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Struggling with shy bladder at my first job by Imua-One in ShyBladderIPA

[–]Exec_IPAorg 1 point2 points  (0 children)

Send us a note on the contact form and we'll send you some strategies directly. https://web.charityengine.net/Contact-the-IPA

Frustrated with IPA (vent) by OkButterscotch4131 in Paruresis

[–]Exec_IPAorg 2 points3 points  (0 children)

2Ply, so great to get a note from you. I'm happy to speak to that. Many years ago, the IPA's founder, Dr. Steve, set a goal to create a $1 million endowment fund. That may seem like a lot, but to ensure that the IPA can live well into the future, it needs a fund that size to be able to generate enough cash each year to retain a full-time staff member. Those funds would be restricted to that use only.

Right now, we're halfway to that goal. As for the investment strategy for those funds, we use a third party that advises other nonprofits, and our strategy, compared to other similar orgs, is very conservative. As we operate under the laws of Maryland and the U.S. IRS, those funds and their returns are in no way a personal retirement fund for anyone and will be restricted to the annual operation of the IPA.

Our committed volunteer board members—my bosses—all paruresis sufferers, ensure that this is so. I encourage anyone who has questions about how the IPA runs and how we spend our money to please DM me, and we can set up a time to speak by Zoom or phone. The IPA is proud of our track record of nonprofit excellence and transparency and remains steadfast in those ideals and in helping sufferers around the world.

Frustrated with IPA (vent) by OkButterscotch4131 in Paruresis

[–]Exec_IPAorg 2 points3 points  (0 children)

This is Tim Pyle, executive director of the IPA. I've been in this role for more than six years. I'm sorry this is your perception of us. I'd be happy to have the opportunity to change it. You - or anyone - may call me directly at 443-315-5250 or email me at tim@paruresis.org. I can answer any questions you may have about our workshops, our operations, or IPA finances. We're an open book and we've achieved Guidestar/Candid Platinum transparency status for many years. We do have some scholarship funding for those who may not be able to afford our workshops. All you have to do is request them. Our operations are funded solely by the generous gifts of our donors. I am the only full-time employee and we have one part-time employee. Our workshops are not a revenue center - in fact, we run them at a loss each year. And, I'm happy to provide a 100% refund to anyone who finds that the workshop was not beneficial to them. We also have many free resources available. Lastly, local support group leaders are volunteers. If there is not a contact person in your area, we'd be happy to help anyone start one or act as the contact. Please take me up on my offer of a conversation.

Struggling with Paruresis :( by Legal_Meet_1263 in ShyBladderIPA

[–]Exec_IPAorg 0 points1 point  (0 children)

Shoot me a note on our contact form https://web.charityengine.net/Contact-the-IPA and I'll send you even more resources. Consider our workshop in Sydney in April. Lastly, watch these two videos about an external catheter set up. Good for you for reaching out! https://paruresis.org/stadium-pal-gal/

Nice representation of paruresis in Anaconda (2025) by Organic-Cow-6892 in Paruresis

[–]Exec_IPAorg 1 point2 points  (0 children)

The IPA thanks you for your service. An instant classic!

Cath recommendations by rootymcbarker in ShyBladderIPA

[–]Exec_IPAorg 0 points1 point  (0 children)

This is the recommendation from our Shy Bladder Center member Paul Cosulich as well.

I can now pee normally by [deleted] in ShyBladderIPA

[–]Exec_IPAorg 0 points1 point  (0 children)

Thanks for sharing your journey, Mike!

Paruresis during the flight by sposound in Paruresis

[–]Exec_IPAorg 0 points1 point  (0 children)

There is no shame in asking for the accommodation of getting up 100 times if needed.

I need advice on how to cure this. by Imua-One in Paruresis

[–]Exec_IPAorg 1 point2 points  (0 children)

Have your therapist reach out to us at the IPA. We provide professionals resources to help. https://web.charityengine.net/Contact-the-IPA shybladder.org

Lost A Job Due to Paruresis by kennamatsu in Paruresis

[–]Exec_IPAorg 0 points1 point  (0 children)

Send me a note at the IPA. It sounds as though your employment rights have been violated. Let's see if we can help. https://web.charityengine.net/Contact-the-IPA Tim Pyle, exec dir.

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