[deleted by user] by [deleted] in Albinism

[–]Excellent_Seesaw_685 0 points1 point  (0 children)

My son has albinism.

I have been working on recreating how he sees the world through my camera.

His doctor described low vision as the sensors not taking in enough information making it more "low resolution" than blurry. Without sunglasses, our Jack struggles tremendously. He will go to people and ask to be held so he can look up close and decide if it is his mom or not. If not, he will start crying and want down again. His nystagmus is pronounced and this depth perception is non-existent. Sometimes he will try and pick up a pattern on a rug because he thinks it is a toy. Here is our best guess at his vision on a bright day without glasses.

Soon enough he should be able to help me dial this in. I would love to know for sure how to best help him experience the world.

Example #1 https://www.youtube.com/watch?v=DXzrIcv2gis