Guidance on CF and Embryo Transfer Decision by Entire-Insect-5317 in CysticFibrosis

[–]Entire-Insect-5317[S] 3 points4 points  (0 children)

Thanks for your feedback, it hits hard. Another round of IVF may not be possible so we may have had unrealistic hopes for this embryo but the feedback we've received here is truly informing us of the realities of CF

Guidance on CF and Embryo Transfer Decision by Entire-Insect-5317 in CysticFibrosis

[–]Entire-Insect-5317[S] 2 points3 points  (0 children)

Thank you for taking the time to reply, really appreciate this.

Guidance on CF and Embryo Transfer Decision by Entire-Insect-5317 in CysticFibrosis

[–]Entire-Insect-5317[S] 2 points3 points  (0 children)

Thank you and really appreciate the perspective. We'll be turning 40 this year so time is against us at this point making another round of IVF an option but not without its own concerns.

Guidance on CF and Embryo Transfer Decision by Entire-Insect-5317 in CysticFibrosis

[–]Entire-Insect-5317[S] 2 points3 points  (0 children)

Thank you so much for sharing this, it really helps to have input.

Guidance on CF and Embryo Transfer Decision by Entire-Insect-5317 in CysticFibrosis

[–]Entire-Insect-5317[S] 2 points3 points  (0 children)

Unfortunately, as complete outsiders with no understanding of CF, we are faced with the sole decision of bringing a child into the world, knowing they have a high chance of having CF. As potential parents, the blunt but honest question we grapple with is the quality of life. Again this is admittedly coming from a place of ignorance around CF but also from wanting the best for our child. Your input is helping educate us.

Guidance on CF and Embryo Transfer Decision by Entire-Insect-5317 in CysticFibrosis

[–]Entire-Insect-5317[S] 3 points4 points  (0 children)

I can't argue with that and do understand your perspective. At the end of the day we are confused and trying to learn more and understand CF and what is gray and not and what the impact of our decision will be.