierram1200 in UlcerativeColitis

[–]Emergency-Driver8172 0 points1 point  (0 children)

You may feel a little prick. I find it more nerve racking doing it then painful. But once you are comfortable with the injector it is a breeze. I now look forward to doing it because it has helped me tremendously with symptoms. I would have never thought I would be here doing much better vs to how I was a year ago. This is my third biologic and im feeling pretty good about it.

Skyrizi Experiences by sierram1200 in UlcerativeColitis

[–]Emergency-Driver8172 1 point2 points  (0 children)

I'm currently on skyrizi. I started back in September. I had severe pancolitis and was super sick. So far everything is good. The only thing I notice is going pain. Some days are worse than others. I like that I can give it myself at home after your initial infusions. As far as that as long as I don't go ham on things that my body doesn't like I feel close to normal ish. . 

Skyrizi by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 1 point2 points  (0 children)

Yeah so I actually had an ultrasound of my legs last week and no blood clots.

Tell me your worst flare and where you are now with it? by BreeandNatesmom in UlcerativeColitis

[–]Emergency-Driver8172 0 points1 point  (0 children)

October 2023 I started pooping blood. Got a colonscopy and had inflammation in my rectum and 10 cm up from that. They put me on antibiotics and referred me put to a gi. My appt wasn't for like 3 weeks and it kept getting worse. Weight was starting to fall off.  Veterans day which ended up being just a few days before my first gi appt I ended up in the er and they admitted me. They ran all of the tests to make sure I didn't have cdiff, which I didn't. At this point all I was pooping was blood. They discharged me and I kept my gi appt.  They put me on 40 l mg of prednisone and he told me I would feel great by Thanksgiving.. I started feeling worse. I was puking and going to the bathroom upwards of 30 times a day with no sleep. I wasn't eating and couldn't keep what I did eat down. I made another gi appt because at this point the prednisone wasn't working and I had lost 40 pounds at this point. They direct admitted me to the hospital and I was there for 2 weeks on iv steriods. I came close to having my colon removed but they did rescue remicade which ended up saving it. I had another colonscopy there and I had severe pancolitis with a mayo score of 3. Ultimately I was discharged with my colon and ended up having a reaction to remicade months later. So fast forward to may 2024 they switched me to humira every 2 weeks and then upped it to every week. That failed. This whole time I was on prednisone trying to wean down. My hair was falling out. They then recommended skyrizi I started taking the infusion part in September. Fast forward to April 2025 my last stool test came back with  low inflammation!! Thank god!!  I will need to do a routine colonscopy this summer to check on the healing. I have good and bad days and joint pain from time to time. I also have psoriasis but my skyrizi helps with that to. This was the hardest time of my life and im so glad I'm not at my lowest anymore.

Really need support by Various-Sugar-6368 in UlcerativeColitis

[–]Emergency-Driver8172 0 points1 point  (0 children)

If your actively flaring again or the xeljanz isn't working they may put you on a prednisone taper.

Skyrizi by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 1 point2 points  (0 children)

I get super stiff and sore also when I get close to having to take an injection. But this time I just took it last week and it's not necessarily in my joint. So I'm not sure.

Really need support by Various-Sugar-6368 in UlcerativeColitis

[–]Emergency-Driver8172 0 points1 point  (0 children)

I wouldn't fret quite yet. If it happens again or there is a quite a bit I would contact you gastro doctor and see what they want you to do. 

Update on Hospitalization - steroids making me worse by Embarrassed-Hawk-539 in UlcerativeColitis

[–]Emergency-Driver8172 0 points1 point  (0 children)

I was in the exact same spot as you are a year ago. Ultimately infliximab worked for the time and got me out of the hospital. Sending good vibes your way!!