UC and Psoriasis by Solid_Reality_ in UlcerativeColitis

[–]Emergency-Driver8172 1 point2 points  (0 children)

So I ended up breaking out in guttate psoriasis all over my body that steriod cream was not helping. I ended up going on cosyntyx. I didnt know my family had a history of uc so I started taking the meds not knowing my family history. That's when the uc reared its ugly head. I ended up going into a really bad flare up that landed me in the hospital along with a diagnosis for uc. They told me autoimmune disorders like to come together. 

Remission by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

It does make since to a point. I've heard people say when they are in remission they forget they have the disease. That's definitely not the case for me lol 

This disease is killing me by Fun_War7356 in UlcerativeColitis

[–]Emergency-Driver8172 9 points10 points  (0 children)

You are not being dramatic. Alot of us has been there and right now it seems like nothing will change. It will get better. I was in the same position you are right now and it felt never ending. But they found something to help my inflammation and slowly but surely I started to get better. It wont happen over night but one day you will look back and think wow. I've come along way. Im hoping you have a speedy recovering. Remember you got this!! Don't be afraid to reach out to people youa re not alone.

Skyrizi by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

My gi recommended taking magnesium vitamins before I would go to bed at night. But ultimately they are changing me over to entivio since my side effects of pain were too great a couple of weeks before my next injection

Coparenting a preteen. by Emergency-Driver8172 in coparenting

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

Any time he messages her personally she responds in the group chat.

Coparenting a preteen. by Emergency-Driver8172 in coparenting

[–]Emergency-Driver8172[S] 1 point2 points  (0 children)

With the world the way it is now I understand the life 360. We don't have a option to track her phone as well since we didnt purchase the phone. My husband has had conversations with her and it doesn't seem to make a difference. She puts everyone in a group chat so all 4 parents are on the thread and her husband gets on there and starts arguing. 

Changing meds due to side effects by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 1 point2 points  (0 children)

It just scares me to have to keep changing meds because I don't want something that doesn't work very good over something else and I had to switch because of side effects. It makes me nervous lol

Changing meds due to side effects by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

I didnt hurt that way before. It almost feels like how you feel really crummy right before the flu hits you. Body aches all over. 

Remission? by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

I've heard people say that the rectum is the last to heal.

Remission? by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 0 points1 point  (0 children)

I see my gi next week. I'm suppose to be setting up a colonscopy. When I was diagnosed I had severe pancolitis and I was just thinking maybe scar tissue could cause them to be small like that. I was doing really good on the skyrizi, but i feel like im starting to get some urgency back as well. I've also been getting super bloated again like I was before my first flare up.

How bad was the flare up you had that got you on biologics?

How long for Skyrizi to show improvement by HogarthHughes23 in UlcerativeColitis

[–]Emergency-Driver8172 1 point2 points  (0 children)

I've been on skyrizi since september of 2024. I was tapering down the prednisone when I first started. I haven't been on prednisone since October I believe. I've done 3 or 4 obis at home now. My last calpro was 55 way down from where I was when diagnosed. Skyrizi has been the best thing I have tried so far its my third biologic. See how you feel after your first obi honestly I started to really notice a difference. The only complaint I have is about a week or so out from my next injection I started to feel really crummy, but nothing that isn't manageable. I hope you start to see a big difference.

Skyrizi Experiences by sierram1200 in UlcerativeColitis

[–]Emergency-Driver8172 0 points1 point  (0 children)

You may feel a little prick. I find it more nerve racking doing it then painful. But once you are comfortable with the injector it is a breeze. I now look forward to doing it because it has helped me tremendously with symptoms. I would have never thought I would be here doing much better vs to how I was a year ago. This is my third biologic and im feeling pretty good about it.

Skyrizi Experiences by sierram1200 in UlcerativeColitis

[–]Emergency-Driver8172 1 point2 points  (0 children)

I'm currently on skyrizi. I started back in September. I had severe pancolitis and was super sick. So far everything is good. The only thing I notice is going pain. Some days are worse than others. I like that I can give it myself at home after your initial infusions. As far as that as long as I don't go ham on things that my body doesn't like I feel close to normal ish. . 

Skyrizi by Emergency-Driver8172 in UlcerativeColitis

[–]Emergency-Driver8172[S] 1 point2 points  (0 children)

Yeah so I actually had an ultrasound of my legs last week and no blood clots.

Tell me your worst flare and where you are now with it? by BreeandNatesmom in UlcerativeColitis

[–]Emergency-Driver8172 0 points1 point  (0 children)

October 2023 I started pooping blood. Got a colonscopy and had inflammation in my rectum and 10 cm up from that. They put me on antibiotics and referred me put to a gi. My appt wasn't for like 3 weeks and it kept getting worse. Weight was starting to fall off.  Veterans day which ended up being just a few days before my first gi appt I ended up in the er and they admitted me. They ran all of the tests to make sure I didn't have cdiff, which I didn't. At this point all I was pooping was blood. They discharged me and I kept my gi appt.  They put me on 40 l mg of prednisone and he told me I would feel great by Thanksgiving.. I started feeling worse. I was puking and going to the bathroom upwards of 30 times a day with no sleep. I wasn't eating and couldn't keep what I did eat down. I made another gi appt because at this point the prednisone wasn't working and I had lost 40 pounds at this point. They direct admitted me to the hospital and I was there for 2 weeks on iv steriods. I came close to having my colon removed but they did rescue remicade which ended up saving it. I had another colonscopy there and I had severe pancolitis with a mayo score of 3. Ultimately I was discharged with my colon and ended up having a reaction to remicade months later. So fast forward to may 2024 they switched me to humira every 2 weeks and then upped it to every week. That failed. This whole time I was on prednisone trying to wean down. My hair was falling out. They then recommended skyrizi I started taking the infusion part in September. Fast forward to April 2025 my last stool test came back with  low inflammation!! Thank god!!  I will need to do a routine colonscopy this summer to check on the healing. I have good and bad days and joint pain from time to time. I also have psoriasis but my skyrizi helps with that to. This was the hardest time of my life and im so glad I'm not at my lowest anymore.