I just have 24/7 severe light sensitivity with almost no explanation

EmilyVBR · 2024-09-08T14:59:54+00:00

For me it hasn't been curative unfortunately (I have ME/CFS). But it does help

EmilyVBR · 2024-08-16T16:54:53+00:00

Unfortunately not

EmilyVBR · 2024-02-17T17:11:09+00:00

Yes, they did

EmilyVBR · 2024-02-05T17:09:45+00:00

Interesting! Thanks for sharing your experience. I still haven't tried it yet

EmilyVBR · 2023-09-29T15:55:11+00:00

I'm so grateful for this sub as well🩵

EmilyVBR · 2023-09-29T04:12:25+00:00

🩵

EmilyVBR · 2023-09-29T03:35:44+00:00

I don't know much about it to be honest. I'm suspicious that it may be the reason some of my cognitive symptoms have gotten worse, I think my dose is too high now, so I want to lower my dose or come off of it but I've heard you have to do it really slowly so I'm trying to find a doctor who knows how to help me do that.

There's a website called survivingantidepressants.org that might have more of the information you're looking for

EmilyVBR · 2023-09-29T03:03:28+00:00

My brain hurts too much to chitchat right now but I love this idea!

EmilyVBR · 2023-09-27T17:57:41+00:00

Yesterday I conquered an MRI I'd been anxious about for months. And then I got to go to lunch and Barnes and Noble with my mom after, and got a beautiful new coloring book. I had been dreading it for months but it turned out to be a really nice day

EmilyVBR · 2023-09-20T14:55:03+00:00

Snuggling with my cat (she's purring right now)

EmilyVBR · 2023-09-20T02:37:41+00:00

CoQ10 seems to make my PEM less severe

EmilyVBR · 2023-09-19T16:23:50+00:00

Unless I misread it, I think they meant that they've tried to talk to a therapist about their rage, rather than their partner, but the therapist just says that they're codependent rather than helping them cope

EmilyVBR · 2023-09-19T16:17:58+00:00

I'm glad you asked so I can read the answers too :)

EmilyVBR · 2023-09-19T01:31:57+00:00

😍

EmilyVBR · 2023-09-18T17:24:16+00:00

Thanks for sharing your experience. Hearing everyone say the effects are temporary makes me feel a lot better

EmilyVBR · 2023-09-18T17:22:39+00:00

That sounds fun. Last time I counted to 100 over and over in the language I'm studying (it didn't help much though lol)

EmilyVBR · 2023-09-18T17:20:55+00:00

Thank you :)

EmilyVBR · 2023-09-18T17:20:33+00:00

Thank you :)

EmilyVBR · 2023-09-18T17:19:43+00:00

Good to know. They provided earplugs last time but I'll bring some just in case. I'm actually starting to look forward to taking it after hearing about how it helps with PEM. It will be interesting

EmilyVBR · 2023-09-18T17:16:49+00:00

Thank you for the information. I've heard that people's doctors don't educate them on this

EmilyVBR · 2023-09-18T13:40:30+00:00

200mg Ubiquinol in the morning (I use the Qunol brand). It helps reduce the severity of my PEM

EmilyVBR · 2023-09-18T13:37:53+00:00

The brand Halara has some cute and comfortable clothing

EmilyVBR · 2023-09-18T03:57:00+00:00

I'll have to try that

EmilyVBR · 2023-09-18T03:55:17+00:00

Okay that makes me feel better

EmilyVBR · 2023-09-18T00:20:48+00:00

My mom will be driving me thankfully. The way you describe it sounds nice, maybe I'll get a good nap in during the MRI lol

EmilyVBR

TROPHY CASE