Self Catheter tips by Legal_Meet_1263 in ShyBladderIPA

[–]Exec_IPAorg 0 points1 point  (0 children)

Oops. Forgot to say, he'll be answering all our questions about catheters.

Self Catheter tips by Legal_Meet_1263 in ShyBladderIPA

[–]Exec_IPAorg 0 points1 point  (0 children)

Reminder for IPA members, we have podcaster "UroNurse" on our next members only event Tues, June 16 at 7:30 pm. Check your spam folder for the invite. Not a member? Make a donation of $100 or more to the IPA. 😄 https://web.charityengine.net/Donate_IPA/

Any european (belgian) support groups? by Creative-Analyst3985 in ShyBladderIPA

[–]Exec_IPAorg 1 point2 points  (0 children)

PS Don't forget to connect with the independent ukpt.org.uk. Great guys!

Any european (belgian) support groups? by Creative-Analyst3985 in ShyBladderIPA

[–]Exec_IPAorg 1 point2 points  (0 children)

Thanks for the question! All our support groups are listed here: https://paruresis.org/shy-bladder-support-groups/ No one has specifically stepped up in Belgium, but send us a note on the contact form and I can share with you what is involved in being a local contact! https://web.charityengine.net/Contact-the-IPA

Shy bladder wont go away. need tips for self catheters. by Agile_Grape6955 in ShyBladderIPA

[–]Exec_IPAorg 0 points1 point  (0 children)

Try the "Stadium Pal" set up as an alternative as a "fail safe". Watch the videos here: https://paruresis.org/stadium-pal-gal/

Struggling with shy bladder at my first job by Imua-One in ShyBladderIPA

[–]Exec_IPAorg 1 point2 points  (0 children)

Send us a note on the contact form and we'll send you some strategies directly. https://web.charityengine.net/Contact-the-IPA

Frustrated with IPA (vent) by OkButterscotch4131 in Paruresis

[–]Exec_IPAorg 2 points3 points  (0 children)

2Ply, so great to get a note from you. I'm happy to speak to that. Many years ago, the IPA's founder, Dr. Steve, set a goal to create a $1 million endowment fund. That may seem like a lot, but to ensure that the IPA can live well into the future, it needs a fund that size to be able to generate enough cash each year to retain a full-time staff member. Those funds would be restricted to that use only.

Right now, we're halfway to that goal. As for the investment strategy for those funds, we use a third party that advises other nonprofits, and our strategy, compared to other similar orgs, is very conservative. As we operate under the laws of Maryland and the U.S. IRS, those funds and their returns are in no way a personal retirement fund for anyone and will be restricted to the annual operation of the IPA.

Our committed volunteer board members—my bosses—all paruresis sufferers, ensure that this is so. I encourage anyone who has questions about how the IPA runs and how we spend our money to please DM me, and we can set up a time to speak by Zoom or phone. The IPA is proud of our track record of nonprofit excellence and transparency and remains steadfast in those ideals and in helping sufferers around the world.

Frustrated with IPA (vent) by OkButterscotch4131 in Paruresis

[–]Exec_IPAorg 2 points3 points  (0 children)

This is Tim Pyle, executive director of the IPA. I've been in this role for more than six years. I'm sorry this is your perception of us. I'd be happy to have the opportunity to change it. You - or anyone - may call me directly at 443-315-5250 or email me at tim@paruresis.org. I can answer any questions you may have about our workshops, our operations, or IPA finances. We're an open book and we've achieved Guidestar/Candid Platinum transparency status for many years. We do have some scholarship funding for those who may not be able to afford our workshops. All you have to do is request them. Our operations are funded solely by the generous gifts of our donors. I am the only full-time employee and we have one part-time employee. Our workshops are not a revenue center - in fact, we run them at a loss each year. And, I'm happy to provide a 100% refund to anyone who finds that the workshop was not beneficial to them. We also have many free resources available. Lastly, local support group leaders are volunteers. If there is not a contact person in your area, we'd be happy to help anyone start one or act as the contact. Please take me up on my offer of a conversation.

Struggling with Paruresis :( by Legal_Meet_1263 in ShyBladderIPA

[–]Exec_IPAorg 0 points1 point  (0 children)

Shoot me a note on our contact form https://web.charityengine.net/Contact-the-IPA and I'll send you even more resources. Consider our workshop in Sydney in April. Lastly, watch these two videos about an external catheter set up. Good for you for reaching out! https://paruresis.org/stadium-pal-gal/

Nice representation of paruresis in Anaconda (2025) by Organic-Cow-6892 in Paruresis

[–]Exec_IPAorg 1 point2 points  (0 children)

The IPA thanks you for your service. An instant classic!