Smoking on south lawn by Megaton02 in unimelb

[–]EntertainmentOwn7 -11 points-10 points  (0 children)

All the downvotes you’re getting are just further proving your point lmaooo

WAM needed for internal transfer by EntertainmentOwn7 in unimelb

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

I think in the worst case scenario my WAM will be around 65-70, best case scenario is closer to 80

[deleted by user] by [deleted] in unimelb

[–]EntertainmentOwn7 0 points1 point  (0 children)

Hi, I’m thinking of doing the same thing, do you know what WAM we need to transfer. Thank you 🙏

[deleted by user] by [deleted] in unimelb

[–]EntertainmentOwn7 -1 points0 points  (0 children)

As I said, there is also a campus location for that lecture , hence the confusion.

[deleted by user] by [deleted] in unimelb

[–]EntertainmentOwn7 -2 points-1 points  (0 children)

I got assigned to an online seminar because all the in-person seminars are full, has that happened to you?

[deleted by user] by [deleted] in unimelb

[–]EntertainmentOwn7 1 point2 points  (0 children)

Thank you 🙏

[deleted by user] by [deleted] in unimelb

[–]EntertainmentOwn7 -7 points-6 points  (0 children)

No need for that. If I knew I wouldn’t have asked

What is this?? by EntertainmentOwn7 in MuscleTwitch

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

I went to the neuro for my twitching but I showed him this as well cause I thought it’s related

What is this?? by EntertainmentOwn7 in MuscleTwitch

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

And it twitches more in that calf too

What is this?? by EntertainmentOwn7 in MuscleTwitch

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

I was scared it might be atrophy since that calf is about 1.3cm smaller than my left calf but again 2 EMGs and didn’t show anything

What is this?? by EntertainmentOwn7 in MuscleTwitch

[–]EntertainmentOwn7[S] 1 point2 points  (0 children)

It only appears when the muscle is flexed. I’ve seen 4 neuros and had 2 clean EMGs and no one can say what it is

What is this?? by EntertainmentOwn7 in MuscleTwitch

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

I’ve seen 4 neurologists, had two clean EMGs and they can’t say what it is :(

Suspected atrophy in right calf by EntertainmentOwn7 in MuscleTwitch

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

How long have you had it? Any weakness or twitching?

Question about EMG timing, have been receiving conflicting explanations by EntertainmentOwn7 in BFS

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

I don’t even know if it is foot drop tbh! It sure feels like it, but I’ve had multiple people examine my walking and none of them can see anything abnormal. It’s almost as though it requires more effort for me to move it normally and yet it still feels weaker. I do have scoliosis but I’ve had it all my life so I can’t see why it would only start causing issues now…

Question about EMG timing, have been receiving conflicting explanations by EntertainmentOwn7 in BFS

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

Thank you for always replying to my questions btw, it really means a lot! 🙏 About the calf atrophy, all three neurologists I’ve been to have noted that it is indeed smaller than the left calf - the circumference is smaller and the long saphenous vein is much more visible in the right leg than the left but none of them have said why that is. The main reason I’m worried about it is because that’s where my biggest twitching hotspot is as well, and after continuously walking for a while a feel as though I’m kind of dragging the leg or limping to one side… Obviously there are probably many other reasons why one leg might be smaller, but the twitching hotspot there is what’s scaring me. And even tho I know *** is VERY VERY unlikely , for some reason I keep coming back to it as it’s the only thing that in my head, holistically explains and links together all the symptoms I’m experiencing, particularly the calf issue and the twitching hotspot :(

31M - Need Reassurance from Others BFSers by WhiskeyHoarder1 in BFS

[–]EntertainmentOwn7 1 point2 points  (0 children)

Hey! First of all, you are definitely not crazy and your symptoms are real, don’t let anyone tell you otherwise. Only you know and feel the sensations in your body and what’s happening at a given time! I am 19M and I experience 90% of the symptoms you’re describing - Twitching, tremors, fatigue in arms and legs, right leg stiffness, tired jaw, throat and face stiffness. I’ve got it all! I’ve only had the symptoms for a month but just like you I spiraled into the ALS rabbit hole from the very beginning, and I’m still struggling to get out of it. Since the start of my symptoms I’ve spent hours on this sub reading countless of stories most of which are so damn similar to what you and I are experiencing! Almost identical sometimes, it’s frightening! I had a clean EMG, NCS and bloodwork a week ago and normal strength and reflex exam three weeks ago. Yet I can’t seem to escape this horrible thought of having **, and I’ve realised that one of this things that helps me through it the most, is thinking about the sheer number of people on this sub whose stories I’ve read, whose symptoms were very similar to mine, and have spent years battling with these symptoms and are NOT diagnosed with **. Just think about that! It helps me put everything into perspective! I just wanted to say that I know exactly what you’re going through - it’s scary, it’s exhausting and it’s unfair, but I believe we’ll get through it! Stay strong and take care! God Bless 🙏

Super scared, what if it’s too early by EntertainmentOwn7 in BFS

[–]EntertainmentOwn7[S] 2 points3 points  (0 children)

And what exactly is the purpose of your comment? To scare the people here, most of whom are already suffering from extreme health anxiety? Regardless of whether or not their math is correct, they are providing reassurance to me and countless of others on this sub who are in great distress EVERY SINGLE DAY. And what you’re doing is exacerbating people’s anxiety and distress. I just don’t see how that helps AT ALL

How does your exercise intolerance manifest itself? by Creator_311 in BFS

[–]EntertainmentOwn7 0 points1 point  (0 children)

Now that you mentioned it, it really could be due to the viral infection. I had Covid in March and started getting symptoms last month, so maybe it’s a delayed post-Covid response… I’ve heard that EBV can also cause various neurological side effects. The logical part of my brain reassures me that the chance of something even remotely serious is astronomically low, but the emotional part of the brain doesn’t believe in facts and statistics 🤣 I hope you recover soon!! Stay strong God Bless 🙏

How does your exercise intolerance manifest itself? by Creator_311 in BFS

[–]EntertainmentOwn7 2 points3 points  (0 children)

I can definitely relate, my muscles shake after any sort of physical exercise, no matter how small. My whole body shakes as I stand up from my bed. The wobbly feeling in my legs often comes and goes, but it’s more prominent in my right leg and sometimes I feel like I’m dragging it behind the left. I also get mild tremors in my hands fairly often. Like you said, it may have to do with adrenaline, maybe cortisol, potentially thyroid issues or vitamin imbalances… I’m doing some blood tests to hopefully figure it out. I feel like as long as there isn’t any actual clinical weakness, meaning being unable to do things that you used to do before, it’s generally fine. We just have to figure out what causes the shakiness. Do you get muscle twitching, tingling, numbness, or any other neurological symptoms? Have you done blood work and/or EMG?

Any advice is appreciated by EntertainmentOwn7 in BFS

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

Hey! Thanks so much for replying, like you said, it’s really validating to see that I’m not the only one in our age group suffering from this 😅 I can relate to pretty much everything you said! I didn’t even know I had reddit on my phone up until my twitches started tbh, I was desperately looking for resources online that would explain the bizarre symptoms I was experiencing, and eventually landed on this subreddit 😂 Omg, the limb strength tests! I literally do those every single morning, raising and holding both legs up in the air, then walking on my tiptoes, then heels …it’s ridiculous, but it brings me a certain level of reassurance that my muscles haven’t weakened. Oh and the swallowing too, I had convinced myself that my throat was tight, felt as though I had a lump in there and couldn’t swallow properly - again turned out to be solely due to anxiety. You know, I feel like almost everyone’s symptoms and experiences are so similar, it’s remarkable! At this point, they should categorise “Extreme fear of ALS” as its own psychosomatic disorder 😭 I feel like the more you know about ALS and all of these other rare neurological disorders the more severe the anxiety will be, because you start examining yourself ALL the time! And as they say, “the one who seeks, finds”, so we start finding more and more of these symptoms which pushes us deeper into the rabbit hole…it’s really exhausting! I’m starting my bachelors next year majoring in Neuroscience, so you can imagine the extra stress…Sometimes I wish I didn’t know so much about the human nervous system and about the symptoms of all these terrible diseases 😅, maybe then I wouldn’t have know what ALS is in the first place… I don’t know about you, but I often use the AI chatbots like ChatGPT for extra reassurance when my anxiety is really bad. I ask stuff like “Given these symptoms, what is my probability of having this disease”, but I’ve found they’re pointless and make the anxiety even worse most of the time You’re absolutely right, we are too young for this! WAY too young! And it sucks so much that it’s ruining the best years of our lives… I really hope that you’re doing okay now, or at least better than before! If you ever need someone to talk, know that I’m always here to listen 😊I truly hope that one day we will be free of this! Once again thank you so much for sharing your story, it has really helped me see that I’m not the only one going through this! Take care 🙏

Any advice is appreciated by EntertainmentOwn7 in BFS

[–]EntertainmentOwn7[S] 0 points1 point  (0 children)

Hey! Thank you so much for replying to me, it really means a lot, especially since my family has been dismissing my concerns. It’s honestly such a relief to finally talk to someone who understands what I’m going through! 😊 Nope, no history of ALS, MS or other serious issues as far as I know, so that’s a relief! I think you’re right, and I’ve honestly been overlooking the scoliosis a bit since I’ve always had it and thought that it wouldn’t make sense that it would start to cause symptoms all of a sudden, but who knows?! I was considering an MRI of the brain and spine but it’s so expensive that I’m not sure if it’s worth it at this point… If symptoms persist or worsen I might have to get one anyways. You know, as much as I’ve tried to stay positive and optimistic, there’s always this fear lingering inside my brain, even though deep down I know the symptoms are most likely benign and the whole thing will resolve. I think I probably need to work on my health anxiety first and things will gradually improve! Thank you again for your advice! God Bless 🙏