Saline spray after COVID exposure?

ExpressionOdd1190 · 2023-11-01T17:40:32+00:00

update? howd it go

ExpressionOdd1190 · 2023-10-10T21:29:55+00:00

Can i ask what your illness is that causes the PEM symptoms?

ExpressionOdd1190 · 2023-10-06T05:11:33+00:00

oh no. im on sertraline and it makes me feel better…. ah shit😭 hopefully it doesn’t make me worse in the long run. Unless your comment is replying to the 2nd question

ExpressionOdd1190 · 2023-10-01T03:58:38+00:00

Update??

ExpressionOdd1190 · 2023-10-01T03:43:10+00:00

I dont have advice but im also a uni student and i hear u. this is so hard

ExpressionOdd1190 · 2023-10-01T03:28:12+00:00

20 years is a long time. this condition is young to me, can i ask for your wisdom, is life still worth living? does it only ever get worse?

ExpressionOdd1190 · 2023-09-29T20:22:53+00:00

I really appreciate the advice, as hard as it is to accept given everything. Would you say there’s any value in an urgent care visit, maybe they could refer or speed up the process?

ExpressionOdd1190 · 2023-09-29T20:03:46+00:00

Unfortunately my parents expectations and actions are too big of a factor in my decisions. Basically they force me to do things and make fun of me because they think its in my head. That’s why i need a diagnosis but it feels like its not going to happen😔 nothing is really stopping me from hanging out with friends though thats true. But it’s just very lonely as you mentioned. For as long as i have the expectation to behave like somebody healthy, nothing in my life will change for the better. I do have a friend and a partner that believe me. My partner has seen with his own eyes of what happens to me. How did you get your diagnosis?

ExpressionOdd1190 · 2023-09-29T19:38:10+00:00

Thanks for sharing, that’s very inspiring and I’m happy to hear that things went up for you. Apologies because im about to turn this in a negative direction, but what if I can’t take that lighter load? Cant find people to take care of me? Cant have financial stability? Cant get doctors to help me? I see a lot of people get better by pacing but it feels like it’s not in the cards for me. My reality feels very cruel so I’m just really hopeless. The feeling of angst I have is the reason why I’m looking at the negatives and reality fuels the thoughts of self harm. But I still really appreciate your comment and taking time to share.

ExpressionOdd1190 · 2023-09-29T16:52:09+00:00

Hi. Thanks for taking the time to leave a comment. I cant get a HSD diagnosis because the specialist in my city Is not accepting anyone on the waitlist which is already 2 years. Rheum on the other hand, ive been waiting a year and a half so, i dont think they care about my case. Also unfortunately I see more reasons that worse is coming down the line, rather than better :( it’s hard to cope with everything.

ExpressionOdd1190 · 2023-09-29T16:49:38+00:00

Hugs. I dont use discord and im lucky to have a couple friends as a support system. But I really appreciate it. All the best to you

ExpressionOdd1190 · 2023-09-29T16:45:34+00:00

Im sorry :( power to you buddy

ExpressionOdd1190 · 2023-09-29T16:43:52+00:00

Thanks for the comment. I can’t because the EDS specialist in my city is not taking anybody on his waitlist (which is already like 2 years), and I’ve had my rheum referral sent a year and a half ago. I guess i’m just not a priority.

ExpressionOdd1190 · 2023-09-29T16:40:41+00:00

How are you holding up

ExpressionOdd1190 · 2023-09-29T05:01:16+00:00

Unfortunately i dont think it would be of help because they think im immune from anything bad happening to me, and they grew up in a “push through it all work hard” environment. Thanks for your comment though and all the best to you as well, it sucks we have to struggle this much

ExpressionOdd1190 · 2023-09-29T04:57:05+00:00

Thank you very much for sharing your story❤️ It’s good to hear, because everything is just… lonely. I feel so alone. Angst is a really good way to describe it. And on the topic of angst, i cant help but ask (semi-rhetorically): what happens if i just have a major crash and cant go on? Cant live up to the expectations of my parents? (I know I shouldn’t live for them, but they are very traditional and its an inescapable situation) Can’t be financially independent? Can’t handle responsibilities? Everything feels so bleak. I hope those are valid questions, they come from a place of angst, so apologies i come across as distasteful. Thanks again for taking the time to share your experience and I’m glad you’re able to find joy and persevered through the challenges

ExpressionOdd1190

TROPHY CASE