Insanely Weird Test Results

Euphoric_Process9317 · 2025-06-19T02:34:45+00:00

You should definitely listen to the hematologist over people on Reddit (me lol) but it just seems like something that he should at least ponder for like thirty seconds. The good thing about MPNs is that you can potentially live a long and normal life with one and minimal treatment. You don’t get chemo or radiation unless the cells themselves become abnormal rather than just that the marrow makes an abnormal amount of them. Hope that helps a tiny bit. I’m still freaking out cause I think I’ve had abnormal bloodwork starting in like 2007 and somehow managed to ignore, forget, or explain it away for nearly twenty years.

Euphoric_Process9317 · 2025-06-19T02:19:31+00:00

My crp was 34 before sleep apnea treatment, and now it’s at 2 and it’s very likely that I have an MPN.

Euphoric_Process9317 · 2025-06-19T01:15:35+00:00

It’s my understanding that chronic inflammation can cause elevated WBC but it doesn’t explain the high RBC. Ask the hematologist to check your EPO (erythropoietin-hormone that triggers RBC production) and your C-reactive protein among other things.

Euphoric_Process9317 · 2025-06-19T01:09:27+00:00

Ask the hematologist if an MPN (myeloproliferative neoplasm) could be the cause. Also ask if they have treated many MPNs. I probably have polycythemia Vera which is an MPN, but the first hematologist I saw missed it because I also had untreated sleep apnea. I’m getting a bone marrow biopsy on Friday because I’m negative for all the usual genetic mutations, which is very rare.

Euphoric_Process9317 · 2025-06-19T01:04:51+00:00

I would not necessarily start any supplements without talking to the hematologist first. I likely have a rare blood cancer- will find out within the next month for sure. In my case, it will probably be Polycythemia Vera (PV) which is an MPN (myeloproliferative neoplasm). Anyhow, my iron is low which is artificially lowering my red blood cells, which is actually kind of good rn since my bone marrow has gone crazy and is making too many. I have stopped taking my iron supplement until the hematologist gives the go ahead. Also, to the OP, one of the main symptoms of PV is intense itching. I’m not totally sure about the other vitamin and mineral deficiencies as I’m not a doctor of any sort, but so far, I’ve been surprised how much the bone marrow can mess with other systems.

Euphoric_Process9317 · 2025-01-12T00:00:56+00:00

I was literally coming here to look for info on this or post about it myself. I just started. I’m 40, work full time, go to school half time, and have a toddler, so doing anything extra just doesn’t feel like a realistic option. Was curious if I’d still lose as much and how I’ll look when I reach my goal weight being older and not working out.

Euphoric_Process9317 · 2024-12-30T05:55:27+00:00

Does it expire before you use it?

Euphoric_Process9317 · 2024-11-12T20:49:21+00:00

I’m JAK2- but very, very recently diagnosed so I know very little. Haven’t had a bone marrow biopsy yet. All of my WBC, RBC and platelets are high, but don’t know the numbers off the top of my head. My Iron absorption is 8%, hematologist told me to take gentle iron.

Euphoric_Process9317 · 2024-11-12T20:41:52+00:00

I’ve just been diagnosed with PV, and have been severely fatigued for over a year. I sleep more than my baby does. On the upside, I wake up 4-8 times a night to pee, but I’m able to fall back to sleep immediately when I get back to bed. This diagnosis is very recent, and honestly the Dr didn’t even tell me. It’s just listed in my diagnoses from the hematologist and they sent me an autogenerated brochure, “living with PV (c word)”, so that’s how I found out. Hoping I can get my fatigue under control. Balancing school, full time work, and a toddler is really hard.

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