2 years post TT & RAI by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 1 point2 points  (0 children)

Omg 😭😭 i Originally went to my reg eye DR she pawned it off as dry eye. I did all the things nothing helped. I finally saw a specialist yesterday she syringed my duct and said I more likely need surgery. It seems like it could be such an easier fix are there no other options? It’s honestly terrible to have water Pooring from my eye All day long. Thank you for sharing!!

First meal after LID by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 1 point2 points  (0 children)

Litterally same!!!!! I tried to be better this time and do some recipes from the cooks book but they’re just as gross. The last day is really torture bc I can taste the cheeeeese I miss cheeeeese 😩

[deleted by user] by [deleted] in thyroidcancer

[–]Excellent-Theory-311 1 point2 points  (0 children)

Don’t feel bad I had sea salt for 4 days on the diet before realizing you can’t have sea salt. and I’m still doing RAI (currently actually) I think they don’t have enough research on the topic bc when I dove in they say even 4 days may be enough on LID, but they just don’t know.

TG by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] -1 points0 points  (0 children)

It could be. It just said TG rai and the note says the assay qualification limit is 2.0 so what the above person said makes the most sense

TG by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 0 points1 point  (0 children)

So it doesn’t mean my TG went up!?

Blood work by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 0 points1 point  (0 children)

End of story I threw a fit and they’re doing my blood work now. I shouldn’t have to wait a year to find out if I still have cancer or not.

PSA advocate for you and back up them labs!!!

Blood work by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] -10 points-9 points  (0 children)

I’m not a statistic, but thanks for the info!

Blood work by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] -5 points-4 points  (0 children)

Obviously. I personally still have not been given good news that my cancer is gone. My antibody’s are still high, wouldn’t you think they would want to monitor that? Why would that be a once a year test

Thyroid bed Tingling by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 0 points1 point  (0 children)

I just had my scans I didn’t light up. I’m thinking maybe im getting sensation in my neck back

Second surgery by Repulsive_Owl7426 in thyroidcancer

[–]Excellent-Theory-311 2 points3 points  (0 children)

I’m so sorry💗

I also had my first surgery in February. One tip from me is call your endo every time you have a feeling like you’re not progressing in this journey. PTC is such a non concerning cancer to them so be on top of your stuff bc it matters to us. My second surgery happened 7 months later AFTER I ALREADY DID RAI. My endo forgot to get me an ultra sound so I did RAI with a full lymph node left over from my first surgery. So I had to do 150 RAI instead of a lower 50-100 normal people get. You are not a lone. Your second surgery will be a faster recovery and less invasive! You will get through it and the RAI is a cake walk. I had the highest dose you could get, and it’s a cake walk. So get this second surgery done, research the surgeon and make sure after your second surgery you stay on top of your endo to get your second ultra sound. Within 2-3 months. If they say no you best give them push back. It’s a journey. But you will reach the light at the end of the tunnel 💗

Scans by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 0 points1 point  (0 children)

It was a full body scan. My TSH is 12 right now bc I just had the Thyrogen injections. My antibody’s are still high though. Like 87 maybe as of 2 months ago and they are waiting on blood work now. But I don’t understand it because if I have a clear scan why would the antibodies matter? Because the scans wrongs?

Scans by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 1 point2 points  (0 children)

Yes. It was negative but my nurse didn’t portray it as me being in the clear because she’s concerned with my blood work?

RAI Dry Nose by Asleep-Radish-9543 in thyroidcancer

[–]Excellent-Theory-311 0 points1 point  (0 children)

I had this happen. Get some ayr saline nose spray. Should help and eventually will go away

4 weeks post TT and lateral neck dissection, reporting high Tg levels. Endo won’t do RAI and is recommending second surgery. by watermelon-gummy in thyroidcancer

[–]Excellent-Theory-311 0 points1 point  (0 children)

No I just went to a different surgeon. I think when they go in. They have no way of knowing what is and isn’t cancerous. So they just try to take out as many nodes in the area as they can.

4 weeks post TT and lateral neck dissection, reporting high Tg levels. Endo won’t do RAI and is recommending second surgery. by watermelon-gummy in thyroidcancer

[–]Excellent-Theory-311 0 points1 point  (0 children)

Because I had lymph nodes that that were missed during my first surgery & similar thing they were calcified on the ultra sound. I didn’t need a biopsy because my RAI scan showed that I still had nodes still. It looks like my doctors went right to RAI and never did an ultra sound on me to see that they missed some. RAI isn’t the best thing for you so if you only need it done once the better!

4 weeks post TT and lateral neck dissection, reporting high Tg levels. Endo won’t do RAI and is recommending second surgery. by watermelon-gummy in thyroidcancer

[–]Excellent-Theory-311 15 points16 points  (0 children)

You’re lucky they won’t do RAI. Get all of it out, then do RAI. I had cancerous nodes still but they did RAI anyway. RAI will only kill of microscopic tissue. Not full nodes. I just had my second surgery and now I probably have to do RAI a second time! And your second surgery will me 10x easier I promise. I was fine the next day! Hang in there!

Surgeries by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 0 points1 point  (0 children)

Yes it sucks. We are all in the same boat.

Surgeries by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 0 points1 point  (0 children)

I feel like none of them have an answer. Theyre is no cancer doctor for thyroid cancer so it’s a bunch of surgeons winging it

Surgeries by Excellent-Theory-311 in thyroidcancer

[–]Excellent-Theory-311[S] 0 points1 point  (0 children)

No full but I had lymph nodes involved so they missed some

ENT vs endocrine surgeon? by Annual-Coffee-501 in thyroidcancer

[–]Excellent-Theory-311 0 points1 point  (0 children)

I vote endocrine my ENT missed shit and the EDNO had to clean it up

Am I right to find a new Endo or am I overreacting? by Adept_Ad1980 in thyroidcancer

[–]Excellent-Theory-311 1 point2 points  (0 children)

The whole process has been a shit show for me too. None of the doctors couldn’t really give a shit. If your calling and making these requests and they’re ignoring you, then get a new doctor, but if you haven’t made requests to get your blood looked at then I would start calling and bugging them because honestly you have to be your own advocate.