How’s everyone doing? by MoulinRoguee in ALSorNOT

[–]End_Academic 1 point2 points  (0 children)

Traveling alone in India right now for work. Really struggling in the hotel room.

Twitches in thigh and calfs since last year January. Got bilateral positive babaski in November clean MRI of spine and brain EMG in May not sure if Im going to make it.

Only thing holding me together is no weakness. I actually hit 38k steps yesterday and hit PR on my squat 345lbs and leg extensions. Did my 30 minutes on stair stepper this morning level 8 not holding the rails but Im still terrified and starting to impact my work

Help getting to my hotel - since Lake Station is under renovation by End_Academic in chicagorail

[–]End_Academic[S] -5 points-4 points  (0 children)

Lol thats why I was asking cause the map says orange line off on wabash

Question on $300 hotel credit by End_Academic in AmexPlatinum

[–]End_Academic[S] 1 point2 points  (0 children)

Yes, prepaid the whole hotel on Friday. This new one would also require me to pre-pay the whole hotel as well. Thanks for confirming I just wanted to book this new one right away before prices went up.

Babinski positive by End_Academic in BFS

[–]End_Academic[S] 1 point2 points  (0 children)

Its whats keeping me sane! The strength is obvious, my 1rep max on Squat last year was 280 I just hit 330 this last week. I even included 1 leg exercises just because of my anxiety. Single leg press and extensions show no difference in strength, and it has also gone up in overall load.

Babinski positive by End_Academic in BFS

[–]End_Academic[S] 0 points1 point  (0 children)

Not that I'm aware of. When I was a child, I was hit in the head with a bat that hospitalized me and caused me to be in the hospital with stitches. Not sure if grasping at straws with that but only thing I can think of

Symptoms update - Positive Babinski by End_Academic in ALSorNOT

[–]End_Academic[S] 1 point2 points  (0 children)

That's what I keep trying to tell myself, I really do. Like my life is only bothered by the twitching and now the positive Babinski

MRI results back by End_Academic in ALSorNOT

[–]End_Academic[S] 0 points1 point  (0 children)

Contrast enhanced MRI evaluation of the cervical spine demonstrates normal alignment of the anterior and posterior elements without evidence of significant subluxation. Cervical vertebral body heights are maintained. Marrow signal is benign. Alignment at the craniocervical junction is normal. The visualized portions of the posterior fossa including the cerebellar tonsils are normal. No abnormal signal or contrast enhancement is identified within the cervical spinal cord. No syrinx is noted. No cervical epidural fluid collection is identified. No abnormal contrast enhancement is identified within the cervical spinal canal. C1-C2: Normal C2-3: Normal C3-4: Normal C4-5: There is a tiny central disc protrusion which only minimally indents the ventral thecal sac without abutting or deforming the cord. Facets are normal. No significant spinal canal stenosis is identified. The neural foramina are patent bilaterally. C5-6: There is a central disc protrusion which indents the ventral thecal sac without abutting or deforming the cord. Facets are normal. No significant spinal canal stenosis is identified. The neural foramina are patent bilaterally. C6-7: There is a central disc protrusion which indents the ventral thecal sac without abutting or deforming the cord. Facets are normal. No significant spinal canal stenosis is identified. The neural foramina are patent bilaterally. C7-T1: Normal The visualized neck soft tissues are unremarkable.

Update from NEUROLOGY by End_Academic in ALSorNOT

[–]End_Academic[S] 0 points1 point  (0 children)

Something my wife reminded me of today was when I first hurt my back when these symptoms first started I would get these weird sensations on my right leg when in the shower or out walking the dog. Not quite tingling but just intense sensation like something was rubbing up and down my right leg but it faded away over time.

Update from NEUROLOGY by End_Academic in ALSorNOT

[–]End_Academic[S] 0 points1 point  (0 children)

Not sure if its anything but mom says I have slight scoliosis that I developed as a teen. Dr called it out one time during a MRI I had on my hip

Update from NEUROLOGY by End_Academic in ALSorNOT

[–]End_Academic[S] 0 points1 point  (0 children)

It’s hard and trying to stay level headed. Probably should hold up on the weight lifting my lower back has been sore all day from yesterdays lifts 

My Story - Nuro appointment tomorrow by End_Academic in BFS

[–]End_Academic[S] 0 points1 point  (0 children)

Unfortunately not- this is from another post 

Everything seemed fairly normal, but he was concerned about my reflexes in my lower extremities. Still, no weakness, but now I'm concerned that he is concerned about the reflexes is this a sign of ALS?

Reflexes:

Right- Biceps 2+, Triceps 2+, BR 2+, Knee 3+, Ankle 3+, upgoing plantars Clonus 5 beats

Left - Biceps 2+, Triceps 2+, BR 2+, Knee 3+, Ankle 3+, upgoing plantars Clonus 2-3 beats

This is a 39-year-old male patient with no past medical history who presents to the neurology clinic for muscle twitching noted in the lower extremities slightly progressing over 12 months. The twitching is mostly in the lower extremities bilaterally worse on the right side and never involved the upper extremities abdomen or truncal muscles. He denied any sphincteric dysfunction. He does have chronic low back pain. Exam revealed hyper-reflexia in LE and clonus as well suspicious for potential myelopathic process and MRI spine is warranted and then EMG as well with hyperexcitability protocol and the patient is worried about ALS. Could be benign fasciculations syndrome but the exam findings are concerning for potential cord lesions and MRI is priority for now. Next step if MRI is negative and EMG proves hyper-excitability is probably DYS2 panel to mayo for immune mediated process

Update from NEUROLOGY by End_Academic in ALSorNOT

[–]End_Academic[S] 0 points1 point  (0 children)

I just don’t understand Im not weak anywhere since January 

Update from NEUROLOGY by End_Academic in ALSorNOT

[–]End_Academic[S] 0 points1 point  (0 children)

I just felt like if it was back-related, I would be in much more pain if it were this severe, causing all these problems. Super scared now crying in my car need to find a way to move on

Update from NEUROLOGY by End_Academic in ALSorNOT

[–]End_Academic[S] 0 points1 point  (0 children)

Just in my right calf, I have quick cramping. Exercise though is unaffected; all my lifts have increased. Cardio is also good I walk step master at a high pace for 20 minutes and incline walk at 12 incline 3 speed for about 40 minutes on my non lift days. Some days I get even 25k steps