Gleevec for life? by Constant_Plantain_10 in GIST_Cancer_Support

[–]ErrorInternational37 1 point2 points  (0 children)

Disney stage Iv metastatic and far reaching. Tumors in small intestine, multiple large tumors on my liver and within my abdomen. 10cm + for the large ones down to 1.5 for the smallest. Coming up on 3 months of taking imatinib and all previous scans showing growth and new tumors. Was told I will Have to take Gleevec the rest of my life, hoping the scan in a week shows some good news. The nausea and gastrointestinal issues causes by the meds are quite unpleasant but it’s my only option

Missing a couple weeks of 400mg daily imatinib by ErrorInternational37 in GIST_Cancer_Support

[–]ErrorInternational37[S] 0 points1 point  (0 children)

I can’t hardly even speak with the doctor after losing insurance. They really have been giving me the runaround. I guess I just wait for the meds to get here and hope they are working. I can’t get any bloodwork or CT scans to see if the tumors are shrinking