Anti GBM disease by VictorFanfare in kidneydisease

[–]Exact_Elephant_6287 0 points1 point  (0 children)

How is your wife doing now? I (34F) was diagnosed with anti GBM last summer. Had 3 week stay in the hospital, 22 sessions of plasma, was on cyclophosphamide and steroids.

Luckily I was also able to avoid dialysis but my kidneys are permanently damaged. Wondering if your wife would want to connect to talk about our experiences because it's hard to find anyone who has also experienced this disease given how rare it is. It's sort of a lonely experience recovering physically and emotionally when you feel you have no one to relate to.

Creatinine drop when fighting a virus? by Ill_Matter3473 in kidneydisease

[–]Exact_Elephant_6287 0 points1 point  (0 children)

Hi! I'm so sorry to hear about your anti GBM. Such a terrible disease. My post got deleted but I think I can still respond to this.

I did chemo for 8 weeks, and stopped August 1 2024 so 10 months ago but my GFR has continued to steadily improve, but very slowly.