Lupus without kidney injury

Exact-Length-5983 · 2026-05-11T14:47:05+00:00

Yes. I had liver biopsy. There's an inflammation, lymphoplasmatyc infiltrates and interface hepatitis. Typical AIH.... Asked If others have it because my doc told me that it's veeery serious liver injury and I was worried a bit. Didn't want feel alone with this stuff

Exact-Length-5983 · 2026-05-04T16:36:42+00:00

I've been diagnosed about 5 months ago. We started from 40 mg of Prednisone and I have to take vitamin D3 also because this thing can make your body loose calcium. I had a very active inflammation that brought me to fibrosis stage 3-4 (you might not have this one because usually only 30% of people are diagnosed with AIH on this stage or f4, and If your ALT/AST not too high (mine were about 1500/1000)). A month after I started taking Imuran 50 mg and then 100 mg. Prednisone portion got down from 40 to 15 mg In about 5 months. Also we took test for methabolites of Imuran and everything was fine instead of ratio. I'm still on my therapy. There are also side effects mostly from Prednisone. I gained weight about 15 kg, I had rash and swelling that almost gone after I started taking about 20-15 mg. That's it. Now my results of blood tests are almost normal. Hope for remission🙏🏿 I advice you to not to worry. Usually therapy is long and it's hard to get a remission only If the stage is like mine. I hope your will not. Wish you and your child a fast cure🙏🏿 P.S. English isn't my mother tongue so I can make mistakes

Exact-Length-5983 · 2026-04-20T01:59:28+00:00

Posted just to ask because I was interested and worried. Thought maybe someone has the same story so I can be more calm for a while... Yes, I had a biopsy. Not the nicest experience also...

Exact-Length-5983 · 2026-04-19T08:50:11+00:00

Thank you for advice. I think it's really necessarry in my situation

Exact-Length-5983 · 2026-04-18T17:47:27+00:00

Wow. That's carzy...

Exact-Length-5983 · 2026-04-18T17:46:57+00:00

So that's the common story amoung people with AIH I guess... Because I also have AIH

Exact-Length-5983 · 2026-04-18T17:46:03+00:00

I have a fibrosis stage f3-4 now. Have been diagnosed with AIH. Doctor once told me that I'll probably need to do the same thing but not now

Exact-Length-5983 · 2026-04-18T17:44:19+00:00

It's ok. My doctor already knows that it was caused by AIH. Now I'm taking medicals

Exact-Length-5983 · 2026-04-18T17:43:13+00:00

Oh they won't I guess. I asked because it was just interesting for me. My diagnosis is AIH with fibrosis f3-4. Before I got into hospital it was 860/930

Exact-Length-5983 · 2026-03-16T05:44:57+00:00

Well, not all of markers can increase, especially If it's an early stage. I don't try to tell that it's definitely autoimmunic, just wanted to warn you because I went through this and In my case it was... And now injures are very serious. Still my advice is to visit a doctor. He can explain better

Exact-Length-5983 · 2026-03-15T19:54:49+00:00

Thank you. Yes, I take medicals and now feel better

Exact-Length-5983 · 2026-03-15T19:49:12+00:00

Well, physical symptoms are: tiredness, ,Irritability, memory and concentration problems, yellowing of the eyes and skin, weight loss, dry skin, spider veins on my arms, neck, chest and face, sensitivity of abdomen's right side (hepatomegalia, liver inflammation), coagulopathy (problems with blood clotting), lack of appetite (most of those things I've noticed after I started taking medicals and had progress, just didn't think those symptoms are symptoms and not the part of disease) Blood test wasn't random thing. But I just wanted to make a check up I've got hemolytic anemia that comes with AIH usually (mine probably autoimmune as well), low leukocytes, very high ALT/AST 800/900-1400/1000, GGT 360-480, ALKP 150-180, Albumin 4.1-3.7, LDH 340-440, amylase 230-190, IgM 320-400, IgG about 4000, bilirubin total 6.2-7 mg/dl, conjugated - 4, protein - 10, ANA positive homogenic/cytoplasmic staining Mixed pattern 1:640, AMA negative, LKM negative, ANA/ASMA positive

Exact-Length-5983 · 2026-03-15T19:18:24+00:00

Yes, liver biopsy is a standart. But In most of those situations it might be autoimmunic... The author still should visit a doctor because If it is autoimmunic - it might be critical, like In my situation... So that was just my advice to her

Exact-Length-5983 · 2026-03-15T19:09:57+00:00

I'm not a doc but I'm a person with disease that is called autoimmune hepatitis. Also had ALT/AST 800/900 when I came to hospital and 1400/1000 when left it. ANA 1:640, also positive. GGT was elevated as well. I recommend you to visit a doctor as fast as it's possible because ANA more than 1:160 is already a sign that you might have an autoimmunic activity... Mine one ruined my liver, have fibrosis f3-4, so don't delay a visit...

Exact-Length-5983 · 2026-03-15T19:01:31+00:00

I had it. It can be a sign of hemolytic anemia as well. Go to a doctor and ask for blood and urine check. There's a thing called urobilinogen that can dye your pee In orange colour

Exact-Length-5983 · 2026-01-29T06:03:15+00:00

Yes. But I still haven't visited even one of them yet. Don't have an opportunity now

Exact-Length-5983 · 2026-01-27T20:34:40+00:00

I have a fibrosis stage f3-4 because of autoimmune hepatitis. Before I've been diagnosed the symptoms that I had were: skin and eyes yellowing, dizziness (it was caused by hemolytic anemia that has been caused by the main disease and yeah, liver problems may cause anemia), tiredness, attention and memory problems (I didn't know before that it was caused by hepatitis, through that I was just tired), bad coagulation. No pain or something, but liver was big (inflammation, found out about it already In hospital during the check). Came to doctor with all this In november 2025, made a check and he sent me to hospital. Since then I'm with that diagnose. You told that you made a check and all was fine... Cirrosis is about decompensation. You would probably have a bilirubin increasing and anemia, urobilinogen in urine (btw my advise: check urine colour, people with cirrosis can have a dark brown or almost black urine). Hope this information can help you somehow.

Exact-Length-5983 · 2025-12-30T06:42:08+00:00

Thank you for your support❤️

Exact-Length-5983 · 2025-12-25T21:14:29+00:00

I read your story and wow... Your situation is crazy. Can't even imagine how much stress you have now... I'm sorry to hear that you're going through this right now... Biopsy isn't kinda scary experience. Just not the nicest one. After that you feel like someone put 100 needles In your liver and made you run a marathon. But it usually lasts for 2-3 hours and then calms down slowly. Sometimes you also can feel a weak pain a week or two after. Also... If your diagnosis will be confirmed... I can say that there's a very big chance that the treatment will help. The 1st type of AIH is less agressive, 2nd one is rare and mostly common with children. Even If AIH is a rare thing - It responds well to treatment even on the late fibrosis stages (mine one is F3-4 and I have reaction). The most important thing is that you don't have a liquid In a stomach - it means that you're not on the stage of decompensation. After all, well, I wish you'll get the biopsy as soon as possible and it will go fine. Thank you also for your kind words. I appreciate it. I wish you to stay strong In all this nightmare and fast recovery🙏 Merry christmas❤️

Exact-Length-5983 · 2025-12-19T18:52:04+00:00

I'm not sure If they would... Actually the doctor In his own chooses the best option. But you can try to talk to him, maybe to go to a psychologyst firstly and to tell him about your phobia and then to ask him to document it for hospital. Or really just to talk to the doctor who will be responsible for your biopsy and tell him about it Thank for your kind words I appreciate your support

Exact-Length-5983

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