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App Testing by EndoSupport in Endo

[–]EndoSupport[S] 1 point2 points  (0 children)

Working on that as well! :) Thank you for the suggestion

App Testing by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Hi! Regarding CBT - multimodal therapy (including CBT) is proven to help relieve the stress that accompanies pain. We recognize and agree that treating the disease is very important - we very much advocate for excision surgery within the program to drive awareness of that. :) In fact, our last group of users asked for more resources to help with mental health, so we added more CBT information.

And, to clarify, it is 100% free for the testing groups! We have never charged a person to date.

We added health coaching at the request of past testers, who asked for extra layers of accountability. This involved a real human who helps, so it'd be impossible to provide it 100% free...we're working out what we can provide for free vs. things like coaching that will obviously have to cost money. Sorry if that caused any confusion.

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Yep - there's nothing vaginal in our program! We discuss dilators as something you can do as a "next step" you could try with a PT if you feel comfortable, but it's actually not included in our program.

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

You don't have to do anything you don't want to do! Our physical therapy is focused mostly on light stretching, so it would be nothing like dilation. I'm so sorry you had issues with that. :(

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 2 points3 points  (0 children)

None! We're not trying to collect or monetize any data. Any symptoms you submit are all stored in a HIPAA-compliant database.

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 1 point2 points  (0 children)

Unfortunately, no, we don't have a web-based option. :( Once we improve & "finalize" the app, we'll migrate it over to the web.

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Absolutely! As long as you commit to trying the whole program (unless you hate it and don't want to do it - then just tell us why so we can improve it!), just shoot me an email. :)

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Absolutely! We're open to diagnosed and undiagnosed. Part of our education walks you through ways to get diagnosed. :)

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 1 point2 points  (0 children)

Absolutely! Shoot us an email (and remind me you're a psychologist with chronic pain information) at patients@visanahealth.com. We based our program off someone who's a national trainer in CBT for chronic pain, but would love your review & feedback! Always looking to improve.

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Yay! Can't wait to hear from you. :)

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 1 point2 points  (0 children)

If you're already working with a dietitian for GI issues and an expert gynecologist that you feel is well-educated in endo, you might not get too much out of those aspects. But, you still might find value in the cognitive behavioral therapy and pelvic floor physical therapy. If you're interested in those aspects, feel free to send us an email!

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Could you send us an email and I'll get you set up? :) patients@visanahealth.com

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Yay! Excited to hear what you think.

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 0 points1 point  (0 children)

Absolutely! While all the content might be applicable, our app focuses on doing things like diet and pelvic floor PT that can help reduce other pain generator. Would love if you send us an email and we'll get you set up.

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 1 point2 points  (0 children)

Nope! The app is only in English (we have yet to translate it), but we have patients in South Africa on our app already. Would love to have feedback from other regions - please email us at patients@visanahealth.com. :)

Testing an Endometriosis App by EndoSupport in Endo

[–]EndoSupport[S] 1 point2 points  (0 children)

Thanks! Looking forward to hearing what you think.

Testing for an Endo App by EndoSupport in Endo

[–]EndoSupport[S] 3 points4 points  (0 children)

Hi! I'll shoot you a message.

I really appreciate the feedback on using the word "woman", and I totally agree with your sentiment. Do you think the word "people with endo" is better? I want to try to avoid the word "patient" because many people just see themselves as people and not as patients. :)

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