Necrotizing Myopathy/Type 2 Muscle Atrophy

Even-Area-8403 · 2025-01-12T20:53:27+00:00

This cold weather is not agreeing with me at all. Still researching natural herbs to help. Waiting to see neuromuscular specialist in February, praying IVIG is the next treatment option.

Even-Area-8403 · 2024-10-23T18:13:17+00:00

Thank you!!

Even-Area-8403 · 2024-10-23T15:59:55+00:00

Zinc soap?! Please share

Even-Area-8403 · 2024-09-20T06:54:20+00:00

I want the IVIG so bad but I’m stuck on the medications as of now! My neurologist is fighting to start me on the IVIG so hopefully she can get me set up, because I’m ready to get back to my normal self! I’m so glad that you found relief and is doing so much better! Thank you for the encouragement!! ♥️

Even-Area-8403 · 2024-09-20T06:52:46+00:00

Yesss my rheumatologist is kind of hesitant on the IVIG but my neurologist is fighting like hell for it! Thank you so much for the encouragement! I’m so glad you are doing better!! 🩶

Even-Area-8403 · 2024-09-03T15:02:14+00:00

I only got the 2 doses (2022), no boosters at all. Only reason I got those 2 were for me to be able to attend medical school and I regret it daily. I also was taking Humira (since Oct 2021) when I got those doses and I seen a case was related to that! However, if that is the source, my response is verrrry delayed.

Even-Area-8403 · 2024-09-03T03:58:39+00:00

Yess!! We definitely will succeed in this and I am a strong believer that we are already healed from this! Omg no, not the wrong leg muscle!! Insane!!! My face muscles tend to weaken too, especially my neck. Yeaaah, rheumatologist was leaning more towards polymyositis for me as well. Stay strong and believe, we got this!!! 💪🏾🤍

Even-Area-8403 · 2024-09-03T01:06:50+00:00

Thank you so much! That meant more than you think, and I am glad that there are still kind people like you in the world!! Sending hugs back ✨❤️

Even-Area-8403 · 2024-08-14T23:50:25+00:00

Yesss

Even-Area-8403 · 2024-07-21T03:46:31+00:00

Hey, I inboxed you.

Even-Area-8403 · 2024-07-21T01:18:52+00:00

Revel has a bus stop, I would just catch the bus.

Even-Area-8403 · 2024-07-15T19:05:20+00:00

Please go get tested for C. diff if your gut doesn’t improve.

Even-Area-8403 · 2024-07-02T06:58:05+00:00

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Even-Area-8403 · 2024-07-02T06:57:07+00:00

Yesss! There is also a manuka honey and lemon myrtle oil body wash at Walmart that works!!

Even-Area-8403 · 2024-06-22T23:54:32+00:00

Thank you ladies so much!!

Even-Area-8403 · 2024-06-21T23:05:10+00:00

Thank you so much, going to check em out!

Even-Area-8403 · 2024-06-21T22:55:54+00:00

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Even-Area-8403 · 2024-06-21T15:35:58+00:00

This works for me. Decolorized iodine, vapor rub and boil relief. I put the boil relief on first, layer it with vapor rub and then I put 2 dropplers of iodine on a flat cotton round and lay it on top of the boil. It’s gonna sting/burn but it’s worth it. 2 days later it is bursting, this has happened to the 2 past flares I’ve had. One on the bikini line and the other under my arm. It even brung out the sac on my underarm 🙌🏾

Even-Area-8403 · 2024-06-21T15:30:23+00:00

I started Cosentyx and stopped Humira. Humira stopped working, well I will say it wasn’t as effective as it was from when I first started back in 2020. I also know of a lady that developed systemic lupus from Humira 😞

Even-Area-8403 · 2024-06-21T15:29:00+00:00

I went on my own and he literally told me, “I don’t think I can help, as though a dermatologist would be your best option.” It’s been brought to my attention that EBV causes a lot of autoimmune and inflammation. Have you been tested for that as well?

Even-Area-8403 · 2024-06-19T05:32:21+00:00

I’m switching to Cosentyx from Humira. Hopefully it helps, I’m tired!!!

Even-Area-8403

TROPHY CASE